Showing posts with label Exploitation. Show all posts
Showing posts with label Exploitation. Show all posts

The False Moral Authority of Titles

The False Moral Authority of Titles

In today's world, holding an advanced degree or prestigious title leads those individuals to think that they are entitled to the role of moral and legal gatekeeper. Such a perspective is not only outdated but dangerously arrogant

(This echoes the colonial mindset where the "educated colonizers" claimed ipso facto moral and legal authority over those they deemed "uneducated primitives"). 

One quick path to fame and relevance today is the spread of negative news, fueled by algorithms that amplify these messages. As as  Sri Sri Ravi Shankar noted, humans already have a tendency to doubt the positive but not the negative. For instance, when someone says "I love you," it's often met with skepticism ("Really?"), while "I hate you" is silently accepted. 

Negative news triggers larger outward reactions, whereas positive news generates internal feel-good responses that don't spread as widely. As a result, negative spins and conspiracy theories have become a quick road to staying relevant and  profits in the form of online followers, book deals, speaking engagements.... which in turn helps justify the perception of them as an "expert" and the "moral authority."

This phenomenon has many parallels in the field of autism. Select groups have positioned themselves as the sole experts of autism, their way the only way, and the lone voice of morality. They effectively shut down alternative lines of research in autism or approaches by being the loudest or most powerful voice. This is accompanied by vicious attacks, harassment, and doxxing of those they consider "others." This helps maintain their positions of power, fame and profit - (Perhaps they also get a rush out of this bullying). 

The irony is that existing evidence-based practices are often weaponized or misrepresented to justify their stance. Just because something isn't fully explainable or understood yet doesn't mean it should be dismissed as pseudoscience. Rather, it represents science-in-progress. Complex phenomena like autism often defy simple cause-and-effect explanations, waiting for the right methods, technologies, or even an evolution in our scientific thinking to fit neatly into an explainable model.

A 'certification degree' or Ph.D. does not make one all-knowing about a highly heterogeneous condition like autism. We are all still trying to figure autism out. If we had all the explanations and solutions, the quality of life for all autistic individuals would be infinitely better. It’s crucial to remember that science is a process, not a destination. It thrives on curiosity, openness, and the willingness to challenge existing paradigms. True progress in understanding autism, and indeed any complex phenomenon, requires humility, collaboration, and an openness to diverse perspectives.

Let's resist the allure of false authority and the spread of negativity. Instead, let's foster a culture of inquiry and respect, where every voice is heard, and every avenue of research is explored. Only then can we hope to make meaningful progress in understanding and improving the lives of those within the autism community and beyond.


Autism Space seen as profit making space by Private Equity

 Autism Space seen as profit making space by Private Equity

This is a continuing and troubling trend in autism. 

'...private equity investments per year tripled or quadrupled from 2018 to 2021 compared to 2015.

 ...expected investment to continue at breakneck speed

“...They needed to start showing profits and revenue that match their valuation. … So at some point, [investors] need to start seeing a return on their investment,”

 ...autism therapy space could be at the point of the investment life cycle where investors are pressuring operators to shift from scale to efficiency and profitability.

...opening clinics that reach targeted patients while being “financially healthy,” Marsh said. 

https://bhbusiness.com/2022/07/22/why-the-massive-investment-in-autism-companies-created-a-ticking-timebomb/

Power dynamics of ABA

https://autisticselfadvocatesagainstaba.wordpress.com/2020/04/13/problematic-and-traumatic-why-nobody-needs-aba/?fbclid=IwAR3aeHROwIEr2uaRmsw7i1oBuOy90Cln8cMgi_nJ4bZGT87VckcUhTUoOqA

Some points that resonated in this article. 

The problem with reinforcements. 

  • "tablet time” is used as reinforcement. This is a problem because many autistics rely on their tablets for communication. Many autistics are non-speaking, and to take away their means of communication is one reason increasingly aggressive or “challenging” behaviors persist — they are not being heard or understood and the only way left to communicate their discomfort, pain, or any other needs has been taken away."
The loss of childhood.
  • "A child is typically expected to participate in 25-40 hours of ABA therapy each week; that is 5-8 hours a day of repetitive, uncomfortable, or potentially painful demands and broken down tasks, of few or no breaks, of being presumed incompetent, and of not having adequate accommodations.
  • A full-time job is expected of kids under the age of 4, and there is no strong evidence to suggest that it is effective or beneficial. Children should be allowed to have a childhood, and that is not possible when they must sit through 25-40 hours of therapy each week. This level of intervention leaves little time for rest, play, and learning outside of therapy, which can wreak havoc on a child’s mental health."
Lack of training and quality control. 
  • "Many ABA practitioners are Registered Behavior Technicians (RBT)s, which any 18-year old with a high school diploma could be by taking a 40-hour training and passing an exam."
Long term trauma and PTSD
  • "A survey of 460 autistic adults and caregivers of autistic children evidenced that 46% of those who participated in ABA therapy met the diagnostic criteria for PTSD, and 47% of those meeting this diagnostic threshold experienced severe symptoms (Kupferstein, 2018)."
Yet, still touted as the gold-standard EBT
  • "Yet ABA is still widespread throughout the United States and it is recommended under the premise of being an effective evidence-based practice. However, there is weak evidence that ABA is an effective behavioral treatment. Rated on the GRADE system the quality of evidence is low to very low (Reichow, Hume, Barton, & Boyd, 2018). In fact, “of the 58 studies done on Lovaas’ ABA therapy, only one was found to meet the U.S. Department of Education’s standards for scientific evidence."
Related Posts

