Towards a Life of Meaning


How can we develop a life philosophy of happiness?
I sit down with Dacher Keltner, Professor of Psychology at UC Berkeley to find out more in this Daily Cal Article

https://www.dailycal.org/2020/01/24/toward-a-life-of-meaning-uc-berkeley-professor-dacher-keltner/
Towards a Life of Meaning



    

As much as we try,  writeups on interviews don't quite get all that is said is an interview. There is a word limit. So here is the full transcript of this quite amazing interview.

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HS. We’ve grown up with the message that the human race is competitive, aggressive and we need to somehow imbibe those values if we are to rise and succeed in society and be deemed worthy. In fact, everything around us seems to exemplify the more negative qualities as seen in the self-serving interests of many of the world leaders and corporations today.

At the same time, I think, somewhere inside us is this yearning to lead a life that is productive and meaningful. But placing “goodness” at the center of our human existence seems like an unrealistic naive idealism for most of us to survive society as we till try to navigate the nastiness all around us -  I guess that is what this interview boils down to.  How do we make this possible or  How do we cultivate this “positive expressivity” and still reconcile it with the overwhelming contamination of the negativity around us? 


DK: I think the position that I advocate for, "Survival of the Kindest" sort of balances out that story. For a long time we assumed that people are greedy and competitive and in part that is true. We have to sort of serve our own self interest to survive. But what a lot of scholarship is saying, evolutionary scholarship, game theory traditions is that people share a lot, they cooperate a lot, and they will share 40% of their resources with a stranger, they will volunteer to help people they don’t know. So to your first big point, we are both, we are both very competitive and violent and at the same time we are compassionate and kind and sharing, and so.


HS: You mention a number of positive emotions in your talks and books. compassion, gratitude, altruism, empathy, kindness, forgiveness, sympathy, happiness, love, and awe. Is “goodness” an aggregate of these positive emotions? If not, which ones?  Are some better than others? Is compassion a master emotion for instance, or just a personal favorite?  Could you elaborate?


DK: We got one big cluster of emotions, the negative emotions, you got anger and fear and shame, then we have this other big space we call positive emotions, a subset of those are the good emotions - good to others like gratitude, compassion and aweI study Positive emotions. And goodness is really more of a moral quality, so goodness is about morality, so you probably put into it good emotions like compassion, gratitude and awe and how we think about them.


Are some better than others? Emotions are here to help us get through a specific day, right? And some emotions are better than others for a specific task. Compassion is really about reducing suffering in the world and it’s really good at getting people to help other people who are suffering. Gratitude is about sharing resources with friends. It’s better than other emotions in getting us to form cooperative relationships. Pride as an emotion is not so good at taking care of other people, but it's good at getting us to show we have power and status. So each emotion has a function or purpose. That they are good at. 


Is compassion my favorite, is it a master emotion? This is a really good question, because it is a favorite of mine but when I teach Human Happiness, what I talk about is a lot of scholarship in culture and religion, for example by religious historian Karen Armstrong; all cultures care about compassion. So it's kind of a master emotion. If you read Buddhism, Hinduism, Christianity and Islamic thought, Indigenous thinking; you will find that caring for others is really fundamental. So I think you could call it a master emotion. 


HS: Is compassion and kindness just a matter of perspective-taking?. Is Compassion the main motivation for Altruism and Forgiveness?. Where does empathy fit into this or is empathy another form of perspective-taking? . Are compassion, sympathy, and empathy approximate synonyms?.

 

Where does love fit in as an emotion?.  Many cultures think of love as the all-encompassing and greatest of all emotion.

 

Maybe all of them are part of a spectrum (like how we say autism is a spectrum)? 

(Sorry, if this sounds like a lot of stuff thrown at you)

 

DK: So yeah, those are really really good questions. We in the English language and other languages often use compassion and sympathy and empathy often interchangeably. You would say, well I serve food to the homeless because I feel empathy for them.


But now what science, behavioral science and neuroscience, has shown us is that they are really different. Compassion is where you care about other people’s suffering and you want to make their lives better. Empathy is where you feel what other people feel or you know what they think, so it's going into the minds of other people. Perspective taking is a kind of empathy and its where you are able to see other people’s circumstances through their eyes. Take their perspective and see how they go about it. 


To your question, compassion and kindness, kindness is the behavior that follows from compassion, feeling that leads to a behavior like kindness. Perspective taking can lead to kindness behavior but it's different than compassion. 


And yes, altruism or sacrifice for other people at our own expense is very powerfully determined by feelings of compassion. And so is forgiveness, when we forgive people who have harmed us, it's often produced by compassion.


So are they synonyms? No I think compassion (wanting to lift up the welfare of others), sympathy (recognizing the suffering of another and wanting to assist) and Empathy (feeling what other people are feeling) are different things. 


Love. I love your questions because it took us like 20 years to figure this out, so love is. There are many kinds of love, probably a dozen kinds of love. You have love for a friend, love for a romantic partner, love for parents, you have love for your siblings, you have love for a child. Love is thought of as where you are trusting and devoted and affectionate towards others. And we gathered a lot of data showing that love is a separate emotion. It’s different from sympathy, it has a different bodily expression, it has a different neurophysiological profile and it really is about forming attachments to other people.


