I have been a participant in the Assert (All Stakeholders Engage in Research Together) project this semester, run by Prof Beth Malow's Sleep Lab. https://www.vumc.org/sleep-in-autism/assert-resources
Its been a good experience, listening to everyone's perspective and being able to contribute, though I could not make last few sessions as it clashed with the new meetings at my new lab rotation.
The disability rights mantra has long centered around Nothing about us without us. And I am glad that to see this idea trickling down with respect to research which will (hopefully) lead us to solutions. And this effort is at happening at many places now - at universities and research centers.
If you are an autistic, please do consider getting involved by emailing assert@vumc.org. It is important that our voices are heard.
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