Showing posts with label Family/Friends. Show all posts
Showing posts with label Family/Friends. Show all posts

Happy Mother's Day

 Dedicated to the EXTRAORDINARY MOMS and DADS and PARENTS out there, 

on behalf of your extraordinary child.  

You Never Gave Up on Me

You held me in your arms, oh mother mine
When I was a mere wrinkled newborn babe
You gazed at me with love and joy
Just as all young mothers do.

I walked my first step and said my first word
With pride, you watched my every move
You expected me to walk the predictable path
Just as all young mothers do.

You watched me slip and slide away
Wondering why I didn't do what other kids do
I stopped making eye contact with you
And stopped the spoken words too

A well of sadness entered your eyes
The smile not always in place
Perplexed and puzzled
Do I know this child of mine at all?

But, you rolled up your sleeves
You never gave up on me

You took the other fork on the road
The one without the map
You struggled and searched for solutions
You fought endless battles for me

You put your fists up and took a stance
And you never gave up on me

Lost in the desert of sadness
You changed your perception of things
You summoned new strength and courage
From the unfathomable deep

You changed your whole life for me
And, you never gave up on me

You coaxed every small victory out of me
Pride overflowed from your eyes
Steps of this extraordinary child
Of quite the extraordinary mom

You do the job of a dozen people
And you never gave up on me

Exhausting is the journey you're on
Exhilarating only some of the time
I am not the typical child you thought you'd raise
New challenges lie in the path every day

To the extraordinary mom who holds my hand
And who never gave up on me.

------------------------------------------------------------------------



I wrote this poem sometime during high school. But I feel it is still so relevant even today. This poem is dedicated to all those wonderful and amazing moms and dads and parents out there who did not give up on their disabled child. Thank you for your dedication and fortitude, in rolling up your sleeves and taking on the world for us, without even knowing how to go about it.


I think back to the story of the frog who climbed to the top of the well amidst discouragement from the crowd that the task was impossible; turns out the frog was deaf so had not heard the discouragement, so made it all the way to the top.


This is what parents of the children seen as having more challenging disabilities face every day. From the get go, they are nudged to tone down expectations of their children, not to expect much. Lady Liberty did not hold up her torch of the American Dream for that child.

Over the years, I have seen many of my peers disappear one by one into the void of the system (out of sight and out of mind of society), as the once eager and enthusiastic parents reach a state of burnout and exhaustion, with this constant barragement of discouragement and lack of support. Other adult peers who have aged out of the special education system are sitting at home with their aging parents as adult day programs want “easy to manage” adults (sheep!!), even as there is a dearth of support systems for the ones with “behaviors.” It is like a battle for the classroom placements and supports during the school district years, starting all over again in adulthood for many.

Thank you to all the extra-ordinary parents out there, for your support and embrace, when the world seems to abandon us at every new stage, not just when we were children but as adults and possibly even when we are middle aged. For many with more significant disabilities, our parents and siblings are likely the only family we will ever have. I wonder who will be there as this lifelong pillar, when we are senior citizens ourselves, where we are not just battling aging issues but also the nature of our disability may mean that not all of us reach a level where we are able to take care of ourselves and have to depend on the largesse of paid staff for a decent quality of life.

Parents, Yours is truly a dedication of a lifetime. Thank you.



Samosa Chat

 


On UC Berkeley campus enjoying Samosa chat with fellow Calbear David Teplitz.
Our senior year starts next week.

Raghavan Thatha online

Came across a pic of my Raghavan Thatha (grandpa) online, in his heyday working for the UN in the pacific. There are more links of stuff he's done. Too cool.


 

Harrapa Artifact


My late Raghavan Thatha (grandpa) worked in archeology for a while. Replica of an artifact - Harappan seal from the Harappa archeology digs from the time of the Indus Valley Civilization. 2600BC-6000BC


Tongan Kava Bowl

My late Raghavan Thatha (grandpa) also spent many years in Tonga. Tonga is one of the last remaining Polynesian monarchies in the world. This is a Tongan Drum and a Tongan Kava Bowl. Thatha & Paati (grandma) have been to many traditional Kava ceremonies.


Banana Leaf Lunching



Warm delicious Paati samayal (grandma's cooking) on a freshly cut banana leaf from the garden.

Eating traditional style on an organic, eco-friendly, biodegradable plate with extra nutrition thrown in.

Extra nutrition? Polyphenols (think micronutrients in plant based foods packed with antioxidants) in the banana leaves get stimulated from the warmth of the food and get absorbed into the food along with Ascorbic Acid, Citric Acid, Ca and Carotene in Banana Leaves. 