Is it the greatest of all emotions? (Laughs). I think that a lot of people feel that at the end of the life, what’s most important is love and they love people. So in that sense you could say it’s the greatest of all emotions, because we consider it critical to wellbeing. But I don’t think it's all-encompassing, I think it has its very specific context, I think if you cultivate a loving sentiment towards other people or attitude, it will be all encompassing 


And yeah, the idea that emotions are on a spectrum or continuum is really true. A lot of our new work is showing that in a category of emotion like awe and compassion, there are varieties, some are really intense, some are less intense, some are more mixed with other emotions , I think it's really important to be thinking of emotions on a spectrum or continuum.

 

HS: In your TedX talk, you defined Compassion as a feeling of goodwill for others. 

 

If our DNA is indeed also evolutionarily hard-wired with positive emotions like compassion and kindness, as you suggest, any thoughts on why society compartmentalizes these emotions to only certain times of the year? 

 

For instance, we are told to have “goodwill for all” during Christmas Break, engage in altruism during “giving Tuesday” for thanksgiving and “love” for Valentine's day. 

 

Such seasonal “positive expressivity” ends up feeling very forced and artificial - almost like it's geared towards some corporate interests rather than human interest. 


DK: Compassion is in our DNA. It’s one of deeply evolved emotions. In my book, "Born to be Good,"  I write about how we have universal signals of compassion; our primate relatives show compassion. It’s just part of who we are as a species. We even have some gene studies, oxytocin related studies to back up empathy and compassion.


Why do we see it on only certain rituals.- Christmas, going to church. I have a couple of answers to that. First is that you are absolutely right, corporations and capitalism exploit and put to problematic uses all the emotions. That’s what they do, they seek to make money off emotions. Buying presents for other people as an act of compassion, which is built up in the transformed ritual of Xmas is a form of commodification of this really important emotion and that is really frustrating. But what I would suggest , and what I try with the Science of Kindness is that people are much more generous and kind on an everyday basis spontaneously that you might imagine. 31% of Americans volunteer to help other people. We are routinely sharing a lot, we routinely assist each other. There is a lot of everyday heroism out there in the world that’s been documented. So what I would say is compassion induces in us the capacity to really be kind to other people a lot on a regular basis. Corporations come in, they see how powerful emotion is and then, they try to commodify it and make money off of it by producing rituals and products that we can buy. 

 

HS: I was very intrigued. Page 23 of your book, "The Compassionate Instinct" , mentions that empathy is fragile in the sense that it is switched on within your own community and switched off with outsiders. 

 

Could you elaborate?  How can it be changed to be uniform? 


DK: This is one of the great challenges of today right. Political polarization, nationalism, white supremacy, mass incarceration, racial bias- all of the social problems of today. Our problems in many ways are problems of empathy, how do we emphasize with people who are different from us. There are a lot of data that show that it's easier to empathize with our own kind and harder to understand people who are different from us.


One of my favorite studies in this is by Carsten de Dreu and there was research on oxytocin, this neuropeptide that shows that if I get a whiff of oxytocin, I emphasize with people more. But he found it really strong for people who are like us and not for other people who are different from us. So I really think this is the challenge of the day, where we are better to people who are like us and not empathetic to people who are not like us. We have a criminal justice system that punishes people of color unjustly and in a way that’s a failure of empathy. How do we change this. I think we have to promote diversity and we have to teach empathy. We have to get people to be thinking about the minds of others. 


HS: For our readers could you elaborate on the idea that Positive emotions like kindness, altruism, and compassion are in fact hyper-contagious? (From "The Compassionate Instinct," Page 6). Also the idea of spreading kindness/gratitude through a tactile modality like touch. 


DK: one of the really interesting questions is how can I spread kindness through my social network. If I am really kind to an individual and that individual decides to take advantage of me, how can I try to prevent that.


And what studies have found is that emotions are contagious - we can can build up, we can capitalize on how contagious it is. Here are some examples.


One is laughter. Laughter is super contagious and people will unconsciously imitate other people’s laughter and that produces a sense of goodwill around us. Another is that Kindness is really contagious. There are studies that show that if I go work for an organization that is more generous to charity, I become more generous. It just creates this atmosphere of contagion. Famous studies by Nicholas Christakis & James Fowler, found that my positive feeling, tends to spread to the people around me, my neighbors, my friends, my kids, my colleagues, because we tend to imitate and pick up emotions of people around us. Recent research finds that in fact positive states are more contagious than negative states. So what that tells us is that kindness, laughter, feeling good, caring things is pretty contagious, it kind of seeps into us, produces behaviors that results in cooperative social networks. 


HS: On the emotion of awe and that the “human capacity for awe is our defining feature.”  

From what I gather, you say that traditionally awe was largely associated with either religion/spirituality or nature. 

Could you explain to our readers, what makes awe so great?


DK: (Laughs). I think there are two ways. So when I say that awe is our defining feature as a species, I’m being provocative cuz a lot of these emotions are important to us but one of the really defining qualities of humans is that we are a hyper social species. We have communities, tribes, collectives, sports teams - just love being part of social networks. And that’s really different from a lot of our mammalian relatives. And I think awe emerged in our evolution to help us be part of things that are bigger than ourselves, to be part of community.


