The Autism - Parkinson's Connection

Research has found some evidence of a potential link between autism and Parkinson and that autistics are at higher risk for PD as they age. 

No surprise really as many autistics (like me) already have many movement-disorder-like movements, which really impacts our everyday functioning and which currently gets lost in the world of Autism dx overshadowing where everything is attributed to "autism" so nothing more need be done. 

Urgent need for research and translatable solutions

Taxonomy of Sensory Differences in Autism

 

The authors (Vanderbilt study) propose a hierarchical taxonomy to describe and refer to various sensory features of autism, which will help researchers to better understand the nature and impact of the sensory differences of autism and place future research targets at appropriate levels of analysis.

The 5 levels of proposed taxonomy are.

 

Imbecile

A history lesson in degrading terminology around disability. 

The term "imbecile" has historically been used as a diagnostic label for neurodevelopmental disabilities like autism. 

Origins: The term coined in the 18th century by French physician Philippe Pinel, who used the term to describe individuals who were intellectually disabled but still able to function in society with some support. However, over time the term came to be used more broadly to describe individuals with a range of intellectual disabilities, including those who were severely impaired and unable to function independently.

Justify Eugenics: The term was widely used in the US and Europe during the 19th and early 20th centuries and was used as part of a broader eugenic movement that sought to control and eliminate disabled people from the population. The use of terms like "imbecile" and "moron" were used to classify individuals based on their perceived level of intelligence, and were used to justify forced sterilization, institutionalization, and other forms of discrimination.

One of the most well-known cases involving the use of the term "imbecile" was the Supreme Court case Buck v. Bell, in which the court upheld the constitutionality of forced sterilization for individuals classified as "imbeciles." The decision paved the way for similar laws in other states, and resulted in the sterilization of tens of thousands of individuals with disabilities.

Buck v. Bell (1927): This case involved the forced sterilization of a woman who was deemed "feeble-minded" by the state of Virginia. In its decision, the Supreme Court upheld the constitutionality of Virginia's sterilization law and stated that "three generations of imbeciles are enough." (274 U.S. 200)

Mandated Removal in 1970s: The term "imbecile" fell out of use in the early to mid-twentieth century as medical and psychological professionals began to adopt more standardized and scientific classifications for intellectual disabilities. However, the use of the term persisted in some legal and bureaucratic contexts until the 1970s, when the Rehabilitation Act of 1973 mandated the removal of discriminatory language from federal laws and policies related to individuals with disabilities. 

Today, the use of terms like "imbecile" is generally considered outdated and offensive.

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Plain Language Version 

The History of Hurtful Words About Disability

The word "imbecile" used to be a medical term for people with intellectual disabilities, like autism.

Origins

• In the 18th century, a French doctor named Philippe Pinel used "imbecile" to describe people who had some intellectual disabilities but could still function in society with help.
• Over time, the term was used more broadly to describe people with all levels of intellectual disabilities, even those who couldn’t live independently.

Eugenics Justification

• In the 19th and early 20th centuries, the term "imbecile" was widely used in the US and Europe.
• It was part of the eugenics movement, which aimed to control and eliminate disabled people from the population.
• Words like "imbecile" and "moron" were used to label people based on their perceived intelligence.
• These labels were used to justify forced sterilizations (preventing people from having children), putting people in institutions, and other forms of discrimination.

Buck v. Bell Case

• One famous case was Buck v. Bell in 1927.
• The Supreme Court allowed the forced sterilization of a woman called "feeble-minded" by the state of Virginia.
• The court said, "three generations of imbeciles are enough," leading to many more forced sterilizations across the country.

Changes in the 20th Century

• In the early to mid-1900s, medical and psychological professionals began using more scientific and respectful terms for intellectual disabilities.
• However, the term "imbecile" was still used in some legal documents until the 1970s.
• The Rehabilitation Act of 1973 required the removal of discriminatory language from federal laws and policies about people with disabilities.

Today

• Today, using words like "imbecile" is considered outdated and offensive.
• It’s important to use respectful and accurate language when talking about people with disabilities.

Founders Rock

This day in 1860. 

Go Bears!!

 

April 15 is Middle-Aged Autistics Day

The growing number of young adult autistics of today will soon join the ranks of becoming Middle Aged Autistics of tomorrow. 

There is limited research on issues specifically related to middle-aged autistics, as most studies tend to focus on children and adolescents with autism. 

Acknowledging the need for knowledge of what happens in this phase, along with the services and supports that will be needed. 

Upstander

In silence, the Bystander stays

As others suffer in myriad ways

Courage blooms in an Upstander's heart

To speak up, To act, To play their part

A Bystander may see, but an Upstander acts with compassion & courage, making a difference in the world 

- @HariSri108

Poem and quote inspired by this twitter post by GGSC on bystander effect

OpEd Project

https://www.pdsoros.org/news-events/introducing-the-2023-public-voices-fellows

Got selected as a Public Vocies Fellow. Thank you PD Soros and OpEd Project for this amazing opportunity, I'm excited to learn from and and be mentored by some of the brightest minds in writing. I'm looking forward to learning how to contribute to important conversations in our world.