Can I get a banana leaf every meal?

Eating with fingers? Its a natural exercise and builds dexterity for the fingers and the hand (kind of useful for someone like me actually with poor fine motor skills). It's slows down eating and brings about greater awareness of texture and taste, a.k.a mindful eating. 

And isn't seeking sensory experiences an autistic thing? LOL Using silverware actually lends to faster eating. 

Faster eating is linked to Type 2 Diabetics. Silverware actually lends to faster eating.

Ayurveda says nerve endings on the fingers stimulate digestion and improves blood circulation. Incorporating the five elements represented by the fingers - starting with thumb - space, air, fire, water, earth - is holistic eating. Somehow the Colonial legacy has meant that such indigenous cultural practices were frowned upon. That such things were "inferior" and made you "less than"

This sound familiar? - that the disabled mind-body is somehow "less than"

Image Description: Young male of South Indian origin eating food served on banana leaf. Also seated at the dining table is his grandpa with his grandma serving them food.

#PaatiSamayal #GrandmaCooking #EatingOnBananaLeaf




 

In Search of My Promised Land

An early holiday gift from my dad with this message. 

"A Gift to the Greatest Son who is finding his own Promised Land"

Can't wait to start reading. 


 

Kittu's Birthday

Attending my friend Kittu's Birthday. Was good to see him. Been a while.

PG&E Games

PG&E Games

Power going off. Power going off
Definitely at midnight
No, its 8am
At noon, maybe 1pm.
A game of anticipation... prep for a blackout, high winds and wildfire.
College shut down.

Not gonna happen. No winds to speak of
Just the boy crying wolf.
... 8pm campus blackout
College shut for another day.

36 hours to turn it back on!!
College closed for a 3rd day.

What is this game?




Enjoying Tacos on Thursday with my Calbear buddy David
Unexpected holiday due to the power outages at UC Berkeley. Ridiculous that Cal was forced to shut down for 3 days due to PG&E's ambiguity about its actions and inefficiencies. 


Kedar's Engagement

Kedar used to volunteer with me as a high school senior at Archbishop Mitty School

Goodbye Rishi Srinivasan

Rishi the showdog
Goodbye Rishi Srinivasan

Veritable Senior Citizen.
15 dog years, 105 human years.
Golden Fur Shih Tzu.
I miss you, friend.

My 15 yr old Shih Tzu passed away on Sunday night. The house is gonna feel different without him around underfoot and acting as quite the proverbial sibling at times by competing for attention and food.

Meditating in the forest deep.
Flowing hair like a Hermit Rishi.
Expression, a thoughtful contemplation. 
Rishi Srinivasan, an appropriate name.

Rishi came to our house when I was in elementary school. Rishi had this mournful look about him and his long fur made him look like a rishi (hermit) meditating in the forest. So he was aptly named Rishi.  Rishi would accompany my mom to pick me up from Mr Tran’s class those days. My classmate Ryan asked me his name and when I responded, “Rishi,” Ryan immediately exclaimed, “Hari Srinivasan’s dog is Rishi Srinivasan.” So that’s how Rishi became Rishi Srinivasan. The name tag that hung from his collar proudly stated “Rishi Srinivasan” and had our phone number on it.


Sashaying fur like skirts around legs.
Fluffy wagging tail, a furry bouquet.
Former show dog, a handsome dude. 
Pets from strangers, a regular thing.
Tourists, “Can we take a picture with him please?”

Rishi oozed his own unique personality. Rishi had been a show dog before we got him and was a very good looking dog with his flowing hair and the fur around his legs falling like a skirt. His tail when upright looked like a fluffy furry bouquet, which would swish from side to side when he wagged his tail. 

Whenever we’d taken him out to beaches or to Yosemite, folks had always wanted to pet him. Many tourists have wanted to take photos with him. I think in his younger days, Rishi probably knew that he was good looking and was proud of it too. When anyone took a photo, Rishi would join in, give a pose and look right at the camera.  People often mistook Rishi for a girl dog as he was so pretty. I wonder if Rishi minded being called a “her” by people who wanted to pet him.

Communication via Body Language.
Angle and wagging of the tail.
Eyes sparkle or mournful to suit the mood.
His body spoke so much to you.

Rishi communicated a lot just through his body language. The position and angle of his tail itself would be an expression of his delight, his disapproval,  his disappointment or his sorrow.  His eyes too would sparkle with joy or become mournful when he needed a treat from an adult. 

