The Forgotton People on Planet X

A blog post written by me many years back in early teens....

Consider:- Once upon a time, we were all babies. Our life track was defined - preschool, elementary school, middle school, high school, college, job etc. ....Some of those babies however, ended up on a path that wandered off into disability.....  biologically, the bodies kept growing and voila, they became Teens with Disabilities!.... [Continue reading]


Winter Solstice



Dec 21 is Winter Solstice

The winter solstice is an astronomical event that occurs annually around December 21st or 22nd in the northern hemisphere and around June 20th or 21st in the southern hemisphere. It marks the shortest day and longest night of the year.

It occurs when the Earth's axial tilt is farthest away from the sun. In the northern hemisphere, the North Pole is tilted directly away from the sun, resulting in the lowest position of the sun in the sky and shorter daylight hours. Conversely, in the southern hemisphere, the South Pole is tilted directly towards the sun, leading to longer days and shorter nights.

During the winter solstice, the sun reaches its lowest point in the sky at noon, and the length of daylight is at its minimum. This phenomenon occurs because of the Earth's axial tilt, which causes variations in the amount of sunlight received by each hemisphere throughout the year.

The winter solstice tends to be more significant in non-equatorial regions because the changes in day length and sunlight are more noticeable. In these regions, the winter solstice marks the turning point of the seasons, with colder temperatures and shorter days leading up to it. Culturally, this transition has been associated with themes of rebirth, renewal, light, and the hope for the return of warmth and longer days.









Thank you Julia

Thank you for your kind words about me Julia. We are sorry to see you leave ASAN which has been a big part of your life for 12 years. 

 https://autisticadvocacy.org/2023/12/julia-bascoms-speech-for-asan-gala-2023/




INSAR ARC

Applications are now open for the next cohort for INSAR's ARC.  

The INSAR Autistic Researchers Committee (ARC) was launched in 2020 as a dedicated space within the society to serve the growing demographic of autistic autism researchers. This body, composed of autistic researchers across multiple career stages, serves to advance the interests of autistic researchers within INSAR and advocate for adequate inclusion of this group across all INSAR programs.

The aims of the Autistic Researchers Committee are as follows: 
  • To directly advocate for the integration and needs of autistic INSAR members (including students, trainees, early career researchers, senior researchers, and other member types) in INSAR programs.
  • To create opportunities for scientific career development for autistic autism researchers.
  • To ensure autistic scientists have adequate venues to offer their insights to the field across INSAR programs.
  • To encourage autistic and non-autistic researchers within INSAR to engage in more participatory research that incorporates stakeholder input.
  • To make INSAR conferences more accommodating and welcoming for autistic members and attendees.
  • To promote the inclusion of and consideration of issues important to autistic people in INSAR meetings and in autism research across the sciences, social sciences, humanities, education, and other disciplines.
  • To advise the INSAR Board on issues important to autistic people.
Being part of ARC is an excellent opportunity to connect with and work alongside fellow students, trainees, and leaders in the field of autism research from around the world.










Racial Bias in Autism

Correll et al. (2002), points to societal judgements made about the Black community; that they are somehow less deserving. Goff et al. (2014) highlights racial bias in that Black children are thought to be less innocent than their White counterparts. What this racial bias translates to is substantial delays in the diagnosis of ASD for Black children, after the parents initially expressed concerns about the child’s development, despite the parents having health insurance (Costantino et al., 2020)

Read on here.....[link]




 https://www.newsweek.com/dual-approach-autism-opinion-1818062

To drive true progress and improve the quality of life of all autistics we need BOTH Strengths_based_Opportunities AND Challenges_based_Solutions. 
It is not Either-Or.





#Autism #Research #Strengths_based_opportunities #Challenges_based_solutions.

A Complex Discord

A Complex Discord

Autism and ADHD, a complex discord.
In one mind-body how do both strike a chord?

Autism seeks a world slow, steady and same.
Routine's embrace, stability it claims.

ADHD bored by routine, seeks a rapid pace.
Mind, chasing change, an endless race.

