Showing posts with label Therapy/Interventions. Show all posts
Showing posts with label Therapy/Interventions. Show all posts

Who has the dx, and who is the professional

This week I heard of an instance where an ABA therapist got offended at a something his autistic client did and quit over the autistic teen not following directions. 

The autistic teen had been asked to wait at a library, looks like that teen hung around for a while, and then decided to just walk back to his home alone after a while. 

I want to ask, who has the diagnosis here, who is the professional "behavior-therapist" here who is supposed to help shape behaviors instead of walking off in a huff. 

Why have the word "behavior" in applied-behavior-therapy if you don't want to even help with or deal with behavior in the first place. 

Private equity and ABA

Another example of private equity (valuation) driving ABA therapy. This does not bode well for the marginalized groups within autism and furthers the exploitative and profit hungry nature of autism therapy. 

When the focus is on $$$$, companies will turn away the "non-easy" cases (aka, autistic kids with behaviors) and take up cases they perceive are easy, so that they can show quick results to the investors. Given the heterogeneity of autism with the dx ratio now at 1:36, there are enough non-behavior kids to fill any amount of supply.   There is irony in behavior agencies turning away kids with behaviors who need help.

There is focus on valuation but not on quality control in ABA, because in autism if a kid does not improve, the fault is all on the kid, never the therapy. The one industry where there can be profits with no accountability. 


https://bhbusiness.com/2023/05/12/autism-therapy-providers-tie-upskilling-to-beating-turnover-serving-more-families/


McGlade et al 2023: Effectiveness of Early Intervention Therapies

My take: If early childhood therapy was so "effective", then the thousands of kids who have had massive amounts of therapy all through childhood (starting with early intervention) would have "RECOVERED" may times over. Why are my challenges still significant - ie: all that therapy did not make a dent. Currently there is no such thing as gold-standard childhood therapy. Most autism therapy is hit-or-miss, at any age. Its just $$$$ spent on trial and error. Lots of careers and promotions. 

Recently there was a twitter post pointing out that since were were no readily available "statistics" (referring to it as a "cool autism fact")  showing numbers of the more significantly impacted adult autistics meant that numbers of this group must be overstated. Others in the thread  questioned if adult autistics who did not not speak, even existed, since that autistic posting had learned to speak at age 3. This an irresponsible statement and an erasure of the huge number of non-speaking or minimal verbal adults who need to be part of the autism solutions. 

Onto the paper. 

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Key Takeaways from paper. 
  • Limited evidence  to recommend very early interventions for infants and toddlers with autism.
    • Limited impact of early intervention for at-risk infants/toddlers (by age 3. 
    • No significant treatment effects for autism symptoms, cognitive outcomes, receptive/expressive language. Even neurocognitive outcomes (EEG and eye tracking) were inconsistent. 
  • Gold-standard early intervention is yet to be developed.  Future treatment will need to include novel and individualized intervention targets alongside the targeting of parental responsiveness.

Questions that arise. 
  • What are the implications of these findings for clinical practice and policy related to early intervention for autism?
  • What are the long-term outcomes of very early interventions for infants and toddlers with autism beyond age 3 years?
  • What are the ethical considerations related to intervening in infants and toddlers at increased likelihood of autism dx, and how can these be addressed in future research and practice?

McGlade, A., Whittingham, K., Barfoot, J., Taylor, L., & Boyd, R. N. (2023). Efficacy of very early interventions on neurodevelopmental outcomes for infants and toddlers at increased likelihood of or diagnosed with autism: A systematic review and meta-analysis. Autism Research, 16(4), 698-710. https://doi.org/10.1002/aur.2924

This is 2023. Why are shocks still part of Autistic Behavior Therapy?


This is 2023: Shocks are being used on autistics as part of ABA Therapy. The UN calls it "torture". Read this article by Eric Garcia in the Boston Globe. 


1965: The images show a Photo Essay that appeared in the 1965 issue of Life Magazine about ABA therapy being done on Autistic Kids with Dr Loovas. Shocks were used as aversives -  the floor is laced with metal strips and the autistic girl in the picture is barefooted.  



Moser, D., & Grant, A. (1965). Screams, slaps & love: A surprising, shocking treatment helps far-gone mental cripples. Life Magazine, 90-102

Vestibular, Proprioception in Autism

Lay summary:  Go to any Occupational Therapist and you are bound to hear the words vestibular and proprioception, sensory diet at least a few times.  