Autism Space seen as profit making space by Private Equity

This is a continuing and troubling trend in autism. 


'...private equity investments per year tripled or quadrupled from 2018 to 2021 compared to 2015.

 ...expected investment to continue at breakneck speed

“...They needed to start showing profits and revenue that match their valuation. … So at some point, [investors] need to start seeing a return on their investment,”

 ...autism therapy space could be at the point of the investment life cycle where investors are pressuring operators to shift from scale to efficiency and profitability.

...opening clinics that reach targeted patients while being “financially healthy,” Marsh said. 

https://bhbusiness.com/2022/07/22/why-the-massive-investment-in-autism-companies-created-a-ticking-timebomb/


The Ugly face of Ugly Laws

The Ugly Laws, also known as the unsightly beggar ordinances, were a series of laws that were enforced in the United States and other countries in the late 19th and early 20th centuries.

These laws criminalized people with disabilities, deformities, or any physical characteristic that was deemed "unsightly" or "disgusting" in public spaces.

The origins of the Ugly Laws can be traced back to the mid-19th century when cities began to grow rapidly, and industrialization led to an increase in poverty and homelessness. In response to these societal changes, city officials sought to regulate public spaces, including streets and sidewalks, and restrict the presence of certain groups of people, including disabled folks.

The first Ugly Law was enacted in San Francisco in 1867, and similar laws were subsequently passed in other cities, including Chicago, New York, and Denver.  

The punishment under the Ugly Laws varied depending on the specific city or state in which the law was enforced. However, common forms of punishment included fines, imprisonment, or forced institutionalization in a hospital or asylum.

So the disabled could be arrested simply for appearing in public spaces, including streets, sidewalks, and public buildings. In some cases, police officers or other authorities would use their own discretion in determining who should be arrested or fined, based on their personal biases or prejudices.The Ugly Laws were often enforced without regard for the civil rights or dignity of the disabled, and many people who were arrested or institutionalized under these laws experienced great hardship and abuse.

The Ugly Laws were justified under the guise of public health and safety, with proponents claiming that people with disabilities were a threat to public health and morality. However, the laws were also a means of social control and discrimination against the disabled, who were seen as undesirable and unworthy of inclusion in public life.

The Ugly Laws persisted until the mid-20th century, when disability rights activists began to challenge these discriminatory practices. Disability rights groups, including the League of the Physically Handicapped and the National Association of the Deaf, organized protests and legal challenges to the Ugly Laws, arguing that they violated the civil rights of the disabled.

The Ugly Laws were repealed at different times in different states and cities, and it's unclear which state was the last to repeal them. However, it's known that the Ugly Laws were still in effect in some cities as late as the 1970s.

For example, in Chicago, the Ugly Laws were repealed in 1974 after years of activism by disability rights advocates, including a high-profile protest in which activists chained themselves to buses to draw attention to the issue. In Omaha, Nebraska, the Ugly Law was repealed in 1974, after a lawsuit was filed on behalf of a man with cerebral palsy who was arrested for appearing in public.

In many cases, the repeal of the Ugly Laws was not the result of a single event or action but rather a gradual shift in attitudes towards the disabled and a growing recognition of their civil rights. Today, while the Ugly Laws are no longer enforced, people with disabilities continue to face discrimination and barriers to full participation in society. Disability rights advocates work to challenge ableism and promote greater inclusion and accessibility for all.

(Written Oct '21)
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Plain Language Version

The Ugly Laws: A Shameful Part of History

The Ugly Laws, also known as the "unsightly beggar ordinances," were laws in the United States and other countries during the late 1800s and early 1900s. These laws made it illegal for people with disabilities or any physical differences to be seen in public during the daytime.

Why They Were Made

In the mid-1800s, cities grew quickly, and there was more poverty and homelessness because of industrialization. City officials wanted to clean up the streets and decided to keep people with disabilities out of public spaces.