Risk averse autism craves the comfort of the known.
Risk taker ADHD, seeker of the unexplored zone.

Autism insists on the same tasks - present, future, past. 
ADHD craves for 10 new things each moment, a whirlwind cast.

Autism attention zooms inward- seeking comfort within.
ADHD attention flits externally - from thing to thing to thing.

In one mind-body, a battlefield unseen.
Autism's order, ADHD's ever-changing scene.

How can these opposites coexist?
Prefrontal Cortex, all in a twist?

Constant tug of war in this mind-body.
An unanswered quandary, how do I find clarity?

Dopamine

 Brain Humor 

Check out more humor in this blog and on YouTube

Compassion


In search of Humanity. Contemplation, one line a day all week. 


In the search for Humanity (and our own mental health), let's take a pause for contemplation, one thought at a time. As we navigate the complexities of existence, let compassion be our guide, fostering empathy and connection. In the realm of self-discovery, let confidence be the cornerstone, a quiet strength that speaks volumes.  Amidst the chaos, find solace in the simplicity of now. Unleash the boundless potential within, for creativity knows no boundaries.  Cultivate a thirst for knowledge, for curiosity fuels the engine of growth. 
#MentalHealth #humanity 

COMPASSION
Compassion is the wind that carries us to new heights of understanding.

CONFIDENCE
Confidence is not arrogance, its self-assurance.

CONTENTMENT
Contentment is the simplicity that comes from living in the present moment. 

CREATIVITY
The beauty of creativity is that it has no limits.

CURIOSITY

The thirst for knowledge drives curiosity





Crimson Fridays

 Feeling end of semester pressure #gradschool

If Blue is for Monday, then I assign Crimson for Friday

CRIMSON FRIDAYS


Check out my other poetry on this blog or on YouTube


Infantile Autism v Regressive Autism

 Did you know?

Infantile Autism vs Regressive Autism








Topsy Turvy

In the realm of the whimsically absurd
Logic takes flight like a fantastical bird
In a realm where the whimsical reigns.
Logic takes a back seat on this fantastical train
In a realm where logic takes flight
Find whimsy and wonder in the absurdity of night
In a world turned topsy-turvy. 
Where words dance and logic is quirky

 

Éphémère Joie and Time

This is a poetic reminder on the transient nature of time and inspired by Edith Piaf’s "La Vie en Rose,” and her other music. It encourages us to cherish each ephemeral moment, and be supported by joy. It explores themes of empathy, radiance, and the tenderness found in our shared human experience. Ultimately, it's an ode to seizing the present, holding tight to cherished moments, and discovering joy amidst life's ever-evolving tempo, echoing the optimism and rosy glow of "La Vie en Rose."


Éphémère Joie and Time 

(Ephemeral joy and time)


Dans la danse des jours,  a ephemeral fleet

(In the dance of days)

Les mois s'envolent,  moments so sweet.

(The months fly by)

Où sont passés les jours,  oh, so fast

(Where have the days gone)

Jamais revenir,  from the past 

(Never coming back)



Serre fort,  each moment just right

(Hold tight)

Soutenu par la joie, day and night 

(Supported by joy)

Le temps n'attend personne, c'est true

(Time waits for no one, its)

Nos vies valent la peine, cherish it anew

(Our lives have worth)



Dans l'étreinte tendre, a life of empathy
(In the tender embrace)
L'éclat d'âme, a radiant symphony
(The radiance of the soul)
L'esprit tendre chuchote, soft and clear
(The tender spirit whispers)
Chéris chaque instant, hold it near.
(Cherish each moment.)



À travers le temps, where memories beat.
(Through time)

Les mois s'envolent, leaving traces so sweet.
(The months fly by)
Serre fort, cher ami, let optimism anew
(Hold tight, dear friend)
Dans la vie en rose, find joy in you.
(In life’s rosy glow)

Altruism

 Contemplation, one line a day, in the quest for humanity.
#MentalHealth
Altruism is the humility that recognizes our interdependence and interconnectedness


https://www.dailycal.org/2018/04/05/access-ramp-volunteering


 

Happy Thanksgiving

In Thanksgiving's embrace, 
gratitude whispers the profound truth: 
life's richness resides in acknowledging its simplest gifts. 
- Hari Srinivasan


A Dual Approach to Autism

 


I signed up today for a Twitter (X?) account for the first time because I read the Newsweek article "A Dual Approach for Autism." I'm married to an autistic man and my grandson is also autistic, and my hopes and wants for/from them are vastly different. I loved your perspective.


