Research Methodologies

Read at https://time.com/6299599/autism-research-limited-essay/

"In order to increase representation of a wider profile of autistics in research, it is crucial to reconsider research methodologies and the tasks involved.

...we should leverage advancements in Artificial Intelligence and Machine Learning to develop new technologies or repurpose existing ones used in other fields.

...we should explore innovative approaches like mobile labs which increase geographic reach, diversity and accessibility."

-Hari Srinivasan, Time
 

Autism and Grief

 https://www.psychologytoday.com/us/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens

How Reasonable are Reasonable Accommodations at Work

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https://www.psychologytoday.com/us/blog/giving-voice/202410/how-reasonable-are-reasonable-accommodations-at-work

Without a clear definition of what is “reasonable,” employers may opt only for “neurodiversity-lite” employees, those they perceive as requiring minimal accommodations and whose neurodivergent traits, such as creativity and problem-solving, are seen as direct assets to the company.

 

Neurotypical standards of Happiness

 "Danger of misunderstanding and misrepresenting the autistic community, with interventions possibly imposing neurotypical standards of happiness that feel inauthentic or unrelatable." - Hari Srinivasan 

https://www.liebertpub.com/doi/10.1089/aut.2024.38246.pw

A Disheartening Lack of Progress in Practical Solutions

  Read at https://www.newsweek.com/dual-approach-autism-opinion-1818062

"My own experience reveals a disheartening lack of progress in practical solutions for autistics like me in the past 2.5 decades, since my diagnosis as a toddler. Autism, now recognized as the fastest growing neurodevelopmental disability, stands at 1 in 36 children according to the CDC" 

- Hari Srinivasan, Newsweek

Paid support staff go home to their own family at the end of the day.

 https://time.com/6551520/loneliness-autism-essay/ 

Transition is a fundamental challenge

 

https://www.dailycal.org/2018/03/15/first-transitions

https://www.dailycal.org/2018/04/12/compulsion-complexity

 

 

You can listen to and read the the full article on Autism Transitions at 

• https://www.dailycal.org/2018/03/15/first-transitions
• or https://uniquelyhari.blogspot.com/2020/03/first-transitions.html 

https://www.dailycal.org/2018/04/12/compulsion-complexity

 

All humans live in a cycle of dependency

This incredible TIME piece by Hari Srinivasan beautifully articulates so many of the complicated feelings I have about my son’s journey to independence.

“Addressing the loneliness epidemic in the disabled community necessitates a nuanced understanding of independence because in actuality, all humans live in a cycle of dependency. The perceived division between independence and dependence is a flawed notion. Embracing this truth could pave the way for a more inclusive society that transcends the limitations of societal norms and helps us build better support systems that result in enduring human social connections for people with autism.”

How Reasonable are Reasonable Accommodations at Work

 

https://www.psychologytoday.com/us/blog/giving-voice/202410/how-reasonable-are-reasonable-accommodations-at-work

Comprehensive data collection on accommodation implementation and retention rates would ensure accountability and help identify areas for improvement.

Autism and Grief

 https://www.psychologytoday.com/us/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens

Accounting for Sensory Sensitivities and Communication Methods

"There may be apprehensions about whether positive psychology interventions can be effectively tailored to meet the unique and varied needs of all autistic individuals, considering our diverse sensory sensitivities, communication methods, and personal preferences." - Hari Srinivasan 

https://www.liebertpub.com/doi/10.1089/aut.2024.38246.pw

Little research to help autistics like me

Read at https://time.com/6299599/autism-research-limited-essay/

If I have not fully understood my own disability, it is, in part, because there has been little research to help autistics like me understand the full scope of it, as well as targeted education, medical, or therapeutic interventions that can help us navigate it.

-Hari Srinivasan, Time

 

 

https://www.dailycal.org/2018/03/15/first-transitions

High Turnover in lower paid and high-stress disability support profession

 https://time.com/6551520/loneliness-autism-essay/ 

In-person employment in autism

https://fortune.com/2023/07/27/flexible-work-critics-using-same-arguments-were-used-oppose-disabled-ramps-closed-captioning-equity-access-never-optional-remote-work-careers-hari-srinivasan/

 

Exclusion of those with more complex needs

 "Key concerns.... oversimplification of needs and the potential exclusion of those with more complex challenges when focusing solely on strengths and well-being. This approach risks neglecting the intricate support required by many on the spectrum. " - Hari Srinivasan 

https://www.liebertpub.com/doi/10.1089/aut.2024.38246.pw

 

https://www.dailycal.org/2018/03/15/first-transitions