So why is awe great? I think it's really a couple of things. The feeling of awe helps us connect to others, helps us share, helps us feel like we are a part of other people, helps us build strong ties, so it's great in the sense of giving us a sense of community. Awe is great in the sense that it is an engine of exploration and discovery and it opens up our minds and helps us look for things, discover things and see big patterns in life, helps poor kids do better in school as recent research shows. And it's great because a lot of the things we love the most in life that are part of our culture are inspired by awe. So music is a great source of awe, classical music and rock and roll and hip hop comes out of our experience of awe. 


Nature, our love and relationship to nature is animated by feelings of awe, the patterns of nature. And I would say that our love of human nature and out of a sense that other people can be good and strong and overcome obstacles, comes out of feelings of awe. 


Why is it great? It helps us to connect to others, discover things and create what is really incredible about culture  


HS: I also wanted to ask the location of the “tallest stand of eucalyptus trees in North America” that you used in your Awe experiments. Where you had one group stare at the trees and the other at the buildings - the former were more likely to help passerby accidentally spilling their pencils.  Are these trees by the side of the Valley Life Sciences Building. I love that area. 


DK: yeah. Laughs. I’m not sure if they are the tallest. I’ve been told that’s the case. I think it's on a Wikipedia page, yeah that’s where they are, right by the VLSB.


HS: Do you think it’s our awe of nature that leads us to activism over climate change? 

For example, when we feel we are but a microcosm in the vast macrocosm of the universe, it brings out a protective/nurturing urge rather than contribute to destroying this wonder?


DK: Yeah. Thank you for asking that Hari. So one of the things we are learning and this was known by the indigenous people. The tribes of different native Americans that populated north and South America 10-12,000 years ago, they had a very deep awe based relationship to nature. They saw patterns in nature, ideas of ecosystem, they saw that different species were collaborating with each other, had sophisticated ideas about weather, grain, the power of plants. So they had this awe filled understanding of the natural world. And they protected it and they lived in greater collaboration with the natural world.


We’ve become disconnected with the natural world. Now I think we’ve finding our connections again. And there are studies that show that if I feel awe, I want to take care of nature, I’m more inclined to recycle, more interested in doing carbon offsetting for things that I do. So awe is going to be critical to fighting climate change and carbon emissions. Great question


HS: You also mention the democratization of awe, the power of regular, small doses of awe, that we need at least 2 small doses of awe a week. 

 

How can we get these small doses of awe from everyday experiences? 


I know my experience at Berkeley has had a number of awe experiences - GBO, Sproul Plaza during the first week of the semester, Wheeler Auditorium which was the site of a Nobel ceremony, top of the Campanile etc.. The list goes on, and I imagine it’s the same for my fellow students.  

 

But I wonder how can we get a steady stream of these small doses of awe in our post-Cal, real-world adult life. 


DK: Laughs. You are asking amazing questions. Democratization of awe is one of the biggest surprises in our awe research. We ask people to keep track of whether they felt awe each day. And we find people feel a couple of experiences of awe each week and we find it actually matters a lot for the health of their minds and their nervous systems. I think that there are really important way to go find regular awe. One is get outside. We are doing work with UCSF showing, regular walks where you really encounter nature or beautiful things in cities or meaningful parts of your environment give you awe. People who inspire you morally, people who have overcome obstacles, people you think are awe inspiring and to just reflect on them and to make them part of who you are. A third is to find music that gives you awe. Americans spend a lot of time listening to music. Music is one of the most powerful sources of awe. So get out and do that. I would say a fourth is a regular mindfulness meditation practice, like yoga or breathing and I would say that you need to throw yourself into forms of knowledge that are larger than the self, whether its a spiritual knowledge, historical knowledge , cosmological, really try to find a system of knowledge that helps you understand big questions like why we live, why we exist , what is a person. And I think in terms of everyday awe; a final recommendation is to be giving yourself time, slowing down, wandering a bit, not forcing things, just being open as a mindset to cultivate awe. So I wish you the best of luck after Berkeley in getting those steady doses of awe. 


HS: I like to write poetry. May I relate a personal experience - would you consider experiences like this a “small dose of awe.”


Gazing with half-closed eyes 

Reclines the lone bovine.

Rhythmic mastication as the jaws chew

Yonder meadow is a laded plush green. 

Molars gnash, the molars grind. 

Cud cycles in gastro-tract 

The cow -  at complete peace is She! 


Cud is the ego, arrogance, and greed. 

Cud is  the anger and hate's burning seed

Grind and mash, negatives obsolete. 

Digestion Complete! It's Ultimate Reality!


DK: I love that. I think this has important qualities of awe like noticing things in a new way. So much of poetry is about slowing down, noticing, putting aside our typical categories of making sense of the world. And I love the deep reflection upon how to transcend the self. The digestion and ultimate reality is different than the cud and things that so I think it has a lot. your poem is powerful and has many properties of awe. 


HS: For our readers, could you elaborate on some of the neural correlates and physiological benefits of cultivating these positive traits?. 

