But my contemplation did not stop there. The questions kept pouring out in - "Questions for God."
OMG: A poetry collection
But my contemplation did not stop there. The questions kept pouring out in - "Questions for God."
Dr Victor Pineda
It really is a spectrum. The Neurodiversity of Autism at UC Berkeley
Love the cover picture.
The cover art for the feature was based on actual photos submitted by the students
Looks like the article was trending too !!!
https://www.dailycal.org/…/why-i-self-advocate-a-personal-…/
https://www.dailycal.org/…/why-i-support-an-essay-collecti…/
https://www.dailycal.org/…/a-letter-to-my-sister-a-persona…/
Make your Anxiety work for you
Mental-Cripple
The R-Word
However, the R-word quickly became a pejorative and was used to demean and dehumanize people with intellectual disabilities. The use of the R-word as an insult became more widespread in the mid-20th century, particularly in the United States, as it became more common to institutionalize people with disabilities.
Throughout much of the 20th century, the R-word was used in official language, such as in medical diagnoses and educational assessments. However, in recent years, there has been a shift towards using more respectful and person-centered language to refer to people with disabilities.
Many disability advocacy groups have worked to raise awareness about the harmful effects of using slurs like the R-word and as a result, there has been a decline in the use of the term in mainstream culture. In 2010, President Barack Obama signed "Rosa's Law," which replaced the term "mental retardation" with "intellectual disability" in federal health, education, and labor policy.
Despite these changes, the use of the derogatory R-word still persists in some communities and can have a harmful impact on people with intellectual disabilities and their families.
Neurominority
The Feeble Minded
The use of the term "feeble-minded" was deeply stigmatizing and contributed to the marginalization and oppression of disabled people. The term was often used to justify forced institutionalization, sterilization, and other forms of eugenic control over disabled people, as well as to deny them basic human rights such as education, employment, and the right to marry.
In the United States, the term "feeble-minded" was used in the landmark 1927 Supreme Court case Buck v. Bell, in which the Court upheld the constitutionality of forced sterilization of individuals deemed "feeble-minded" and "unfit" to reproduce. The decision gave legal justification for the widespread practice of eugenics, which resulted in the forced sterilization of tens of thousands of people in the US and Europe.
The consequences of the use of the term "feeble-minded" were devastating for disabled people and their families. Many were subjected to forced institutionalization, where they suffered from abuse, neglect, and social isolation. Others were sterilized against their will, which had lasting effects on their physical and mental health, as well as their ability to have children.
The term "feeble-minded" fell out of use in the early to mid-twentieth century as medical and psychological professionals began to adopt more standardized and scientific classifications for intellectual disabilities. However, the use of the term persisted in some legal and bureaucratic contexts until the 1970s, when the Rehabilitation Act of 1973 mandated the removal of discriminatory language from federal laws and policies related to individuals with disabilities. Today, the use of terms like "feeble-minded" is generally considered outdated and offensive.
Vagaries of English Phraseology: Journey of An Autistic through GrammarLand
https://www.dailycal.org/2019/04/07/vagaries-of-english-phraseology-a-personal-essay/
Vagaries of English Phraseology: Journey of An Autistic through GrammarLand
My introduction to the world of academics was rather late, since I learned to communicate via typing for the first time in my life only after I was a teenager. I was stuck in a silent, non-communicative world of autism until then.
Contact Hari Srinivasan at hari@dailycal.org.
8th Annual Autism Walk at UC Berkeley
Giving an Intro Speech at the Autism Run |
When I turned up for the autism walk last year, I did not even know that there was a spectrum organization here at Cal. Since then, I have been doing a wonderful walk with this student organization and learning about the other interesting activities being done in the community for the autism population. I started off on the autism acceptance committee where I did tabling and flyering for the first time in my life. This semester I am actually teaching a class on autism to 20 neurotypical students.
Autism is like a cocoon that morphs into all sorts of unexpected colorful butterflies. If you notice our new logo is a butterfly. The butterfly effect says a small local change can lead to profound and complex changes around the world. That is what you are all doing here today by participating. You are all part of the butterfly effect that will change the way autism is perceived, understood and accepted.
Thank you for making it here today.
THE AUTISM BOARD AT UC BERKELEY |
Autism Run Participants |
Prepping Label for runners before the run. Opening safety pins is tough work. |
Jordan, my fellow DeCal student teacher |
The Autism Board |
Crip Time
Crip Time
"Crip time" refers to the concept and practice of disability culture and community, which challenges the ableist notion that time is fixed and linear, and recognizes that different bodies and minds experience time differently.It acknowledges that disabled people, including autistics, often need more time to accomplish tasks and may have to adapt their schedules and routines to their own unique abilities and limitations. Crip time also challenges the notion that productivity and efficiency should be prioritized over rest and self-care.