Package of love in under 20 lbs.
Barks stating “I love you, Hari!”
A Happy Dance when seeing me.
Cute paw over paw greeting.

That Rishi absolutely adored me is without a doubt. He’d be camped on the front doormat the entire time I was in school - from the time I got on the school bus to the time the bus returned.  He would hear the bus at the end of the road and come to life joyfully announcing my return. As soon as I stepped in the door, he would do this cute paw over paw on the ground and then skip around in a dance; we called it Rishi’s Happy Dance. 

One time I was on the backyard swing and Rishi was running circles around me happily barking. My therapist asked me, “What is Rishi saying?” expecting me to say “Woof” or something to that effect. Instead, I instinctively responded with “I love you, Hari!”. 

Concern for me when sick.
Vigilant guard during therapy.
Message clear to therapists.
“Take good care of Hari.”

When I was sick, a very concerned Rishi would lie at the foot of my bed, till I got better.  If I said the word "bathroom," in any room in the house, Rishi would run to the nearest adult and give a sharp bark as if to say, “Go attend to Hari.” 

When therapists came over, he would keep an eye on them from his place at the door of the room, making sure they were treating me right. Therapist Cherie has even laughingly assured him, “Rishi, don’t worry, I’m taking good care of Hari.” 

I was taught to say his name in ABA therapy though I already knew his name inside my mind. During my later charter school years, Rishi was my mascot, lying under the table as I did my lessons.

Understood nuances of this extra-special kid.
Alas, the autism factor.
Love could not be stated explicitly.

The quality I think we admire most in dogs is their empathy and Rishi had that in abundance. Intuitively he understood my differences and adapted to it. He learned to work around a lot of my needs and behaviors. For instance, he had really wanted to sleep with me on the bed but I could not handle that, so he just slept in his basket. Instead, he became my music buddy, camping on the bed when I would listen to music on the headphones or during prayer when he would dutifully sit the whole time and listen. 

As a young dog, he would try to intervene when I became agitated but his small size meant he really could not do much. So he learned it was better to just keep out of the way but would come back and sit next to me later to offer comfort.  

Rishi followed me around and showed his love even though I did not always explicitly display outward affection for him. Hugging and petting a dog was not my strong suit as that is a very sensory experience and I have all sorts of sensory dysregulation. Until the very end, I had not found a real comfortable way to physically interact with him, the autism part of me puts many obstacles in the way. 

Autism often means that our behavior and body mannerisms can be contrary to our thought. But I think Rishi just totally understood that and did not demand or expect a reciprocal physical interaction with me. I think he got enough hugs and cuddling from other adults. Rishi also instinctively sensed the times I was more receptive to touching him and when I was not. My touch too has not always been regulated so Rishi just learned to wiggle out if I was a little rough. 

In a world that is filled with naysayers and doubters for us differently-abled folks, it is refreshing to experience such non-judgemental and unconditional love that dogs like Rishi bring. Every disabled child needs to have a dog sometime in their life. 
Every 2 months.
Shaggy bear to shorn sheep.
Sudden new dog in the house.
Autism mind - not reconcile.

Rishi was a hypoallergenic dog with double coated fur. His fur did not shed, rather it grew out so long that his eyes would be completely covered by fur.  So he would go to the dog groomers every couple of months to be bathed and get all his fur trimmed back. He would come back with a bandana and a bow. The transformation would throw me in the early days. A overgrown shaggy dog left at the groomers was picked up a shorn sheep. He would look so different that I would be quite scared of this new dog. I would refuse to go near this new Rishi for a few days. 


Before Grooming
After Grooming


Fruit connoisseur, a banana-loving dog.
Gnaw Carrots, his veggie bone.
Idli, pesarattu, into Indian Food.
Protest bark if not offered a piece.

Rishi loved Indian food like yogurt rice, plain dhal, idlis and salt-free pesarattu. My family is vegetarian and salt and spices were added to most dishes after keeping some aside for Rishi. He loved apples, pears, avocado, boiled potatoes, boiled beans, carrots, moong sprouts, quinoa, and cucumber. He would sit on the kitchen floor and stare mournfully and sometimes make noises of protest in different tones if he was not given a piece. If still nothing was forthcoming, his tail would be stiff and he would give a sharp bark as a reminder that he needed a share. 

He was quite the connoisseur of fruit, and banana was his all-time favorite. If he walked into the room and realized I’d eaten a banana without him (he could still smell the banana in the air), he would whimper sadly.  Rishi could probably eat a whole banana or even two bananas if we let him. A carrot was his daily vegetarian bone and he would gnaw on it all day. 