 

Often these scientific findings serve as great motivation to cultivate these traits - oxytocin, Nucleus Accumbens, vagus nerve, etc).  Especially for the non STEM readers could you explain in layman’s terms, the main benefits, as backed by scientific research?

 

DK: I think the simple way to think about this is part of our nervous system is really about flight or fight physiology and protecting ourselves. And detecting threat and acting in ways to help us avoid threat. And we have big branches to our nervous system that are really about connecting and caring and finding beauty in the world.


So I will give you my favorites. Oxytocin is a neuropeptide that is produced in the brain. It goes up into your brain and into the blood system. Studies show that oxytocin, which is involved in childbirth and breast  feeding is also involved in empathy and sharing. So very important story. 


The Nucleus Accumbens is part of your reward circuitry in the brain that also includes the ventral Tegmental Area, prefrontal cortex. What is amazing is that the Nucleus Accumbens is part of the dopaminergic network, where the neurotransmitter dopamine is sort of situated and studies show that when you cooperate with other people, when you express gratitude, when you volunteer for other people, you get increased activation in this region of the brain. So this tells us that when I am good to others, it actually feels good. 


The vagus nerve is amazing, its a large bundle of nerves that starts at the top of your spinal cord, wanders through your throat, slows your heart rate down, deepens your breathing, helps you digest, projects into the intestinal wall into the flora and fauna and its unique to mammals, it helps you calm down, helps you connect and we have a lot of research showing that when I feel compassion, it activates the vagus nerve, so the vagus nerve is important 


Another really important thing you should know about is the inflammation response and the immune system has these cells called the cytokines cells that attack pathogens in your body when you are sick and when you are stressed or rejected or really grew up in poverty, you have elevated inflammation in your body which is really bad for your heart and your digestion and your brain. There are about 15 studies now showing that awe and other positive emotions reduce inflammation in your body 


And what’s really exciting, a final piece is new work on the Default Mode Network, which is parts of your cortex, ventral medial, prefrontal cortex, posterior cingulate cortex that are about the self, about the ego, about me achieving my goals, and self interest and so forth. And what studies are showing is that mindfulness, meditation, and awe reduce activation of DMN. That DMN or where the ego is in the brain tends to be associated with rumination, self focus and even depression. And here we find that positive states actually reduce the activation of the DMN. 


So those are some of the big highlights of this literature that tell us that happiness and all these things we’ve been talking about really matter for your body. 

 

HS: In one of your talks, you say that “awe” is the “only” positive response to reduce inflammation as it directly impacts the vagus nerve. 

 

So is awe the master emotion we should then target over other emotions like compassion, altruism etc?

 

That is, does the cultivation of ‘awe’ naturally lead to many of the other positive emotions? 


DK: Yes, I think the 2 best candidates for master positive emotions, as you talked about Hari are awe and compassion. I think if you cultivate feelings of compassion, if you feel wonder and awe for the world, you are gonna feel a lot of other positive emotions. What this finding that you speak of which is a Berkeley finding by Jennifer Stellar in our lab is that awe, feelings of wonder and awe were the only positive states to be related to reduced inflammation, not other emotions like pride or love. And what I believe we are eventually going to learn is positive emotions like awe and compassion and pride and excitement and laughter help our health through different pathways. Awe through reduced inflammation, compassion I really think through elevated vagal tone, but those are really questions we will figure out down the road. We need to understand. 


HS: A Big Ask. Could you give us students practical everyday tips to cultivate/ incorporate these qualities, and also how to reconcile them with more negative qualities demanded of us by society?. 

 

Not just during our time at Cal, but also say for the next decade or so into our adult life.  How do we walk the walk rather than talk the talk? How do we personally lead a life that is productive and meaningful and to quote you, “find purpose and sustainable connectivity that brings you meaning” 

 

And how do we deal with the negatives such as the related stresses and powerlessness that often accompany disability or other pathology or marginalized groups?

 

DK: So I wanna thank you Hari for such a great question. And really great questions. So I think the first thing is how to find this for yourself and how to walk the walk. 


I hope Berkeley students all go to the greater good science center and try things. Here’s what I would recommend


The first is really learn how to breathe mindfully (laughs when Hari demonstrates). Exactly, so we know just everyday just practice some deep breathing 


Number 2. Try to practice gratitude once a week. One of my favorite things to do is at nighttime, because we know sleep is important, calm is important, at night, try to think of a couple of things you are grateful for in your lives. And that’s really powerful. 


Number 3 is choose social ties over money. Most Berkeley undergraduates are going to do pretty well and I think we all too often in life we choose work or making more money over friendship and I hope your generation will change that. 


Number 4 is find a source of awe out in your life. Get outside, go for a walk. Take a moment to stop and be near bodies of water, look at clouds. Find your sources of awe. 


Number 5. Think of service. think of one way your life or your work serves other people. Form of volunteerism 


So I think that if you can use the Greater Good Science Center, find 5 or 6 things that you could be doing each week, you’ll be ok. 


And to your question about the negativity in our world today, I would say a couple of things which I teach in Human Happiness. One is there is a lot of stress today, climate change, toxic politics, mass incarceration, economic inequality. And you need to train your mind through mindfulness techniques to really handle stress, to label it and make sense of it.