And here is the article https://www.newsweek.com/dual-approach-autism-opinion-1818062

Restless Echoes

Restless Echoes

Find my poetry on my YouTube Channel and on this blog. 


Time

What an insightful and well written article. I applaud you! As a pediatrician I too have felt frustrated with the limited information we have to provide parents and children once they receive a diagnosis of Autism. Interestingly, I have noticed that many of my patients with Autism are gifted with almost "special" abilities. For some it is art, for others music for others it is academics. I had 2 patients that went on to study aerospace engineering and amazed me with their knowledge in the office. I have always felt that as a society we should expose children with autism to a vast array of things and concepts to see what resonates with them and then nurture that, instead of forcing them to conform to "how we think children should be". It would be interesting to create a longitudinal study that follows children after a diagnosis over a lifetime to see what helped them develop their skills (parenting styles, conventional schooling and therapies, unconventional..) I feel like with the diagnosis of Autism there is so much we don't know and so much we can learn from them too. Its like untapping parts of the brain we never knew existed. I wish you luck on your advocacy efforts and agree 100%!


 https://www.newsweek.com/dual-approach-autism-opinion-1818062

To drive true progress and improve the quality of life of all autistics we need BOTH Strengths_based_Opportunities AND Challenges_based_Solutions. 
It is not Either-Or.




#Autism #Research #Strengths_based_opportunities #Challenges_based_solutions.

Crimson Friday

If Blue is Monday BLUES, then I assign color CRIMSON for Fridays - Fridays are playing a fiery catch up rush, on all that was due this week, not quite making the cut and knowing you are adding to next week's already big pile. 


Read more of my poetry on YouTube on on this blog.


OMG I have so much, too much work left to do!!! #gradschoollife

In the thick

 Event hosted by Spectrum at Cal during my undergrad years. 
Panel on Autism Research
Now I'm in the thick of doing Autism Research. How about that!!

And this is the area I will be looking at https://youtu.be/TG67gYXyz1o


Of Consequence



Great workshop and writing with my The OpEd Project Cohort the last 2 days. 




Sensory Neuroscience Reseach

https://youtu.be/fSNAkNsV4hg


 

Harmony of the Autism Rhythmic Mind

Harmony of the Autism Rhythmic Mind

(Refrain)
In the rhythm of minds, we find our song,
Autism's beat, where we all belong.
Yeah, yeah. Uh-huh.

In minds unique, like constellations so rare,
Autism's mind, it's everywhere.
Questions bloom, in rhythm and rhyme,
Different beats, in every time.

(refrain)

In the tapestry, we find our voice,
A vibrant pulse, our unique rejoice.
Unfolding universes in our mind,
Patterns merge, understanding we find.

(refrain)

Autism's gaze, sincere and deep,
Into mysteries, fearlessly we creep.
In every question, a beacon's glow,
Autism's minds, together, we grow.

(refrain)

Embracing disability, let's learn and flow,
Autism's minds, new insights show.
In the rhythm of thoughts, dreams gleam,
In the poetry of life, we find our dream.

(refrain)


 

Echoes of Inquiry: A Reflection on Humanity


Echoes of Inquiry: A Reflection on Humanity

Find more of my poetry on my YouTube Channel and on this blog. 



College Autism Summit


The Casio Lab and Wallace Lab booth at last month's college autism summit. 
Both labs study Sensory System in Autism. 
In layman's terms, the 2 labs study the internal and external sensory system respectively
The top photo shows Will doing the Rubber Hand Illusion with a conference attendee. 
Carbo the touch robot is used to study touch amongst other things. 