Even as he has acted like an older sibling in his concern for me, he has also acted like a younger sibling - competing with me for food and attention from my parents. At times the autism part of me has not liked this, though the logical part of my mind has reminded me that he’s just a small wholly dependent dog, and that this was no competition at all. 
Paw on keyboard.
A look that says, “Me too.”
Hari, you are getting a voice.
I want a conversation with you

I think Rishi was thrilled when I first started using AAC. He would come,  place his paw on the computer keyboard and look up as though he too wanted to type out a sentence or two. I bet if he’d been taught to type too, he’d have had a ton to say too. He totally knew the keyboard was somehow helping me. One of my earliest poems was about Rishi.

Had yoga got regard for how darling dogs are
gist of young dogs joy it fortells
joy obvious from its tail, paws, and head.

Understanding silky body moves
God-given gift just for kid
total love in just under twenty pounds.

Noisy licking just unintended
fur very elegant has total appeal
had noted fundamentals of kid.
.
Judicious desire to total caring
Its paw over paw greeting delightful

fur around legs like a skirt.

Beyond holy is his name
brother to kid he has been
forever kid's unquestioning pal.


Unfortunately Rishi started getting health issues. He got some kind of allergy and almost lost all his fur. My folks even tried alternative therapies with him like Homeopathy but he steadily lost weight. I remember saying, “Noisy licking keeps kid awake.” 

Fortunately, a new vet was identified who changed his kibble and meds. My Saroja Paati (grandma) was also visiting and she changed his diet to include lots of boiled vegetables, dhal, and curd rice. Prior to that Rishi had been primarily on wet and dry processed dog food. Rishi prospered so much that the vet asked if it was the same dog during the next visit. Rishi with his glorious fur and sparkle was back. 
Rishi in Raincoat

Alas, old age catches on.
Perpetual allergies, Ear infections.
Vision gone, Hard of hearing.
Body slows down.

Rishi’s earlier illness meant that he’d also developed lifelong allergies. He had to be gluten free, milk free and on special Kangaroo meat kibble and hypoallergenic dog treats for the rest of his life. He was at the vet a lot for some allergy related issue or ear infection and constantly on meds. As he aged, parts of his golden mane started turning grey, (yes, even dogs get grey hair). 

In the last few years, Rishi also started slowing down. He slept most of the day. His sight started deteriorating till he became almost completely blind. Apparantely Shih-Tzu's are genetically prone to eye issues. He was on eyedrops all the time so his eyes would not dry out. He knew his way around our old house so it was not that obvious. 

His sight issues became very noticeable when we moved to a new house. Poor Rishi would bump into things and not know how to navigate the steps in the backyard of our new place. His poor vision meant he would not see my sudden impulsive body moves. He no longer constantly followed me around and our interaction dwindled even more. 

Two years ago, he developed a tumor and had a toe surgically removed. He stopped barking when the front doorbell rang; perhaps he became hard of hearing. But till the last day, he would come running for food - especially if he could smell banana in the air. 

Rishi’s condition really went south last weekend. He could not even hold his neck straight. He had to be hand fed as he could not eat his hard kibble. Good thing was that he still ate his favorite banana the morning before he died.  By Sunday night he was in bad shape. My folks did their best to shield me from what was happening but I did hear two sharp cries of pain and his loud raspy breathing on Sunday night. He stopped breathing just before midnight. We took him to the vet to be cremated and will get his ashes in two weeks. 


I’m not quite sure of how I feel now. I think I’m still trying to process. I know I am sad; after all, Rishi had been a huge part of my life for 15 years. There are more emotions swimming around inside but no words for them just yet. I am gonna miss Rishi’s cute shenanigans, his unconditional love and his presence around the house. 

Rishi was a spiritual dog for he loved prayer and vibuthi. 
Go now and rest at God’s feet, Rishi Srinivasan, as your journey comes to an end.




Rishi's Ashes were immersed at East Beach under the Golden Gate Bridge

Suite Seats for the Ball Game

SF Giants vs Oakland A's at AT&T Park last Thursday. Giants won 11-2. 
What an amazing suite level seats to see the game. The view from up there is amazing.
Thank you David and his parents Linda and Gary for inviting us. 
I totally loved the experience.

Only Light

My Raghavan Thatha (Grandpa) was in  ICU in Jan 2015 (and passed away on Jun 10, 2015)
A Poem for my Thatha and Paati (Grandma)