The second thing is to find a source of injustice in the world you want to improve and what I teach in Human Happiness is there are certain kinds of anger that feel good, that are good for society , that are good for bringing about positive social change and I think here at Berkeley, we care about positive social change and we find something that you consider to be injust, and take action. 


HS: Another Big Ask. "The Compassionate Instinct," book (page 14) had mentioned that positive emotions are not heritable but rather ‘plastic’ and can be shaped by environmental input.

 

So how do we change the world around us to act likewise (kinder benevolent tendencies)? 


DK: yeah so I think we are learning that, a big chunk; part of your positive emotions is heritable, almost everything in humans is heritable to some degree or most things. Thought I would correct that. 


Let me give you some examples of how to change the world. And this is really the question for your generation. Ok we know this stuff, how do we make the world better. People are already doing this so. So something you can start to do is incorporate this knowledge into the work that you do. And so what we are seeing at the Great Good Science Center as two examples is teachers are using this more in their classrooms, they are teaching this kind of stuff. We've touched thousands of schools. Health care professionals, medical doctors and nurses are starting to teach this stuff and to prescribe this stuff to other people. To tell a patient with diabetes to get outdoors more because its good for your body. To tell a really stressed out teenager to learn how to do some breathing and mindfulness. So incorporate it into your work. 


And then what I encourage and teach the students in Human Happiness here at Berkeley is really by the time you leave Berkeley to have a life philosophy that helps you incorporate some of these ideas . To have a philosophy about how you practice gratitude, to have a philosophy about how you find calm and quiet, to have a philosophy about how you benefit nature. 


So I think the first is to really build it into work. Second is to develop a life philosophy. Third is really think about the big life choices and make sure that happiness matters. And I think we are really gonna need to change institutions and that’s where we are lagging behind in the application of knowledge. Criminal justice for example. 


HS: Any other thoughts or comments or advice for students? Anything important I may have missed?


DK: Berkeley is a hotspot for this kind of conversation and we have a lot of interesting work going on on this. And I think what  would really encourage your readers and Berkeley students to do is like the millions of readers worldwide is to go to the Greater Good Science Center which is a Berkeley thing and to find 5 things that they will consider their happiness exercises and to start doing them. 


We think a lot about diet. We think a lot about exercise. We think a lot about study habits, now they need 5 things from the GGSC and they will be on their way








Sproul Plaza the first week of semester

Always a pleasure to visit the vibrant booth-lined Sproul Plaza on the first week of the semester.

Back at Wheeler Auditorium

My very first class at UC Berkeley was in Wheeler Auditorium. I remember sitting there in a sea of thousand students for Prof David Presti's "Drugs and the Brain"

My Mon/Wed class is in Wheeler Auditorium again this semester. 

Wheeler Auditorium was built in 1917 and is the site of the only Nobel Ceremony held outside of Stockholm. The 1940 Nobel Prize in Physics was awarded to Prof Ernest Lawrence at Berkeley instead of Sweden. No one wanted him crossing the Atlantic and potentially getting captured by the Nazis during WWII.  

I am in such awe of this classroom and love having a class here again.

The other cool thing about a large classroom is that it also means more ambient noise which pretty much drowns out any stim sounds I make. Yeah!!





Eligible for the University Medal

This is so cool. Would be great if that my current 4.0 GPA keeps up the year I graduate. 
---- 
Dear Potential University Medal Candidate,
On behalf of Professor Gerard Marriott, Chair of the Academic Senate Committee on Prizes, congratulations on your academic success. I am sending this email to make sure you know about the University Medal program.  You might be planning to graduate spring or summer 2020 and may be eligible to apply this year for the University Medal.  
If you are not graduating, keep up the excellent work and read up on the University Medal, as you may be in contention next year!



Business Class

Trying out a Business Class at Haas Business School this semester.
UGBA 105: Leading People w/ Prof Eli Kass




The Daily Cal is hiring again

 This will be my 5th semester at the Daily Cal!!!!

And yes, the Daily Cal is hiring again!!






Clinical Training for Behavioral Research

I will be joining the Prof Alison Harvey's Golden Bear Sleep and Mood Research Clinic as RA this semester. But first, there was a series of trainings to be done as this is an NIH funded study.

With GSI Heather who is helping me secure my laptop and complete other paperwork









      

Handicapped

The term "handicapped" originated in the 17th century as a gambling term. The phrase "hand in cap" referred to a game in which one person would claim an item belonging to another and offer something in exchange. An umpire would then decide on the value difference between the items, and all three players would deposit forfeit money into a cap. The two opponents would indicate their agreement or disagreement with the valuation by revealing whether their hands were full or empty. If their hands matched, the umpire would take the forfeit money, but if not, it would go to the person who accepted the valuation. 

Later, in the late 18th century, the term "handicap race" was used in horse racing, in which an umpire would decide on the weight to be carried by each horse, and the owners would indicate acceptance or dissent in a similar manner. As a result, in the late 19th century, the term "handicap" came to mean the extra weight given to the superior horse.

The term "handicapped" came to mean disability in the early 20th century when it was used to describe people with physical impairments who faced barriers in participating fully in society. The word "handicap" was used in this context because people with disabilities were seen as being "handicapped" or disadvantaged by their impairments, which made it more difficult for them to participate in daily life activities.

