Showing posts with label Time. Show all posts
Showing posts with label Time. Show all posts

Research Methodologies



"In order to increase representation of a wider profile of autistics in research, it is crucial to reconsider research methodologies and the tasks involved.

...we should leverage advancements in Artificial Intelligence and Machine Learning to develop new technologies or repurpose existing ones used in other fields.

...we should explore innovative approaches like mobile labs which increase geographic reach, diversity and accessibility."

-Hari Srinivasan, Time
 

Dominant Discourses


Terrific piece, Hari!  I really appreciated reading it, and I hope there will be more conversations about dominant discourses about "independence" an entirely Western construction, which should be problematized at so many levels.


My other articles in Time: https://time.com/author/hari-srinivasan/

All humans live in a cycle of dependency

This incredible TIME piece by Hari Srinivasan beautifully articulates so many of the complicated feelings I have about my son’s journey to independence.

“Addressing the loneliness epidemic in the disabled community necessitates a nuanced understanding of independence because in actuality, all humans live in a cycle of dependency. The perceived division between independence and dependence is a flawed notion. Embracing this truth could pave the way for a more inclusive society that transcends the limitations of societal norms and helps us build better support systems that result in enduring human social connections for people with autism.”


Little research to help autistics like me

If I have not fully understood my own disability, it is, in part, because there has been little research to help autistics like me understand the full scope of it, as well as targeted education, medical, or therapeutic interventions that can help us navigate it.
-Hari Srinivasan, Time

 

Relationship as a building block

I've had the privilege of listening to Hari Srinivasan share his perspective on various topics over the years. His ability to share his personal narrative paired with the current science is an incredible gift. As Mr. Srinivasan shares, "All humans, disabled or not, yearn for human connections that enrich their lives beyond a mere fulfillment of basic needs." 

Indeed relationship is one of the building blocks of the PERMA+ theory of wellbeing (R=Relationships). Like Mr. Srinivasan, I too am looking to Vivek Murthy and his wisdom to help us all with his wise words, including, "While loneliness has the potential to kill, connection has even more potential to heal." Here's to 2024 being a year of connection. #wellbeingwins

Read at Time: The Pervasive Loneliness of Autism https://time.com/6551520/loneliness-autism-essay/

My other list of Publications: https://uniquelyhari.blogspot.com/p/published-work.html

"Many autistics like me [are...] excluded from autism research due to the complexity of our issues, or because of the research methods used."
-Hari Srinivasan, Time

 

Rethinking Autonomy and Connection in Autism

Rethinking Autonomy and Connection in Autism

Today I read a compelling Time Magazine article by Hari Srinivasan that challenges our perceptions of independence and social connection in the context of autism. Two points particularly stood out for me:

Cultural Views on Independence: Srinivasan discusses the societal disapproval in the U.S. of adults living with their biological families. This contrasts with practices in other cultures and raises questions about the ideal of "independent living," which often leads to autistic individuals living away from their families, supported instead by paid staff.

Desire for Connection: Srinivasan also addresses a common misconception about autistic individuals: the need for breaks from overwhelming sensory inputs is often mistaken for a disinterest in social connections. This point emphasizes how important it is to recognize autistic individuals desire enduring human relationships.

These insights are crucial for fostering a more inclusive and understanding society. It's time to redefine our views on independence and social connections, especially in the context of autism.

 

Why was I not benefiting from the vast amount of research that is being done in the name of understanding autism better? After all, autism has been an official diagnosis since 1980.
-Hari Srinivasan, Time

 

The false ideal of independence



Essential piece by@harisri108 about autism and loneliness. By making "independence" the platonic ideal for all people, it can wind up breeding the type of loneliness that can harm #ActuallyAutistic people. via
@time

https://time.com/author/hari-srinivasan/



 

 



"Willy-nilly... existing autism research findings, and the resultant therapies and educational strategies, have been applied across the board to all autistics.

Unfortunately, a lack of success in therapies not suited for you in the first place, leads to negative downstream impacts such as being placed in low expectations classrooms, the closure of opportunities, and less than positive lifetime outcomes."
-Hari Srinivasan, Time


Who Autism Research Leaves Out

I find that despite all the careers, promotions, and profits being made by thousands of autism-experts, the state of autism interventions right now is one hot mess. In reality, there still are no real “experts” in autism because there is no one-size fits all model.
-Hari Srinivasan, Time

 

Who Autism Research Leaves Out

"It’s time for researchers and technologists to rethink their methodologies and technologies, and explore other innovative approaches to give all members of the autistic community the care we need."
-Hari Srinivasan, Time