Showing posts with label Advocacy. Show all posts
Showing posts with label Advocacy. Show all posts
My Ted X talk titled "Pebbles in the Pond of Change
Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.
My Ted X talk titled "Pebbles in the Pond of Change
Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.
My TedX Talk
My Ted X talk titled "Pebbles in the Pond of Change
Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.
TedX Talk
Starting off Disability Awareness Month with my TedX talk
https://www.
A nice note
Got a nice package in the mail with this note, as I head into the next Duke ACE meeting.
NISE Fellow on AANHPI Autism Panel
NISE Fellow Hari Srinivasan Appears on AMBIV Collective Panel.
Last Wednesday, 29th May, NISE Fellow and self-advocate Hari Srinivasan appeared on an AMBIV panel entitled AANHPI Autism Self-Advocacy Panel.The recording of the webinar is at this link, or watch below.
The webinar featured an empowering online panel that showcased autistic Asian American, Native Hawaiian, and Pacific Islander (AANHPI) self-advocates as they shared their inspiring journeys and self-advocacy experiences. Attendees had the opportunity to discover how these incredible individuals navigated the intersections of their cultural heritage and autism and how they used their voices to drive change and foster understanding. The conversation provided an intimate glimpse into their challenges, triumphs, and the strength of their resilience.
The AMBIV collective is dedicated to redefining inclusion. They are actively empowering disability and neurodivergent communities, fostering community connections, and building solutions rooted in diverse needs and aspirations. Their vision is to cultivate an inclusive and collaborative ecosystem that embraces diversity, innovation, and shared knowledge, offering hope for a more inclusive future.
The webinar featured an empowering online panel that showcased autistic Asian American, Native Hawaiian, and Pacific Islander (AANHPI) self-advocates as they shared their inspiring journeys and self-advocacy experiences. Attendees had the opportunity to discover how these incredible individuals navigated the intersections of their cultural heritage and autism and how they used their voices to drive change and foster understanding. The conversation provided an intimate glimpse into their challenges, triumphs, and the strength of their resilience.
The AMBIV collective is dedicated to redefining inclusion. They are actively empowering disability and neurodivergent communities, fostering community connections, and building solutions rooted in diverse needs and aspirations. Their vision is to cultivate an inclusive and collaborative ecosystem that embraces diversity, innovation, and shared knowledge, offering hope for a more inclusive future.
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29th May, NISE Fellow and self-advocate Hari Srinivasan appeared on an AMBIV panel entitled AANHPI Autism Self-Advocacy Panel. The recording of the webinar is at this link: https://ow.ly/qoSQ50S86jg
The webinar featured an empowering online panel that showcased autistic Asian American, Native Hawaiian, and Pacific Islander (AANHPI) self-advocates as they shared their inspiring journeys and self-advocacy experiences. Attendees had the opportunity to discover how these incredible individuals navigated the intersections of their cultural heritage and autism and how they used their voices to drive change and foster understanding. The conversation provided an intimate glimpse into their challenges, triumphs, and the strength of their resilience.
The AMBIV collective is dedicated to redefining inclusion. They are actively empowering disability and neurodivergent communities, fostering community connections, and building solutions rooted in diverse needs and aspirations. Their vision is to cultivate an inclusive and collaborative ecosystem that embraces diversity, innovation, and shared knowledge, offering hope for a more inclusive future.
#Neurodiversity #AANHPI #Autism #ASD #SelfAdvocate #Panel #Webinar #AMBIV #AMBIVCollective
The webinar featured an empowering online panel that showcased autistic Asian American, Native Hawaiian, and Pacific Islander (AANHPI) self-advocates as they shared their inspiring journeys and self-advocacy experiences. Attendees had the opportunity to discover how these incredible individuals navigated the intersections of their cultural heritage and autism and how they used their voices to drive change and foster understanding. The conversation provided an intimate glimpse into their challenges, triumphs, and the strength of their resilience.
The AMBIV collective is dedicated to redefining inclusion. They are actively empowering disability and neurodivergent communities, fostering community connections, and building solutions rooted in diverse needs and aspirations. Their vision is to cultivate an inclusive and collaborative ecosystem that embraces diversity, innovation, and shared knowledge, offering hope for a more inclusive future.
#Neurodiversity #AANHPI #Autism #ASD #SelfAdvocate #Panel #Webinar #AMBIV #AMBIVCollective
Recording at https://ambivco.com/#aanhpi-autism-selfadvocacy
@JennyMaiPhanPhD is moderating the #AANHPI panel of neurodivergent self-advocates.
