My Duke Keynote was one of the highest attended in the 10 year history of Duke Autism Summer Series

 WITH MORE THAN 275 ATTENDEES FROM 12 COUNTRIES, THE PRESENTATION WAS AMONG THE HIGHEST ATTENDED IN THE 10-YEAR HISTORY OF THE DUKE AUTISM SEMINAR SERIES


On April 3, 2024, Hari Srinivasan presented the keynote address in the Duke Center for Autism and Brain Development's 2023-24 Autism Seminar Series, in recognition of Autism Acceptance Month.

A self-advocate, Srinivasan is a PhD student in neuroscience at Vanderbilt University, an alumnus of the University of California, Berkeley, a Paul & Daisy Soros Fellow, a NISE fellow at the Frist Center for Autism & Innovation at Vanderbilt University, and a public member of the Interagency Autism Coordinating Committee. He is a member of the Duke ACE Advisory Committee.

In his presentation, "Redefine the Table," Srinivasan illuminated the critical need for autistic individuals not just to sit at the table where autism is discussed, but to fundamentally redefine the table itself. He invited participants to consider a shift in perspective from binary views of autism to a more integrated approach that recognizes the complex, multifaceted experiences of autistic individuals.

Through his personal narrative and professional insights, Srinivasan underscored the importance of redefining the conversation around autism and disability to foster true belonging, inclusivity, and meaningful support across the lifespan. This redefinition calls for embracing multiple aspects of disability.

He advocates for both strengths-based opportunities as well as challenge-based solutions, acknowledging the diverse needs and potential of autistics across the spectrum. His talk challenged the audience to reconsider their perspectives around disability to achieve equity in social, medical, and research spaces.

The role of the autistic in research

Thoughts around autistic people leading research rather than only participate by giving accounts of lived experiences.

I think rather than talking about one autistic or neurotypical being the leader, which seems to imply a position of dominance by one group, we should be thinking more in terms of what Judy Heumann used to term as Collaboration Cooperation. Both disabled researchers and non disabled researchers need to work together for meaningful change. And most research is a team effort anyway. What the non disabled researchers bring to the table is a lot of experience in how to go about research and they’ve had a couple of centuries of head start in this. When you combine this with collaboration and leadership of autistic researchers you get the following added benefits.
  1. Autistic insights through a nuanced understanding of autistic experiences that cannot be fully captured by observation or second-hand accounts. 
  2. Innovative approaches through distinct cognitive and perceptual experiences. This can lead to innovative research methods and findings that might be overlooked by non-autistic researchers. 
  3. Increased relevance and application towards practical and relevant issues. 
  4. Empowerment and representation as autistics in leadership, challenges traditional narratives of them only being research subjects. 
  5. Reducing bias in data interpretation from a neurotypical lens. 
  6. Building trust among autistic participants that this research is likely to be ethical and beneficial.  
  7. Policy and practice impact as autistic researchers are more likely to advocate for changes that directly improve the lives of autistics. Their leadership in research can influence policy, educational practices, and therapeutic approaches in ways that are more aligned with the needs of the autistic community.

Upcoming

 

If you missed Hari Srinivasan at our Duke seminar series, there's another chance to hear more from him on a related topic in this webinar next week.


Insights and more

Cell Press and The Lancet invite you to a free virtual panel examining hashtagneurodiversity within the scientific community.

Through a series of engaging presentations and a live Q&A, this event will feature insights from leading experts. Panelists Mary Doherty (University College Dublin), Hari Srinivasan (Vanderbilt University) and Axelle Ahanhanzo (LAUDACE) will offer insights into making spaces safer for neurodivergent people, discuss intersectionality and neurodivergence, and unpack the importance of evolving scientific language to reflect lived experiences while ensuring rigorous scientific investigation.