Why is this important: Understanding the role of sensory processing difficulties and the sensory systems involved (such as vestibular, proprioception, and somatosensory body mapping) can be helpful in developing effective interventions and support strategies for autistics.

Multilingual and Autism

Multilingual and Autism

Therapists often tell families to only speak English so as to not confuse the autistic child. I think that's not a good idea as it results in a loss of cultural identity. During my elementary years there was so much time spent on teaching me St Patrick's day (what relevance do green men and rainbows have for me) instead of say Diwali (more relevant to me). Many of us have extended family who only speak their native tongue. Life exists outside of the special education classroom and therapy. 

Autism loves to get stuck on sameness, so you may be inadvertently encouraging that very thing. For instance, in my early years - I used to watch Thomas the Tank engine pretty obsessively. I would avoid the Ringo Starr narrated version but loved the George Carlin version - the Brit accent felt like an alien foreign language. 

It's good to also be exposed to different accents associated with the different languages for another important reason. We will be be surrounded by caregivers/educators with diff accents. No one thinks about this aspect. 

I had a class aide in elementary who's accent I never understood. It was not due to cognition on my part, how could I respond if I have not understood the question/instruction which as far as I was concerned was in an alien language.  Sometimes I would try to watch her lips, trying to synchronize the visual of her lip movements with the audio I was hearing - it was a lot to process and it was often easiest to give up and engage in stimming behaviors (comforting) instead. Rather ironical as she was supposed to be teaching me. No one thinks about this aspect. 

Anyway, I did get over the Ringo Starr thing eventually. Interestingly, the accent thing is not so striking in singing. I love Beatles music (simple lyrics that you can actually get your mouth around) and i did not realize Adele was Brit till i saw her talk at an awards ceremony.

Money, careers and fame

Autism is a proven profit-making industry. Everything in autism space costs money; not just average money but real $$$$$$. It's profit with almost no accountability. If an autistic does not progress, it because they were not going to show progress anyway, you are too old, it's too late, so don't deserve solutions for your challenges or opportunities for your strengths. 

Autism is also a career-making industry, with books published, speeches of fancy words at conferences. We are surrounded by money-making "autism-expert-celebrities" though no one still has a clue. 

Two birds in Frost

From my breakfast window: 

Frost on the green winter grass
Glistening in the rays of the emerging sun
Tiny birds bask on the mighty tree stump
My small moment of awe today. 
What joy!!

-Hari Srinivasan
 
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We pay so much money for all the therapy in the autism space. Here is something that is completely and absolutely FREE. The best part is, no one can gatekeep and deny its access for you or decide you are "not a good-fit."


It's AWE Awe is beneficial to the mind and the body. And you don't have to travel far on an expensive vacation to experience awe. It's all around you - that blade of grass, that tall building you walk beneath, images from the James Webb telescope, our BFF God (forever, gonna outlast us all), or even that tiny ant on the ground.


Let's make use of and benefit from this 

FREE, ACCESSIBLE & BENEFICIAL RESOURCE of AWE 

by engaging in small moments of AWE everyday. 




Here's another post on A Moment of Awe - Birth of a Star



Insights from CBT

This is not my fault

I didn't do this on purpose.

It's not fair to judge myself, because its not accurate to judge yourself. 

Remind myself, Don't judge myself for judging myself. 

CBT for adolescence

Hari Srinivasan
Psych 135 Treatment of Mental Illness
Prof Alison Harvey


CBT vs CBT+ABFT for Adolescents with Anxiety

The intervention chosen for this paper was Cognitive Behavior Therapy (CBT) for generalized anxiety disorder (GAD). I am no stranger to CBT having gone to bi-monthly sessions to deal with my anxiety and mood disorder for most of my teen years while living in South Bay. Anxiety and depression come with the territory of the frustrations of living a life with a disability, autism in my case. 

What was interesting about this study by Siqueland, Rynn and Diamond is not only in its use in the adolescent population but also in trying to see if the combination of CBT and ABFT (Attachment Based Family Therapy) would have better efficacy than just CBT alone. ABFT attempts to also address the interpersonal relationship component that teens have with their parents. 

The efficacy of CBT is well supported by independent and well designed studies. The basic presumption of CBT is that thoughts and feelings influence our behaviors and vice versa. Ergo, changing our negative thinking will result in lesser anxiety.