@HariSri108
, we look forward to learn about your innovative projects. #AANHPIHeritageMonth #AsianAmerican #Neurodiversity #ASD #DisabilityTwitter
What a surprise! I was not expecting
@hariSri108
to be at this panel. #AANHPIHeritageMonth #neurodiversity #AANHPI #asianamerican
On May 29th at 10 am PT // 1 pm ET, we'll be hosting an engaging conversation where our esteemed panelists will share their unique journeys, self-advocacy experiences, and invaluable insights on the intersection of autism and their cultural identities.
This virtual event offers an invaluable opportunity to learn from the lived experiences of Ben VanHook, Celina Tupou-Fulivai, Hari Srinivasan, and Dennis Tran. Moderated by the Dr. Jenny Mai Phan and Kim Chua, we'll delve into thought-provoking discussions that champion inclusion, amplify diverse narratives, and foster a deeper understanding of neurodivergence within the AANHPI communities.
Join us as we embrace the beauty of our differences, challenge societal norms, and pave the way for a more inclusive and accepting world. Together, we can break down barriers, dispel myths, and create a space where every perspectives is celebrated.
Don't miss this incredible opportunity to learn, connect, and be inspired!
📅 Save the date: Wednesday, May 29th
⏰ Time: 10 am - 11 am PT // 1 pm - 2pm ET
💡 Learn more and register: https://lnkd.in/gExf56ba
Save the date: Wednesday, May 29
Time: 10 AM PT
Event: Free Virtual Panel
Time: 10 AM PT
Event: Free Virtual Panel
Join us on Wednesday, May 29 at 10 AM Pacific Time/ 1 PM Eastern Time for an empowering and insightful virtual discussion. Our incredible panelists, each with their own unique experiences, will be sharing their journeys of self-advocacy, exploring how they intertwine their rich cultural heritage with autism to foster change and understanding.
This panel is not just a conversation but a step forward in embracing the diversity of the autism community and ensuring that all voices are heard and valued.
Let's come together to support and learn from the experiences of the AAPI autistic community. I look forward to seeing many of you there!
Don't miss our upcoming online panel featuring inspiring autistic Asian American and Pacific Islander self-advocates! 🌟
Join us for an engaging conversation as they share their unique journeys, self-advocacy experiences, and insights on the intersection of autism and their cultural heritage. This event offers a valuable opportunity to learn, connect, and champion inclusion.
Join us for an engaging conversation as they share their unique journeys, self-advocacy experiences, and insights on the intersection of autism and their cultural heritage. This event offers a valuable opportunity to learn, connect, and champion inclusion.
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I'm giving a TedX talk
Apr 20, 2024 (In-Person) in Folsom, CA
TedX Event: https://www.ted.com/tedx/events/56378
Tickets: https://tedxfolsomhighschoolyouth.ludus.com/index.php
Hari Srinivasan: "Pebbles in the Pond of Change"
TedX Event: https://www.ted.com/tedx/events/56378
Tickets: https://tedxfolsomhighschoolyouth.ludus.com/index.php
Hari Srinivasan: "Pebbles in the Pond of Change"
Solutions not more talk or more labels
I would like to see ACTION on ACTUAL SOLUTIONS - communication, biomedical physiology (physical/mental health), sensorimotor, policy, funding, myriad equity of access issues. Level the playing field so that ALL autistics can make use of opportunities. Thats quality of life.
Simultaneously reclaim and destigmatize existing labels so they can’t be used against you, instead of airtime and resources creating more and more new labels /terminology and then more airtime arguing about which is good/bad.
Simultaneously reclaim and destigmatize existing labels so they can’t be used against you, instead of airtime and resources creating more and more new labels /terminology and then more airtime arguing about which is good/bad.
The Lancet and Cell Press Panel - Inclusive Langauge in Scientific Publishing
Recording: https://www.youtube.com/watch?v=PuazLmv7hFo
Discussion exploring neurodiversity in science and the scientific community. Beginning with a short introduction to the concepts of neurodiversity and the social model of disability, speakers Mary Doherty (University College Dublin), Hari Srinivasan (Vanderbilt University), and Axelle Ahanhanzo (LAUDACE) will offer insights into making spaces safer for neurodivergent people, discuss intersectionality and neurodivergence, and unpack the importance of evolving scientific language to reflect lived experiences while ensuring rigorous scientific investigation.
Moderated by Matthew Gilbert (The Lancet), Sri Narasimhan (Cell), and Amy Slogrove (The Lancet Child and Adolescent Health), this event will feature three short talks from our panelists, followed by time for discussion and questions.
Cell Press’s virtual event series on inclusive language in publishing brings together researchers and experts with the key perspectives needed to make science and the language of scientific publishing more inclusive and accurate. We’re now proud to offer these events—begun in 2023 as an internal Cell Press series to educate and support our editors and staff—to the broader scientific community. As an integral part of our 50th anniversary celebrations, these events seek to expand the reach of our speakers’ insightful perspectives and support our commitment to advocating for science and scientists.