 

Inclusivity Mindset


Inclusivity isn’t a box to be checked, it’s a mindset to be embraced. Let’s approach each day, each decision, with the intent to foster spaces where every individual feels seen, heard, and valued - Victor Pineda

 


 Media Mention by India Autism Center Nayi Disha


 

Mixtape of Ambivalent Moods

(Verse 1)
In the morning light, I rise with a grin
Feelin' good vibes, let the day begin
But tired eyes weigh heavy, my mood starts to bend
Ambivalence kicks in, it's a battle to comprehend,

(Refrain) 
Life's a mixtape, tunes of joy and sorrow
Embracing the heat, a new track to borrow

(Verse 2) 
Hot day on the horizon, the sun's gonna blaze
Yet my energy wavers in unpredictable ways
Between feeling alive and the need to rest
Ambivalent heartbeats in my chest, a daily test

(Refrain) 
Life's a mixtape, melodies in the sun's glow
Balancing today, uncertain where I'll go,

(Verse 3) 
The heatwaves ripple, my mind's in a haze
Ambivalence lingers in these summer days
Feelin' good, feelin' tired, it's a delicate dance
In this ever-changing moment, I find my balance,

(Refrain) 
Life's a mixtape, rhythms in the summer air
With each rise and fall, I'll meet life's dare.


Contemplation, one thought a day

 Optimism is the heartbeat that keeps us moving towards our dreams.



Alexithymia and Interoception

Alexithymia and interoception are intertwined aspects of emotional processing, yet they represent different dimensions of self-awareness. 

Alexithymia characterizes individuals who struggle to recognize and articulate their emotions, often leading to difficulties in interpersonal relationships and emotional expression. On the other hand, interoception pertains to the awareness of internal bodily sensations, providing individuals with valuable information about their emotional states. 

The ability to accurately interpret these internal cues is essential for emotional regulation and understanding. In the context of alexithymia, impaired interoceptive awareness can exacerbate the challenges faced by individuals, making it harder for them to connect their emotional experiences with physiological responses. Consequently, addressing both alexithymia and interoception is crucial in enhancing emotional intelligence and overall well-being.

And yes, both are issues seen in autism. 

The Bystander Effect

https://www.eurekalert.org/news-releases/1006050. 


This was interesting. we always think that autistics being less susceptible to illusions (McGurk etc), and therefore less capable of multisensory intergration,  and this must be a deficit (negative) in the context of social interaction and society. Turns out that it is a positive for society when in comes down to fundamentals of basic humanity and compassion and helpfulness. (Less susceptible to bystander effect too.)


What is the Bystander Effect: 

The bystander effect is a social phenomenon in which individuals are less likely to offer help or intervene in an emergency situation when others are present. The presence of other people creates a diffusion of responsibility, leading individuals to assume that someone else will take action, resulting in reduced likelihood of any single person helping. This effect underscores the importance of social influence and diffusion of responsibility in decision-making during emergencies or situations where help is needed


Contemplation

The purpose of human existence is to seek meaning in the mysteries of life. - Hari Srinivasan

PD Soros Fall Conference



A memorable, emotional and absolutely enjoyable Fall Conference in New York last week with an amazing group of fellow students.

US Surgeon General Dr. Vivek Murthy (alum of the very first batch) was the keynote speaker. What a moving and brilliant keynote on the increasing loneliness in the US and the importance of social connection.

Some remarkable team building exercises, interesting outings, topped off with a deep dive interview by a 2022 fellow with the 94 year old (and going strong) Daisy Soros during the closing session.

And happy 25 years to PD Soros Fellowship.



A poem written for Daisy Soros and presented at the closing event. 


Background Introduction

This poem, "Aria of Aspirations," is an operatic ode dedicated to Daisy Soros and the late Paul Soros. Intermingled within this lyrical tapestry are cultural foreign language phrases contributed by the 2022 Fellows, epitomizing our global community bound together by shared dreams, aspirations and values. We celebrate individual stories, individual abilities and disabilities, while acknowledging the collective. The verses resonate with the unity, mentorship, and deep bonds fostered over the past year, all set against the backdrop of Verdi — a notable favorite of Daisy’s along with a nod to Daisy's cherished song, "La Vie en Rose" by Edith Piaf.