In some contexts, the word handicapped has been associated with begging (cap in hand) due to the historical practice of people with disabilities being forced to beg for a living. This practice was prevalent in some parts of the world before the development of social welfare programs and disability rights movements. People with disabilities often had few options for employment and were forced to rely on begging as a means of survival.

In the early 20th century, the term "handicapped" was widely used in the United States and other English-speaking countries to refer to people with disabilities. However, in the latter half of the 20th century, the term began to be seen as derogatory and offensive, as it emphasized the person's disability rather than their abilities.


Twenty Twenty

Twenty Twenty
 
366 suns, 13 moons
Moon hides occultation Mars
Lunar eclipse celebrates Fourth of July
Trick or treat under a Halloween blue moon
Summer hangout, Jupiter and Saturn side by side
Conjunction appears a lone star to the naked eye
Myriad meteor showers will sprinkle the skies


Happy New Year and Happy New Decade
Peace of mind, everyday
All 3653 days and 124 moons

=====
The math is as follows

Sunrises 365 x 10 years + 3 leap years = 3653

Full Moon 12 moons x 10 years + 4 (extra moons) = 124


Cal wins the RedBox Bowl

Cal Football not just bowl-bound this year but also won the RedBox Bowl at Levi's Stadium in Santa Clara against Illinois
Go Bears!!






IW Annual Holiday Party

So I'm back at the Inclusive World's Annual Holiday Party.

Can you believe the 2 photos with Madhu Krishnan- first one taken last year and the next one this year.










Housing for Adults with Autism in the Bay Area

A Paper for my Introduction to Disability Studies Class 


Housing for Adults with Autism in the Bay Area

Children with autism spectrum disorder (ASD) grow up to be adults with ASD, as autism does not magically go away in adulthood. The prevalence of ASD is rapidly increasing, with the CDC (2019) placing the diagnosis rate at 1:59 children. This means that there are an increasing number of autistics exiting the school system and entering the adult world (Marino, 2018).  However, as I find when trying to navigate the adult world of autism, supports and services are not just inadequate but the existing supports are not prepared to deal with the varied and unique needs of adult autistics. The situation can be complex as there is a huge spectrum of profiles within autism itself, a factor that also comes into play in the case of housing. While many autistics function independently with little to no support, a significant number are not employed and need more support for daily living. This paper focuses on the housing challenges for adult autistics needing more support in the Bay Area. 


Other topics in the adult ASD world that were considered during the web search were Adult Day Programs and employment. The first was concerning as many of my peers have not been accepted into any Adult Day Program due to “autism behaviors.” Adult Day Programs typically support people with disabilities (PWD) after they exit the special education system at age 22 (Escher, 2014) and range in the level of support provided. The second issue of employment is equally concerning as according to the National Longitudinal Transition Study only, “58% of young adults ages 20-25 with ASD who had been in special education in secondary school had ever worked during their early 20’s” (Marino, 2018).

As the process of deinstitutionalization began all over the US, an important piece of legislation in California that directly impacted housing for individuals with developmental disabilities like autism was the Lanterman Act of 1969. It opened the doors to the “right to get the services and supports [autistics] need to live like people without disabilities” (The Lanterman Developmental Disabilities Services Act, n.d.). It allowed for the creation of Regional Centers which are nonprofits that contract with the Department of Developmental Services (California Department of Developmental Services, 2018). Social workers at the Regional Centers help coordinate tailored services and supports including full or partial funding depending on the type of housing.  Yet the housing situation in the Bay Area as summed up by Lisa Kleinbub, executive director of the Regional Center of the East Bay, is that there is, “a pent-up demand right now among young (special-needs) adults for housing...They’re housed in settings that really aren’t what they want.” (Kendell, 2019). Kleinbub goes on to add that there are fewer than 100 units for the 4500 units of housing needed in Alameda and Contra Costa counties. When it comes to Santa Clara, Santa Cruz, Monterey, and San Benito counties, Kleinbub states that almost eighty percent of the 17,500 clients live with their parents  (Kendell, 2019). 

In this research, it is useful to briefly look at some of the current housing options as listed by the San Francisco Autism Society.  The most common and well known are the Group Homes or Community Care Facilities. The typical three-bedroom group home is privately owned and licensed by the state and can house up to six individuals with the state paying the group home for each individual depending on the level of care needed. Group homes provide an all-in-one solution (ASD Housing Options, 2019).

Apartments and co-ops are arrangements where an individual lives alone or with shared living space. Staffing support is provided through agencies or individuals that provide Supported Living Services (SLS) or Independent Living Services (ILS) (ASD Housing Options, 2019). The big advantage of using SLS and ILS is that the client, “retains separate control over housing choice and support staff...[even as they] need support to carry out choices” (ASD Housing Options, 2019). Rents are expected to be funded through social security income received by the individual and Section 8 vouchers which landlords can make use of to rent apartments at fair market value. 