Panelist Hari Srinivasan, is a PhD neuroscience student researching the sensory domain in autism at Vanderbilt University, an alum of UC Berkeley where he ran a class on autism, a PD Soros Fellow, a Distinguished Fellow at the Frist Center for Autism and Innovation, and more.
Hari also writes extensively on disability and autism issues with multiple high impact essays in high profile media such as Time, Newsweek, Fortune, Boston Globe and Psychology Today.
Strength Spotting Saturday
I was spotlighted along with some rather kind words by an org today on social media
It's Strength Spotting Saturday, and today we're spotlighting Hari Srinivasan!
🌟Perspective - Mr. Srinivasan graciously shares his view of the world in a manner that is accessible to the general public. His contributions to the widely distributed Time Magazine increase the understanding and awareness of his lived experience.
🌟Perseverance - The achievements in scholarship demonstrated by Mr. Srinivasan are demonstrative of his perseverance. Honors in his undergraduate program at the University of California Berkeley and entrance into the prestigious neuroscience program at Vanderbilt University as a doctoral candidate are just a few of his achievements in higher education.
🌟Judgment - Mr. Srinivasan serves in many advisory roles, including membership of the Interagency Autism Coordinating Committee, which advises federal policy and priorities, and on the Council of Autistics Advisors for the Autism Society of America. In these roles, he adeptly views different opinions and weighs the evidence to guide decision-making for the betterment of the autism community.
Thought Leader.
"So proud of Hari Srinivasan for his singular voice of insight, wisdom, advocacy, and activism, and for the distinction he brings to himself and everyone with whom he is associated. The Frist Center for Autism and Innovation | Vanderbilt University is honored to count Hari among its distinguished Fellows and it is awesome to imagine what the future holds for this inspiring young thought leader."
Some amazing gracious words about me from Prof Keivan Staussun of Vanderbilt University and Director of the Frist Center for Autism and Innovation at Vanderbilt. Thank you Keivan, and I had never quite though of myself as a "thought leader."
INSAR ARC
Applications are now open for the next cohort for INSAR's ARC.
The INSAR Autistic Researchers Committee (ARC) was launched in 2020 as a dedicated space within the society to serve the growing demographic of autistic autism researchers. This body, composed of autistic researchers across multiple career stages, serves to advance the interests of autistic researchers within INSAR and advocate for adequate inclusion of this group across all INSAR programs.
The aims of the Autistic Researchers Committee are as follows:- To directly advocate for the integration and needs of autistic INSAR members (including students, trainees, early career researchers, senior researchers, and other member types) in INSAR programs.
- To create opportunities for scientific career development for autistic autism researchers.
- To ensure autistic scientists have adequate venues to offer their insights to the field across INSAR programs.
- To encourage autistic and non-autistic researchers within INSAR to engage in more participatory research that incorporates stakeholder input.
- To make INSAR conferences more accommodating and welcoming for autistic members and attendees.
- To promote the inclusion of and consideration of issues important to autistic people in INSAR meetings and in autism research across the sciences, social sciences, humanities, education, and other disciplines.
- To advise the INSAR Board on issues important to autistic people.
NASEM: Cultivating Accessible Educational Pathways and Spaces
Event by National Academies of Sciences, Engr and Medicine.
Disrupting Ableism and Advancing STEM:
Cultivating Accessible Educational Pathways and Spaces
THURSDAY, JUNE 15, 2023,
I was on the the panel that runs from 1:35pm ET - 2:15pm ET
Recording link
"This virtual session is a critical element of Disrupting Ableism and Advancing STEM: Cultivating Accessible Educational Pathways and Spaces, the fourth event in the five-part Disrupting Ableism and Advancing STEM conversation series. Overall, this event in the series will focus on the important role of education in preparing students with disabilities as they enter the STEM ecosystem. Discussions will focus on the need to challenge assumptions about who can learn and succeed in STEM and the need to make direct changes to policies and practices to facilitate positive educational experiences for students. Examples will include asset based approaches to learning in classrooms, laboratories, online, and in the field.
Got a nice feedback email today.
"My name is ____ and I work at a medical university in a northern town in ___Ontario Canada. I saw your presentation today on cultivating accessible educational pathways and spaces. I was completely blown away by your presentation. What you have accomplished is incredibly impressive. I not only applaud you but the professors who went out of their way to make labs accessible for you. I think as a medical school, we are behind the ball so to speak with regards to accommodating the needs of those with different abilities....... This entire series has been fascinating to me. Thank you for sharing."====
On behalf of the planning committee, I want to thank you for being part of the NASEM Disrupting Ableism and Advancing STEM discussion series. This event was very well received, and your panel’s discussion was truly fantastic. Thank you for your leadership and for taking time to share your insight and expertise.
It feels like a historic and meaningful inflection point for people with disabilities in STEM, and we are grateful for your role in driving that change.