Where They Were Enforced

  • First Law: The first Ugly Law was passed in San Francisco in 1867.
  • Other Cities: Similar laws were made in places like Chicago, New York, and Denver.

What the Laws Did

These laws allowed the police to arrest, fine, or send to institutions people who were considered "unsightly" just for being in public places like streets and buildings. The decisions were often based on the personal biases of the officers.

Justifications and Reality

The Ugly Laws were said to be for public health and safety, but they were really about controlling and discriminating against people with disabilities. These laws treated disabled people as if they were a threat or unwanted in society.

End of the Ugly Laws

  • Disability Rights Movement: In the mid-1900s, disability rights activists started fighting against these unfair laws.
  • Protests and Legal Actions: Groups like the League of the Physically Handicapped and the National Association of the Deaf protested and challenged the laws in court.
  • Repeal: The laws were repealed at different times in different places, but some were still in effect until the 1970s.

Examples of Repeal

  • Chicago: Repealed in 1974 after protests, including activists chaining themselves to buses.
  • Omaha, Nebraska: Repealed in 1974 after a lawsuit for a man with cerebral palsy who was arrested for being in public.

Ongoing Issues

Even though the Ugly Laws are no longer in place, people with disabilities still face discrimination today. Disability rights advocates continue to work for greater inclusion and accessibility for all.


References

Baynton, D. C. (2001). Disability and the justification of inequality in American history. In P. K. Longmore & L. Umansky (Eds.), The New Disability History: American Perspectives (pp. 33-57). New York: NYU Press.

Kudlick, C. (2003). Reflections on freaks. In M. Corker & T. Shakespeare (Eds.), Disability/Postmodernity: Embodying Disability Theory (pp. 33-47). London: Continuum.

McRuer, R. (2006). Crip theory: Cultural signs of queerness and disability. New York: NYU Press.

Norton, R. (2016). Ugly laws: Disability in public. New York: NYU Press.

"The 'Ugly Laws': When Being Disabled Was A Crime" (NPR, 2014): https://www.npr.org/2014/12/18/371437472/the-ugly-laws-when-being-disabled-was-a-crime

"Chicago's Ugly Laws Repealed: A Look Back" (Chicago Tribune, 2014): https://www.chicagotribune.com/news/ct-ugly-laws-chicago-history-flashback-20141020-story.html

"The Law That Made It Legal to Ban People With Disabilities From Restaurants" (Smithsonian Magazine, 2017): https://www.smithsonianmag.com/history/law-made-it-legal-ban-people-with-disabilities-restaurants-180962121/


Money, careers and fame

Autism is a proven profit-making industry. Everything in autism space costs money; not just average money but real $$$$$$. It's profit with almost no accountability. If an autistic does not progress, it because they were not going to show progress anyway, you are too old, it's too late, so don't deserve solutions for your challenges or opportunities for your strengths. 

Autism is also a career-making industry, with books published, speeches of fancy words at conferences. We are surrounded by money-making "autism-expert-celebrities" though no one still has a clue. 

The Ugly History of Disability Eugenics in the US

The eugenics movement emerged in the late 19th century in both the United States and Europe, and aimed to improve the genetic quality of the human population by promoting selective breeding and limiting the reproduction of those deemed "unfit" or "undesirable." The eugenics movement was strongly influenced by social Darwinism, a belief that human society should be structured based on principles of natural selection and survival of the fittest.

The first state to pass eugenic sterilization laws in the United States was Indiana in 1907, and by 1931, over 30 states had passed similar laws. These laws authorized the forced sterilization of individuals deemed "unfit" to reproduce, including people with disabilities, mental illness, and other conditions considered hereditary.

The procedures involved in eugenic sterilization varied, but commonly included surgical sterilization of women (tubal ligation) and men (vasectomy), as well as the use of X-rays or radiation to sterilize women. These procedures were often performed without the informed consent of the individual, and many people with disabilities were sterilized against their will.

In addition to sterilization, the eugenics movement also promoted the institutionalization and segregation of the disabled and other "undesirable" groups, as well as the promotion of restrictive immigration policies to limit the number of people considered "unfit" entering the country.

The eugenics movement in the United States began to decline in popularity after World War II, due in part to the association of eugenics of the Holocaust. In the 1960s and 1970s, disability advocacy groups began to challenge eugenic practices and call for greater rights and inclusions.

Forced sterilization of people with disabilities continued in some states in the United States until as recently as the 1980s, and many people with disabilities still live with the long-term effects of eugenic policies, including forced institutionalization and exclusion from mainstream society. Today, the legacy of eugenics continues to shape the way that people with disabilities are perceived and treated in society.

Also see posts on [Feeble-Minded] [Imbecile]