Gain a deeper understanding of the value of neurodiversity in propelling scientific progress.
Register today: https://lnkd.in/eMyh9dZe

hashtagscience hashtaginnovation hashtagresearch

 

Solutions not more talk or more labels

I would like to see ACTION on ACTUAL SOLUTIONS - communication, biomedical physiology (physical/mental health), sensorimotor, policy, funding, myriad equity of access issues. Level the playing field so that ALL autistics can make use of opportunities. Thats quality of life.

Simultaneously reclaim and destigmatize existing labels so they can’t be used against you, instead of airtime and resources creating more and more new labels /terminology and then more airtime arguing about which is good/bad.

https://www.dailycal.org/2018/04/12/compulsion-complexity


 

Midday Muddle

There is a total solar eclipse today and Nashville lies in the path of totality.

A fun poem poking fun at bats and the eclipse. 
 

Midday Muddle
Bats take flight in solar eclipse gloom.
The day must had donned its nightcap, zoom!
A dance of glee, a faux night delight
Till sunlight peeked, they fled in flustered flight.

But do bats really come out during solar eclipse thinking it's night?


The idea that bats come out during a solar eclipse, mistaking it for night, is based more on anecdotal observations than solid scientific evidence. Bats use a combination of cues for navigation and determining the time of day, including light levels but also their internal biological clocks. While it's plausible that the sudden darkness of a total solar eclipse could confuse some bats into thinking it's dusk or dawn, prompting them to emerge, scientific studies on this specific behavior are limited. However, there are reports and observations of animals, including bats, exhibiting unusual behavior during solar eclipses, such as birds falling silent or nocturnal animals briefly becoming active.

It's worth noting that not all bat species would react the same way, and the extent to which they become active would likely vary depending on the local environment, the species, and the specific circumstances of the eclipse.

Special Interests - Autism Humor on Autism Sterotypes

 



RadMad Shoutout.

 A shoutout from my old lab, the amazing makerspace UC Berkeley Rad Mad Disability Lab

Let’s give a round of applause to our alumni Hari!! Hari, previously our lead in Team Propaganda, has recently been awarded the 2024 National Science Foundation (NSF) Graduate Research Fellowship.
The RadMad Lab is proud of you!!


 

504 sit in

Remembering the disability rights leaders and the landmark 504 sit in, that laid the path for today's generation. 

 

The Lancet and Cell Press Panel - Inclusive Langauge in Scientific Publishing

Recording:  https://www.youtube.com/watch?v=PuazLmv7hFo

Virtual forum presented by Cell Press and The Lancet.

Discussion exploring neurodiversity in science and the scientific community. Beginning with a short introduction to the concepts of neurodiversity and the social model of disability, speakers Mary Doherty (University College Dublin), Hari Srinivasan (Vanderbilt University), and Axelle Ahanhanzo (LAUDACE) will offer insights into making spaces safer for neurodivergent people, discuss intersectionality and neurodivergence, and unpack the importance of evolving scientific language to reflect lived experiences while ensuring rigorous scientific investigation. 

Moderated by Matthew Gilbert (The Lancet), Sri Narasimhan (Cell), and Amy Slogrove (The Lancet Child and Adolescent Health), this event will feature three short talks from our panelists, followed by time for discussion and questions.

Cell Press’s virtual event series on inclusive language in publishing brings together researchers and experts with the key perspectives needed to make science and the language of scientific publishing more inclusive and accurate. We’re now proud to offer these events—begun in 2023 as an internal Cell Press series to educate and support our editors and staff—to the broader scientific community. As an integral part of our 50th anniversary celebrations, these events seek to expand the reach of our speakers’ insightful perspectives and support our commitment to advocating for science and scientists. 



 

Panelist Hari Srinivasan, is a PhD neuroscience student researching the sensory domain in autism at Vanderbilt University, an alum of UC Berkeley where he ran a class on autism, a PD Soros Fellow, a Distinguished Fellow at the Frist Center for Autism and Innovation, and more.


Hari also writes extensively on disability and autism issues with multiple high impact essays in high profile media such as Time, Newsweek, Fortune, Boston Globe and Psychology Today.