Showing posts with label Publications. Show all posts
Showing posts with label Publications. Show all posts

Little research to help autistics like me

If I have not fully understood my own disability, it is, in part, because there has been little research to help autistics like me understand the full scope of it, as well as targeted education, medical, or therapeutic interventions that can help us navigate it.
-Hari Srinivasan, Time

 

Disability and Multilingualism

UNESCO is celebrating this International Literacy Day 2024 by highlighting multilingual changemakers on a global scale. Among them is Hari Srinivasan, a trailblazer for disability rights, who is a multilingual American child of immigrants

Read Full Article at unesco.org...

 

"The solution for such autistics cannot be... the liberal use of the psychotropic medications, which are unreliable Band-Aids with long- term health effects. Many of my peers in special education slowly disappeared into the black hole of being sent away to the modern day equivalents of institutions as their behaviors were no longer "manageable’ at home or in a community setting. Out of sight also means out of mind for society."
- Hari Srinivasan, Newsweek


 

Caught Between Tears and Stoicism

 

It is patronizing of social media to imply that expressions of emotion are "OK" after learning he’s disabled, as if society is willing to make the occasional exception rather than challenge its norms.

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Disability and Multilingualism

Growing up, Hari Srinivasan remembers repeatedly learning about St. Patrick’s Day in his special education classroom—a holiday that, while interesting, felt disconnected from his own cultural heritage.

Read Full Article at unesco.org...

 

"Many autistics like me [are...] excluded from autism research due to the complexity of our issues, or because of the research methods used."
-Hari Srinivasan, Time

 

"We must dispel the notion that any medical intervention is inherently harmful. Many autistic peers I know experience chronic sleep deprivation, multiple seizures, pain, autoimmune conditions... spend the entire night on the toilet due to gut issues... engage in intense self-injurious behaviors, aggressive behaviors, and frequent meltdowns, which leave them home-bound. Living in a state of chronic unwellness is not conducive for inclusion. The quality of life for such autistics is challenging, no matter what kind of societal supports (inadequate as they are currently), or opportunities are put in place for inclusion."
- Hari Srinivasan, Newsweek


 

Caught Between Tears and Stoicism

In a world where emotional expression is often suppressed or critiqued, especially in public figures and their families, his response is a refreshing reminder of our shared humanity.

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Comment: 
Hari, this is incredible. It is both beautiful and meaningful in its humanity, as well as being an exceptionally important message for inclusion - how you manage to do those two things at once is something I am extremely inspired by!


 

Why was I not benefiting from the vast amount of research that is being done in the name of understanding autism better? After all, autism has been an official diagnosis since 1980.
-Hari Srinivasan, Time

 

https://www.dailycal.org/2018/04/12/compulsion-complexity



 

Disability and Multilingualism

 

The approach, shaped by clinicians who advised speaking only English to autistic children, paradoxically led to a loss of cultural identity rather than the inclusive exposure that neurotypical children might receive.

Read Full Article at unesco.org...

Caught Between Tears and Stoicism

A story worth telling— not because it is exceptional for a disabled person to feel pride, but because it is an ordinary human experience. And that, in itself, is enough.

Read Full Article at

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Comment
Beautifully written and very wise, Hari! I will also share it with my students.