Inspiration Porn

Inspiration porn was coined by disabled comedian Maysoon Zayid and popularized by the disabled activist Stella Young in her Ted Talk. (I had initially thought it was coined by Stella Young, just due to the popularity of her Ted Talk, till I was corrected by disability activity Rebecca Cockley who knew both people)

Inspiration porn is a term used to describe the objectification of the disabled, where they are depicted as heroic or inspirational solely because of their disability. This type of portrayal often reinforces negative stereotypes and promotes ableism, which is discrimination against the disabled and gate-keeps actual solutions. 

For instance, a common example of inspiration porn is when a disabled person  is depicted as "overcoming" their disability and achieving success or accomplishing one specific task, which is then celebrated as an extraordinary achievement. Even mere academic success can be seen as "extraordinary" and makes the newspapers, when the equivalent would have been a non-event for a non-disabled peer. 

This type of portrayal can be problematic because it reinforces the notion that the disabled should be judged solely based on their ability to conform to able-bodied standards by becoming "super heroes."

Objectification, where the disabled are often seen as objects of pity, is also used as self-motivation by the non-disabled, who may view the contrast between their own lives and those of the disabled as a source of inspiration and motivation. This is very self-serving and primarily benefits the non-disabled. The object of pity (the disabled) is going to feel worse, while the 'pitier,' can walk away feeling inspired. 

Moreover, inspiration porn often fails to acknowledge the systemic barriers and discrimination faced by the disabled.  By presenting the occasional story of "inspirational porn," it can justify the societal indifference in creating actual solutions for the disabled. What each such "inspiration porn' story seems to suggest is that if that disabled person could achieve success, then all other disabled must be able to do magically do so as well; without additional supports, thus reducing societal guilt at its lack of action.

Therefore, it's important to recognize and challenge the harmful effects of inspiration porn and work towards creating a more inclusive and equitable society and where solutions are being worked towards.
This requires acknowledging and addressing the systemic barriers and discrimination and on working towards real solutions, rather than relying on objectifying and dehumanizing portrayals of people with disabilities for motivation or inspiration.


Neuronal pruning

Neuronal pruning is a natural process during brain development where excess neurons and synaptic connections are eliminated to improve the efficiency of neural circuits. In the context of autism, including regressive autism, altered neuronal pruning has been proposed as a potential contributing factor.

Neuronal Pruning in Autism

  1. Hypothesis of Altered Pruning: Some researchers suggest that abnormalities in the neuronal pruning process may contribute to the development of autism. Specifically, it has been hypothesized that either excessive pruning (leading to a loss of necessary neural connections) or insufficient pruning (resulting in too many synapses) could disrupt normal brain function and development (Tang et al., 2014).

  2. Evidence from Neuroimaging and Postmortem Studies: Studies using neuroimaging techniques, such as MRI, have observed differences in brain structure and connectivity in individuals with autism. Some findings suggest an overabundance of synaptic connections in certain brain regions, which could be indicative of reduced synaptic pruning (Varghese et al., 2017). Postmortem studies have also reported similar findings, suggesting that reduced pruning may contribute to the atypical brain connectivity seen in autism.

  3. Genetic and Molecular Factors: Genetic studies have identified mutations in genes involved in synaptic function and pruning, which may contribute to autism. For instance, mutations in genes like MECP2, SHANK3, and PTEN have been associated with disrupted synaptic pruning and have been linked to autism spectrum disorders (Penzes et al., 2011).

  4. Role in Regressive Autism: In regressive autism, where children lose previously acquired skills, disrupted pruning may play a role in the sudden decline of cognitive and social abilities. The exact mechanisms are still under investigation, but it is possible that abnormal pruning could interfere with the stabilization of neural circuits involved in language, social interaction, and behavior.

Citations

  • Tang, G., et al. (2014). Loss of mTOR-dependent macroautophagy causes autistic-like synaptic pruning deficits. Neuron, 83(5), 1131-1143.
  • Varghese, M., et al. (2017). Autism spectrum disorder: neuropathology and animal models. Acta Neuropathologica, 134(4), 537-566.
  • Penzes, P., et al. (2011). Dendritic spine pathology in neuropsychiatric disorders. Nature Neuroscience, 14(3), 285-293.