The autism community model is increasingly popular and is loosely based on a retirement community model, offering housing, community and sometimes programming options. Two of my peers will have a future home in the Clearwater Ranch in Sonoma county. Spread over 80 acres it will feature many single-family homes, each housing four ASD adults (with their own room) and two caretakers. Another example is the Sweetwater Community in Sonoma County and the soon to be completed Summer Hill project in Pleasanton (Kendell, 2019). Extra support needed for individuals would still have to be organized via SLS and ILS agencies (ASD Housing Options, 2019). 

However, each type of housing option comes with its own set of challenges and more so in the context of the Bay Area. A small subset of these issues are discussed below. 

The first issue is that “even in situations where PWD are not able to live independently, living in community settings is generally considered preferable to institutionalization (if adequate support is provided)” (Schur, Kruse, & Blanck, 2013, p. 124). Group homes and SLS/ILS housing are more in line with the principle of housing in community settings. So there is debate over whether the creation of exclusive communities for autism would be a form of  “gilded” segregation. But Kleinbub feels that the community model may work as long as, “residents have opportunities to venture beyond the building” (Kendall, 2019). I also want to add that that it is worrying that so many autism communities are coming up in Sonoma county which is likely to be the site of recurrent wildfires as climate change is not likely to reverse course in the immediate future. As we learned in class, PWD are most at risk during rescue and evacuation attempts. 

A fundamental problem is that many of the housing solutions for the disabled community were not envisaged for the behavioral issues that often accompany autism. Housing in the community is easier when there are fewer “disruptive” behaviors. Some autistics may find it difficult to share rooms in Group Homes or have close proximity, others may have frequent meltdowns or behaviors that other autistics may not be able to tolerate. A friend was sent back to his parental home from two different group homes as they could not manage his behaviors. 

Training staff to the unique needs of the individual has been a challenge especially if an individual is seen as having more support needs. My friend Tyler Fihe, now in his 30s, has been living on his own in an apartment with SLS support since age 19. He states in a youtube video he made for the 1:59 Autism Spectrum Disorders DeCal class here at UC Berkeley, “I wish I could say that I have been fully in charge of my household...having trained, probably hundreds of staff over the years. I finally wrote an operations manual. It is hard work to keep it up to date, but it is harder to teach the same basics over and over again” (Fihe, 2019). 

The Bay Area is very expensive to live in, making it almost impossible to find affordable housing for adult autistics. According to the Bay Area Market Reports, the median home price in the Bay Area is  $980,000 compared to the California average of $609,000 and the United States average $279,600 (Bay Area Real Estate Markets Survey, 2019). Rents are also prohibitive, the national average at $1,465 compared to $3,240 in Berkeley, and $2,789 in San Jose (Bona, 2019). It is not without some irony that the social security income received by an adult, which averages $1000 a month, “is expected to fund the rent, utilities, food and living expenses“ (ASD Housing Options, 2019). 

The high cost of living affects support services as well. In his video, Fihe adds, “Staff turnover has always been a major problem. The pay for staff is ridiculously low. It bugs me that my staff could make more money making lattes and mochas than helping me have a life. Our society values seem pretty screwed up to me" (Fihe, 2019). Two of Fihe’s SLS agencies have shut down in the last ten years due to staff not being able to afford to live in the bay area (Fihe, 2019). This is a continuing trend. Group homes are again paid a flat state fee which does not account for the geographical cost of living (ASD Housing Options, 2019). The group home of another friend is moving to a rural area to lower their cost of operation. When that happens either you live too far away from your family to visit or move back into the family home as you continue to search for other (almost non-existent) options. 

Even in the case of solutions like the communities, either the cost of entry is prohibitive or the affordable ones have long waitlists. A family I know bought into Clearwater Ranch a few years ago for $200,000 and the other family recently at $350,000. It guarantees a room for the lifetime of the ASD adult. 300 individuals have expressed interest in the 31 units of the more affordable Sunflower Hill community project with rents from $300 to $1,500 a month (Kendell, 2019).

One of the concerns for adult autistics and their families is the potential for abuse and neglect in any housing option. The social worker for a severely impacted ASD friend paid a surprise visit to his SLS apartment and found his careworker on top of him. His horrified parents immediately moved him back to the parental home for now. 

Group homes have the most oversight in that they are licensed. However, my social worker remarked that it was impossible to physically visit each client more than once or twice a year as she had a huge caseload, many of them in different group homes. According to the San Francisco Autism Society, some group homes may also choose to limit family involvement and oversight (ASD Housing Options, 2019). Historically, a lack of oversight and accountability contributes to neglect or abuse (UNICEF, 2005, p. 12).

A majority of adults continue to live in the family home for many years due to this housing crisis. There is some advantage to living amongst familiar friends and family which gives a sense of belonging (ASD Housing Options, 2019). While it is actually cost-effective for the state to have the adult continue to stay with their families into adulthood, there is currently a huge financial disincentive to do so (ASD Housing Options, 2019). The full range of ILS and SLS services cannot be accessed unless the adult autistic resides in a separate address. Aging parents simply cannot continue to provide the same level of care without access to significant SLS support, so autistics are often forced into housing options that are less than optimal. Changes in legislation to enable adults to continue living in the parental home with full SLS/ILS support could help alleviate some of this housing crisis until better alternatives can be found. 