The fundamental underlying symptom that characterizes GAD is excessive and uncontrollable worrying.  This worry is perpetuated by a cycle of “maladaptive thinking” about the idea of worrying itself. This catastrophic spiral of negative automatic thoughts means, an inability to relax and further maladaptive behaviors that include avoiding any situations, images or thoughts that may provoke worry. 

The need of the hour is cognitive restructuring which aims to modify the cataclysmic thought patterns and belief systems and the change the mistaken impression that worrying serves an useful function. Essentially, cognitive therapy techniques according to the study focuses specifically on negative predictions about the future, and unhelpful attitudes about one’s ability to cope with difficult situations.”

For instance, one of my CBT exercises for several months was to  keep a journal of my thoughts every 20 minutes for 2 hours every day 3x a week. An example follows:
Thought: “Orientation schedule is making me dizzy. I’m gonna fall apart there.”
Feeling association with thought: anxious, scared
Cognitive Distortion: All or nothing - thinking in absolutes
Reframe: Go with do what you can then come right back home. 

Therapy techniques incorporate a scheduled “worry time” in order to control and limit exposure to the activities and situations that bring about worry. Pleasurable activities are also incorporated into the day’s schedule as well and the person is taught relaxation techniques. 

CBT techniques offer a controlled systematic exposure so that the person learns that their fears of negative outcomes do not necessarily come true. This means that over time, they experience a reduction in their anxiety. 

The study being discussed by Siqueland, Rynn and Diamond was done over two phases. The goal of Phase 1 was therapist training and checking the feasibility and acceptability of the combined condition (CBT-FAM). Phase 2 focused on implementing both the individual CBT and CBT-FAM.

Participants enrolled in the study were between the ages of 12-18 and had to meet the DSM-IV criteria for either GAD, Separation Anxiety Disorder or Social Phobia. A parent or caregiver also had to participate in the family treatment component. Participants were recruited through CARes (Child and Adolescent Research Service) at the University of Pennsylvania. Measurements were taken post-treatment and at the 6 and 9 month follow ups. 

The 16 session CBT for adolescents was modified from a standard manual designed for children (ages 8-13). There were 2 parent sessions as well. 

Skill building in the sessions focused on four areas ‘“(a) recognizing anxious feelings and somatic reactions to anxiety,  (b) clarifying cognition in anxiety provoking situations (unrealistic or negative attributions), (c) developing a plan to cope with the situation (modifying anxious self-talk into coping self talk as well as determining what coping actions might be effective), and (d) evaluating performance and administering self-reinforcement as appropriate.’’ Other behavioral techniques included contingent reinforcement and  relaxation techniques. A “FEAR” acronym was used - “F: feeling frightened/anxious, E: expecting bad things to happen, A: actions and attitudes that help, and R: results and rewards.”

The results of Phase 1 were not definitive but encouraging enough to proceed to phase 2.  The post treatment outcome for phase 2 showed that for CBT alone, 67% (4 out of 6) of the adolescents no longer met their primary anxiety diagnosis, while it was 40% (2 of of 5) for the CBT-FAM. When parenting variables are taken into account, the CBT group reported an increase in psychological control while the combined group reported the opposite. Follow up measures also favored CBT where 100% no longer met the diagnostic criteria compared to 80% in the combined group. Essentially the results for adolescents lined up with those for children in other studies, that is, two thirds no longer met their initial diagnosis

The study admits they were “not sufficiently powered to detect treatment differences.” The sample size was small and there was no control group. The study also failed include comorbidity such as suicide risk, OCD, Bipolar Disorder etc. However it did allow for the medication as long as it had been started 8 weeks before and would not be changed during the study.

It appears from the results of the study that CBT wins hands down as the treatment for anxiety disorders. However this has to tempered with the disappointment of the exclusion of comorbidity which is often the norm and not the exception in the real world when it comes to mental health. From personal experience I also have to wonder if 16 weeks is really enough.  Mental health is not like a infection that can quickly be killed by a course of antibiotics.The circumstances and challenges in one’s life keep changing over the decades and there may be some maintenance CBT required, in only to keep the person from slipping back. 

Citation: 

Siqueland, L., Rynn, M., & Diamond, G. S. (2005). Cognitive behavioral and attachment based family therapy for anxious adolescents: Phase I and II studies. Journal of Anxiety Disorders, 19(4), 361-381. Doi: http://dx.doi.org.libproxy.berkeley.edu/10.1016/j.janxdis.2004.04.006