I get quoted in Spanish

Another first. 
I get quoted in Spanish


Why Inspiration Porn is Harmful

PlainSpeak. In Plain Language for Lay Reader

Inspiration porn is a term used to describe when disabled people are shown as being super inspirational just for doing everyday things because they have a disability. This kind of portrayal often makes it seem like being disabled automatically makes someone a hero, which isn't fair or accurate.

A common example of inspiration porn might be a story about a disabled person graduating from school, which gets a lot of attention because people see it as overcoming something amazing. But the truth is, disabled people face many challenges, and they don't want to be celebrated just for doing what others do—they want to be seen as people first.

This kind of portrayal can be harmful because it often ignores the real issues disabled people face, like lack of access to education, jobs, or even basic facilities. It also makes it seem like if one disabled person can succeed, then others should be able to do the same without help, which isn't true or fair.

Inspiration porn can make people without disabilities feel good about themselves, but it doesn't help disabled people. It actually hurts them because it reduces their experiences to feel-good stories, instead of recognizing the real barriers they face and the real solutions they need.

To really help, we need to stop looking at disabled people as just sources of inspiration and start seeing them as individuals who deserve equal opportunities and respect. This means working on real changes in society, like better accessibility and fighting against discrimination, so everyone can live their lives fully and fairly.


UC Berkeley Diversity Academy 2021


A opportunity to present to faculty from an undergraduate student perspective. 




 

Lucid Dreaming

Lucid Dreaming is a state during REM sleep where individuals become aware they are dreaming and can often exert control over the dream environment. Research suggests a possible connection between autism and lucid dreaming, with autistics potentially experiencing lucid dreams more frequently, possibly due to differences in sensory and cognitive processing. [Read in more detail]

PlainSpeak. Lucid Dreaming is when you're dreaming and realize it, sometimes even changing what happens in the dream. Autistic individuals might have lucid dreams more often, possibly because they notice details more easily, but more research is needed to understand why this happens. [Read in more detail]

Campus Change Maker

 This is so cool. Thank you UC Berkeley. 



Subject: Bringing Disability Awareness & Visibility to the Plaza and Change Maker of The Week

Bringing Disability Awareness & Visibility to Sproul Plaza!

Visit our table on Sproul Plaza today from 9 to noon to connect with student groups and campus resources including: The Disabled Students Commission, Berkeley Disabled Students Group (BDS), Spectrum at Cal, OCD at Cal, CAPS, RSF, DSP, and the DCC!


As part of Disability Awareness Month celebrations, we are uplifting the work and stories of a series of Change Makers from the Disability Community. This week, we are highlighting the contributions of Hari Srinivasan. Undergraduate student, instructor of the Autism DeCal, and journalist at the Daily Cal.


Image Description: A photo of Hari standing on a bridge on UC Berkeley's campus. Text reads: Hari Srinivasan. Undergraduate student and instructor. There is a quote from Hari next to it that reads, "I want you to think of disability as possibility too. Only when you think of possibility can the door of opportunity be opened."

Recruiting autistic participants for Research Study

Please participate if you are above age 18, autistic and live in the US. 






Scan for the consent form (takes 1 minute to complete)

Recruiting Autistic participants for a research study on autism (by an autistic for autistics)

Title: The Autistic Experience of Awe: Can Awe Become a Tool in the Autistic Coping Toolbox?

You are invited to participate if you
1._Identify as autistic (or have an autism diagnosis)
2. Above age 18 and live in the USA

If you would like to participate, please fill out the consent form. https://tinyurl.com/aweconsent

The study will be in english, completely online and takes approximately an hour. It will involve written narratives and multichoice type questions on emotions.

There is no direct benefit to you from this study. However I hope to find broader applications for the autistic community.

For any questions, please contact the student researcher, Hari Srinivasan harisri@berkeley.edu

IACC Meeting #2 Day 1