Families can indeed play an important role in the oversight process of  “service delivery and monitoring of safety” (ASD Housing Options, 2019).  My social worker had once mentioned that some parents are buying a smaller second home close by for their adult child so that the parents can better monitor service delivery. Buying a second home in the Bay Area is however impossible for most. Some family friends have bought two houses on the same street in cheaper areas like the outskirts of Sacramento, one for themselves and one for their adult ASD family member. A family I know in San Jose is working on converting their “in-law” unit through city permits into a separate address. Caseworkers in Marin County have also indicated to a family I know that the county was now encouraging the building of in-law units on existing properties and zoning them as separate addresses. It is part of the attempt by Marin county to address the housing crisis for adults and the hope is that more counties will follow suit. 

Essentially the state has been unprepared for the exploding numbers of adults with autism which has rushed their housing needs into a crisis mode, more so in an expensive geographical location like the Bay Area. Changing legislation to build and rezone in-law units on existing properties as well as continued residence in the parental home with full SLS support may help alleviate some of this crisis. Thousands of affordable units also need to be built as well as other incentives to make rents affordable. Staffing is a critical component for this population so affordable housing for staff also needs to be addressed. In addition, there is the issue of addressing the unique and behavioral needs of the autistics themselves to consider, which impacts the type of housing they need. The overriding issue of disability rights still remains unresolved for the autism population - that of inclusion via community-integrated housing versus a new form of segregation with the creation of autism communities.  There is clearly a housing crisis for this vulnerable population and currently no simple solutions.

Additional Note: 
Something which appeared almost like a conundrum to me (and Prof Marsha Saxton also hinted at this in class) was the Independent Living Paradigm. PWD (People with Disabilities) went from being dependent on their families to living and making decisions on their own; the shift in decision making towards self-determination is just amazing progress. It truly represents the disability rights mantra of, “Nothing about us, without us.”  In my adult autism housing web paper, one of the options mentioned (or adults with more support needs is supported living, which is a form of independent living. 

The concern is that independent living unless arranged properly can result in isolation. It could end up with just the autistic and a caretaker who will leave for their own family home when their shift ends. The thought of loneliness is one of the most terrifying fears for a lot of folks including me. Just parking a person in the middle of a community with personal assistants does not mean inclusion or a sense of community.  A great irony is that the non-disabled neurotypical population places so much emphasis on being surrounded by family and friends yet the disabled are pushed towards becoming an “independent island” that has to live away from the family. Isn’t having some sort of self-determined, independent living arrangement in your family home or near your family a better option - so you continue to have access to that network of friends and family in your life rather than just a series of paid caretakers alone. Staff turnover is so high in the Bay Area and it is hard for a PWD to get a sense of stability or mental calm when you know 'paid people' around you will/can quit anytime.


We need hybrid housing options that allow for self-determination yet incorporate the opportunity for being included in the community and access to the family and friends network. Doing the paper both educated and worried me as it seemed to me that those of us with more significant disabilities will be at the mercy of caretakers and support agencies.  It was no surprise to me to hear that some PWD got abandoned by their caretakers during the Paradise wildfire 2 years ago.

References for Web Paper. 

ASD Housing Options. (2019). Retrieved October 14, 2019, from https://www.sfautismsociety.org/housing-options-for-adults-with-autism.html. 
Bay Area Real Estate Markets Survey - Compass. (2019, October). Retrieved October 14, 2019,
Bona, S. (2019, July 22). Bay Area Rent Report - June 2019. Retrieved October 14, 2019, from
California Department of Developmental Services. (2018, June 8). Information About Regional
Centers. Retrieved November 11, 2019, from https://dds.ca.gov/RC/.
CDC. (2019, September 3). Data & Statistics on Autism Spectrum Disorder. Retrieved from
https://www.cdc.gov/ncbddd/autism/data.html.
Escher, J. (2014, January 22). Commentary: What happens when autistic children become
adults. Retrieved October 14, 2019, from
Fihe, T.  [Tyler Fihe]. (2019, April, 9). Tyler Fihe [Video File]. Retrieved from
Kendall, M. (2019, May 21). Why the housing crisis hits this Bay Area group especially hard.
Retrieved from
The Lanterman Developmental Disabilities Services Act. (n.d.). Retrieved November 11, 2019,
Marino, S. A. (2018, September 13). The Special Ed Epidemic: What happens when they age
out of school? Retrieved October 14, 2019, from
Schur, L., Kruse, D., & Blanck, P. D. (2013). People with Disabilities: Sidelined Or 
Mainstreamed? New York: Cambridge University Press.
UNICEF. (2005, July 28). Violence against Disabled Children: UN Secretary Generals Report
on Violence against Children Thematic Group on Violence against Disabled Children
(Summary Report) New York: United Nations. Retrieved November 11, 2019, from


Basic Issues in Cognition

with Prof Davina Chan on last day of class



The Discussion Section in Hildebrand Hall





Intro to Disability Studies

With Prof Marsha Saxton, Introduction to Disability Studies






Group Presentation by our team on the book "Deaf in Delhi" for the Class" 







The DSP asks for proof of purchase in order to provide the textbook in an alternative format (pdf in my case). I did not have a receipt so sent a photo instead of the 2 textbooks. Worked!!