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On behalf of the planning committee for the Disrupting Ableism and Advancing STEM conversation series and the National Academies staff, I wanted to express my sincere gratitude to each of you for an informative and engaging panel session. We are proud to have brought together such an amazing group of individuals to speak about Lived Experiences: Listening, Learning, and Acting. I am certain that your discussion was greatly appreciated by the over 320 who attended on June 15th to learn about issues related to Cultivating Accessible Educational Pathways and Spaces.
Your expertise and insights were invaluable, and we are so grateful for the time and effort that you put into preparing and delivering your remarks.
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O friend
Today I got a email offering an appointment to the Scientific Committee of the 14th Autism Europe Congress 2025 to be held in Dublin, Ireland. The Autism Europe Congress is a triennial scientific conference bringing together stakeholders to discuss autism research.
What I especially loved was that the email started with "A chara" (a traditional opening to an Irish letter – translating as “O Friend”) and ended with "Mise leas mise" (a traditional closing to an Irish letter – translating as “It is I, with respect”).
It is so affirmative and speaks to connections filled with kindness, which all of us need a lot more of. Will definitely be contemplating on those phrases more. Parallels to Metta (Buddhist), Kalyanamastu (Sanskrit), Ofa Lahi Atu (Tongan), Ubuntu (Bantu) or a new word I came across recently Takiwatanga (the Maori word for autism, which roughly means "in our own space and time").Where do the behavior autistics go?
In this month of autism acceptance and autism belonging, I want to point to a very concerning issue.
When your disability is TOO VISIBLE, you are made INVISIBLE by society, warehoused somewhere where you can be out of sight and out of mind of society.
This is the plight of many adult autistic peer friends that I know. The adult autism world of inclusion and belonging, only wants the good patients. Special education had never wanted "behavior kids - the ones with meltdowns, aggression and SIBs", so will just house them in some classroom or NPS, ready to spit them out at age 22 at which point their legal obligation ends under IDEA.
I truly believe that there is a biological basis to all this SIB, aggression and other behaviors. There also seems to be confusion that such behaviors are seen only to those with low IQ or lesser speaking ability or whether you have access to communication. I know an equal number of autistics, considered "moderate" or "high" in childhood who reach exactly the same place by early/late teen-hood; tossed between psychiatric facilities or stuck at home with their families. Most are heavily medicated with pharma cocktails that don't seem to work at all for autistic physiology.
The adult autism world does not want these "behavior autistics" either. Adult Day Programs (ironically meant for autistics) don't want them, even Group Homes for autistics want only the 'well-behaved' and easily manageable ones.
Let me give you an example of 2 peers that I know - one sits in the corner all day and is regarded as a model student by that Adult Day Program. The other peer is at home with his aging parents as no day program will take him - "too much behaviors." And he is just one of the many dozens I personally know and grew up with in this scenario.
Behavior therapy agencies will tell the family that that autistic is "not a good fit" for their program. If behavior therapy agencies don't want to help with behavior, then why is the word "behavior" in their name at all. Autism professionals too will find PC alternatives that essentially say "not a good fit" for the autism they don't want to work with.
Autism Clinics at major hospitals too, end at age 18. Did the autism and behaviors magic away in adulthood.
Essentially the entire autism professional space is rending such autistics even more invisible.
And doing such a fantastic job of it that the other autistics (invisible disabilities/neurodiverse) don't know or believe our existence.
In a recent twitter post an adult autistic pointed to lack of numbers of such adults as evidence that they don't exist - and since she herself had started to talk at only at age 3 after therapy; it must mean that ALL autistics must have regained speaking ability and inclusion sometime in childhood.
Are you really surprised at this. When you are out of sight is out of mind of society; it also means nothing need be done to help. And it merits some societal attention only when it makes it to the news in a dramatic fashion such as in the article below which will be lost in the in the quicksand of short public memory.
And did I mention, it is incredibly hard to even find support staff as there are enough "easier" adult-autistics clients job market. So staff don't want these autistics either; everyone wants the easy button.
There is only waitlists or rejection at every turn.
Where are the services and supports for these adult autistics? What is the long term outcome? What is the plan?
It does not have to be like this. I truly believe that there is a biological basis to all this SIB, aggression and other behaviors. Where is the biomedical research that looks for answers as to what's going on at a physiological level so that we can work on targeted solutions. Given that traditional pharma is not working, when are we going to get targeted interventions and pharma that actually work with autistic physiology?
How can there be inclusion and belonging for these autistics unless we find solutions to some prior steps first?
Why is this not seen as an urgent need in autism research?
And to the growing numbers of Neurodiverse community out there, the action I request of you is - Include everyone, including the marginalized autistics. Help find solutions to these issues so that every autistic can be part of the dream of Inclusion and Belonging.
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