"Rather than bend disabled bodies and minds to meet the clock, crip time bends the clock to meet disabled bodies and minds." Alison Kafer
Essentially, Crip Time is a shift towards valuing and centering the needs and experiences of disabled individuals, rather than expecting them to conform to ableist norms and standards.
What is "Crip Time"?
"Crip time" is an idea from disability culture that says not everyone experiences time the same way. It challenges the usual way of thinking that time is strict and always the same for everyone.
Crip time recognizes that disabled people, including those with autism, often need more time to do things. They might need to change their schedules and routines to fit their own abilities and limitations. It also says that it's okay to prioritize rest and self-care over always being productive and efficient.
As Alison Kafer says, "Rather than bend disabled bodies and minds to meet the clock, crip time bends the clock to meet disabled bodies and minds."
In simple terms, Crip Time means valuing and focusing on the needs and experiences of disabled people, instead of expecting them to fit into strict, ableist time schedules and standards.
Delays in Diagnosis
Delays in Diagnosis
Girls, BIPOC, lower SES
- Delays in Dx → Impacts access to early intervention services (up to age 5)
- Girls: Traditionally thought to affect only males.
- BIPOC & lower SES - Access to Healthcare
- Blacks - mis dx as “Conduct Disorder” instead of ASD
- Access to state services only if dx before age 22
- Later years - dx is a relief, an explanation of “not fitting in”, provides a sense of community.
Camouflaging and Masking
What is it.
Camouflaging or masking refers to the process by autistics learn to hide or suppress their autistic traits or behaviors in order to fit in and appear more neurotypical Essentially, it is the mimicking of NT behaviors. This can include things like suppressing stims (repetitive movements or sounds), forcing eye contact, or learning and mimicking social scripts or body language in order to appear more socially adept.
Why?
Masking or camouflaging is often a coping strategy used by autistics to navigate social situations that can be overwhelming or challenging. It is a means to fit-in and also a question of safety, as the display of atypical behaviors can lead to negative reactions from others.
Do only certain "type" of autistics engage in masking/camouflaging?
Recent research has also suggested that females are able to camouflage better which results in late-diagnosis.
Related Posts
- Masking & Camouflaging.https://uniquelyhari.blogspot.com/2021/09/cm.html
- Triple Bind and Masking in Autistic Femaleshttps://uniquelyhari.blogspot.com/2021/04/triple-bind-masking.html
- Masking as an evolutionary advantage https://uniquelyhari.blogspot.com/2020/04/masking-as-evolutionary-advantage.html
- CAT-Q measure to measure camouflaging in autistic females. https://uniquelyhari.blogspot.com/2021/04/cat-q-measure-to-measure-camouflaging.html
- Dont Cant Wont - Masking Camouflaging https://uniquelyhari.blogspot.com/2021/05/dcw.html
Autistic Savant
- Daniel Tammet - a writer and mathematician who has exceptional abilities in numerical and linguistic skills. He has authored several books and is known for his ability to recite pi to over 22,000 digits.
- Stephen Wiltshire - an artist who has an exceptional photographic memory and ability to draw detailed and accurate cityscapes from memory after only a brief aerial viewing.
- Kim Peek - known as the inspiration for the character of Raymond Babbitt in the movie "Rain Man", Peek had an exceptional memory for facts and details, including memorizing 12K books and is an expert in 15 subjects. Used to read 2 pages simultaneously which took him just 8 seconds.
- Not every autistic is a savant
- Not every autistic is a software genius.
Infantile vs Regressive Autism
Infantile autism, also known as classic autism, is characterized by significant impairments in social interaction, communication, and the presence of restricted, repetitive behaviors. It is typically diagnosed in early childhood, before the age of three. Core symptoms often include delayed or absent speech development, challenges in engaging in typical social interactions, and a preference for routines or repetitive movements.
Regressive autism, also termed late-onset or acquired autism, involves a marked loss of previously acquired developmental skills, particularly in social communication and interaction. This regression typically manifests between 15 and 30 months of age. Children may initially develop normally but then experience a decline in verbal communication, social engagement, and may exhibit decreased eye contact, along with an increase in repetitive behaviors. [Read more on Regressive Autism]
PlainSpeak
Infantile autism, or classic autism, is a type of autism diagnosed early, usually before a child turns three. Children with this condition often have delayed speech, find it hard to interact socially, and may show repetitive behaviors like hand-flapping or lining up toys.
Regressive autism happens when a child starts developing normally but then loses skills they once had, especially in talking and interacting with others. This usually occurs between 15 and 30 months old. A child might stop using words they knew, become less interested in playing with others, avoid eye contact, and start showing repetitive behaviors. This sudden change can be very challenging for both the child and their family. [PlainSpeak: Read more on Regressive Autism]