Of course, the poem is more inspired by the essence of the flow of a Verdi opera rather than a strict structural representation of one. For instance, the introduction with the dawn’s first light sets the stage much like an overture or prelude. The subsequent verses describe various scenes, reminiscent of arias and ensemble pieces in an opera. As we traverse from one stanza to the next, we also journey through the cultural and operatic art forms reflecting the diversity and richness of each of the 2022 Fellow’s countries of origin. Only the heritage countries of the 2022 Fellows are referenced. The climax builds around the lines that reference Daisy. The poem ends on an appreciative note, reflective of a finale or closing chorus in an opera. The use of musical metaphors is a depiction of our journey, growth and appreciation, reminiscent of the ebb and flow one might find in an opera.

Above all, this poem stands as a testament to Daisy and Paul's enduring legacy and their unwavering belief in the transformative power of investing in people, us New Americans.


Aria of Aspirations


In the powerful embrace of dawn's first light,

An aria begins, echoing the night.

Like Verdi's voices, in a crescendo bold,

Daisy, with Paul, your legacy retold.


From the depths of memory, notes we chose,

World painted in hues of La vie en rose.

An inspiring community, dreams taking flight,

Believing in the power of the New American right.


Andante tales from Nigeria's Ewi pride,

Bharatanatyam in India, vivace stride.

Syria's dancers, in Sufi whirling, they soar,

Calypso rhythms, Grenada's lively lore.


Germany's Deutsche Oper, largo and deep,

Polish opera's passion, allegro sweep.

Staccato tales of Russkaya, tales so vast,

Makossa beats in Cameroon, from the past.


Nanguan melodies in Taiwan, gentle and fine,

Mariachi strums, Mexico's vivacious line.

Zemer Ivri from Israel, tunes that enthrall,

Pakistan's Qawwali, a resonant call.


El Salvador's Cumbia, rhythm and song,

Congo's Soukous, where dance moves prolong.

Chinese opera's mask, legends of yore.

Vietnam's Ca trù, a haunting encore.


Romania's Doina, a melancholic strain.

England's classic ballads, tales that remain,

Uganda's Ndere, in rhythmic dance they weave, 

Canada's vast beauty, where the maple leaves believe.


In unity, beyond borders, we soar, 

Embracing abilities and disabilities, our spirit does roar. 

For in this fellowship, we truly see, 

The strength of inclusion, setting hearts free.


Daisy, our fellowship’s deepam, light,

Paul, in dolce memory, makes the night bright.

Apurbo, wonderful, with 2.5 decades decree,

Your combined legacies, a grand opera’s spree.


Cuando la oportunidad no te llama, 

construye una puerta, is your panorama. 

For every dream, an aria of our own.

In this vast libretto, aspirations grown.


Qui cherche trouve, in tales that we’ve planned.

Contrapunto contrasts, hand in hand

Yaar, friend, Fellows forge unyielding bonds,

Guided by mentorship, on which our growth dawns.


Al-nas lba'adah, together we stand,

With each note played, by your visionary hand.

In Verdi's coda, strong and profound,

Daisy, your strength and resilience resound


A reflection of past, largo’s embrace,

A celebration of futures, in allegro’s chase.

For in this grand opera, one thing is clear,

Through music and dreams, you've drawn us near.


A family, a friendship, presto and planned,

You invest in people, on this vast vast land.

With each passing year, our ensemble does grow,

In the name of love, letting dreams flow.




Classic and visionary, an aria’s play,

Daisy Soros, to you and Paul, our gratitude we convey.

For in every note, in each melody's strand,

Is the touch of your hearts, the warmth of your hand




Foreign Language Translations

Al-nas lba'adah (arabic): people are there to support each other

Apurbo (bengali): Wonderful /amazing

Cuando la oportunidad no te llama, construye una puerta (spanish): When opportunity doesn't knock, build a door

Deepam (tamil): Light

Qui cherche trouve (french): Who seeks, finds

Yaar (hindi): Friend