Showing posts with label Publication. Show all posts
Showing posts with label Publication. Show all posts

Coping with the reality

Can relate to every bit of this as I have seen a grandparent lose his life to cancer - a painful end followed by a phase of intense struggle to cope with the reality of what I had experienced, an experience that took nearly three years and CBT sessions for me to find closure..




For those on the spectrum the range of mourning is even wider and complex

 https://www.psychologytoday.com/us/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens

Hari, This is a VERY important piece. When our Dad died in 2017 (he was an amazing autism advocate), both my brothers on the spectrum dealt with his death very differently, and yes of course, they are very different from each other. Brother 1, who has profound IDD, had a very delayed mourning. He may have thought his father was going to come back. Finally a year+ after Dad's death, we had an additional memorial. This one reality hit him. He stopped eating, drinking, tons of crying ... it took around 6 weeks for the extreme mourning issues for him to subside. Brother 2 never once wanted to be seen shedding a tear. That had and has been very tough for all of the remaining siblings (there are six of us) and my mother to watch. So yeah, everyone of us handles grief differently. For those on the spectrum the range of mourning is even wider and complex. Thank you for sharing your wise insight and I am so sorry for your loss of both of your grandparents.


Psychology Today: "Autistics often process emotions and sensory inputs differently, and intense emotions like grief can be particularly overwhelming." Here's what everyone needs to know.

https://www.psychologytoday.com/us/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens



 

Memories

This memory popped up in my feed today. 

This was my first semester at The Daily Californian, when I wrote a weekly column with editors Chantelle and Dohee. 




Understudied experiences of autistics

Hari, You’re doing a truly spectacular job thoughtfully articulating so many understudied experiences that leaves expert and novice reader alike more informed, more grounded, and moved.

Spectrum of Loss

https://www.psychologytoday.com/us/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens



 

A need for affirming caregiver trainings for autistics

The Pervasive Loneliness of Autism: https://time.com/6551520/loneliness-autism-essay/

Do you feel lonely even though you have people around you designated to help with day to day living? There is such a need for affirming caregiver trainings for #autistic people. Read this article written by @HariSri108



Rethinking Autonomy and Connection in Autism

Rethinking Autonomy and Connection in Autism

Today I read a compelling Time Magazine article by Hari Srinivasan that challenges our perceptions of independence and social connection in the context of autism. Two points particularly stood out for me:

Cultural Views on Independence: Srinivasan discusses the societal disapproval in the U.S. of adults living with their biological families. This contrasts with practices in other cultures and raises questions about the ideal of "independent living," which often leads to autistic individuals living away from their families, supported instead by paid staff.

Desire for Connection: Srinivasan also addresses a common misconception about autistic individuals: the need for breaks from overwhelming sensory inputs is often mistaken for a disinterest in social connections. This point emphasizes how important it is to recognize autistic individuals desire enduring human relationships.

These insights are crucial for fostering a more inclusive and understanding society. It's time to redefine our views on independence and social connections, especially in the context of autism.

 

A new angle

It was a thought provoking read about an angle that I hadn’t thought of. It is also beautifully written. 

https://time.com/6551520/loneliness-autism-essay/




A Dual Approach to Autism

 


I signed up today for a Twitter (X?) account for the first time because I read the Newsweek article "A Dual Approach for Autism." I'm married to an autistic man and my grandson is also autistic, and my hopes and wants for/from them are vastly different. I loved your perspective.


And here is the article https://www.newsweek.com/dual-approach-autism-opinion-1818062