OMG: A poetry collection


A contemplative pursuit from the outer internet to the Inner-Net in search of answers. 

My last piece this semester for The Daily Californian Weekender was a collection of faith-based poetry.

It is a contemplative pursuit from the outer Internet to the Inner-Net in search of answers in 
"O God Where art Thou?" 


 But my contemplation did not stop there. The questions kept pouring out in -  "Questions for God."

We are often told “Life is a challenge, meet it”. I dove further into my inner-net as I grappled with this conundrum in - "Life is a Challenge, Meet it"

Vitamins A-F are for the body but Vitamin G is for the soul- "Vitamin G"


Dr Victor Pineda



End of an amazing semester with Professor Victor Pineda for my Comm Planning and Public Policy for Disability course.
Oh wow, his class is an experience! Growing up, you are only exposed to a little slice of your world of disability and your specific disability. This semester really opened my eyes to thinking about the bigger picture and issues up to a global scale and implementation at grassroots level.
I now also have a totally new level of respect for those yellow tactile curb cuts on the crosswalks, and the multitude of ways we interact with our built environment, the mismatches, inclusive design and universal design.
Appreciate it all the more as I am one of those PWD (person with disability) and being taught by a PWD who helped write the UNCRPD. The whole disability movement rests on the core principle of "Nihil de nobis, sine nobis" - “Nothing about us without us.” A big driving force behind my desire for higher education is to earn a seat at the table.
Lots of progress has been made but still much to be done. Hope I get to be in the thick of that change for the better.


It really is a spectrum. The Neurodiversity of Autism at UC Berkeley


My longest article yet and semester-long in the making, with a series of interviews with 7 students with autism at UC Berkeley. Ready in time for April, Autism Acceptance Month.
Shout out to my autistic peers Anna Bernick, Brazos Donaho, Brian Liu, Cole Hasserjian, David Teplitz, Joaquin Nelson, Tiffany Ceja - Thank you for sharing your perspectives.
And to my editors Anna Ho and Alex Luceli JimĂ©nez @ Daily Cal Weekender for your patience and edits for this really long 5600+ word article, and Design Editor Ariel Lung, for the cool cover art based on our photos. 

Love the cover picture.

The cover art for the feature was based on actual photos submitted by the students



Looks like the article was trending too !!!


This Edition of the Daily Cal Weekender was an Autism Special. 
Check out these other fantastic articles on autism by members of "Spectrum at Cal" Board. 

2. Why I listen - Eli Oh and Tory Benson 
3. Why I self-advocate - Cole Hasserjian
https://www.dailycal.org/…/why-i-self-advocate-a-personal-…/
4. Why I Support - Helen Lee , Judy Xu, Carter Horan, Silvia A. Nolasco
https://www.dailycal.org/…/why-i-support-an-essay-collecti…/
5. A Letter to my Sister - Ashley Soliman
https://www.dailycal.org/…/a-letter-to-my-sister-a-persona…/

Make your Anxiety work for you


The thing about anxiety is that everyone gets it. Anxiety is inevitable, as stressors are unavoidable in today’s society. ...“This whole idea of ‘curing’ your anxiety … only serves to makes you feel worse in the long run.” Instead, Foran advises readers to “own your anxiety so that it no longer negatively impacts your life.”

Psi Chi Honor Society

Honored to be part of the Psychology Honor Society. 
Induction Ceremony presided by Pyshcology Department Chair



Mental-Cripple

The term "mental cripple" has been used historically as a derogatory term to refer to people with intellectual or cognitive disabilities, and was often used in a way that reinforced negative stereotypes and discrimination against this population.

The term mental-cripple was used to refer to autistics as seen in this 1965 nice-page photo essay in Life Magazine featuring Dr Ivar Loovas and ABA therapy. 





The R-Word

The use of the R-word slur ("retard") to refer to people with intellectual disabilities has a long and complex history. The term "retard" is derived from the word "retarded," which was originally used as a medical term in the late 19th century to describe individuals with intellectual disabilities.

However, the R-word quickly became a pejorative and was used to demean and dehumanize people with intellectual disabilities. The use of the R-word as an insult became more widespread in the mid-20th century, particularly in the United States, as it became more common to institutionalize people with disabilities.

Throughout much of the 20th century, the R-word was used in official language, such as in medical diagnoses and educational assessments. However, in recent years, there has been a shift towards using more respectful and person-centered language to refer to people with disabilities.

Many disability advocacy groups have worked to raise awareness about the harmful effects of using slurs like the R-word and as a result, there has been a decline in the use of the term in mainstream culture. In 2010, President Barack Obama signed "Rosa's Law," which replaced the term "mental retardation" with "intellectual disability" in federal health, education, and labor policy.

Despite these changes, the use of the derogatory R-word still persists in some communities and can have a harmful impact on people with intellectual disabilities and their families. 



Neurominority

 


The term "neurominority" refers to individuals who have atypical neurological differences, but are not necessarily considered to be a disorder or a pathology. This can include individuals with autism, ADHD, dyslexia. Neurominority is often used in the context of neurodiversity, which emphasizes the value of diversity in neurological functioning and the need for societal acceptance and support for individuals with neurological differences. The term "neurominority" is intended to promote a more positive and accepting view of neurological differences and to reduce stigma and discrimination. 

The Feeble Minded

The term "feeble-minded" was commonly used in the United States and Europe in the late 19th and early 20th centuries to describe individuals who were perceived to have intellectual disabilities, developmental disabilities, or mental illnesses. The term was intended to be a catch-all phrase for a variety of conditions that were poorly understood at the time, and was often used to refer to people who were deemed socially or morally "undesirable".

The use of the term "feeble-minded" was deeply stigmatizing and contributed to the marginalization and oppression of disabled people. The term was often used to justify forced institutionalization, sterilization, and other forms of eugenic control over disabled people, as well as to deny them basic human rights such as education, employment, and the right to marry.

In the United States, the term "feeble-minded" was used in the landmark 1927 Supreme Court case Buck v. Bell, in which the Court upheld the constitutionality of forced sterilization of individuals deemed "feeble-minded" and "unfit" to reproduce. The decision gave legal justification for the widespread practice of eugenics, which resulted in the forced sterilization of tens of thousands of people in the US and Europe.

The consequences of the use of the term "feeble-minded" were devastating for disabled people and their families. Many were subjected to forced institutionalization, where they suffered from abuse, neglect, and social isolation. Others were sterilized against their will, which had lasting effects on their physical and mental health, as well as their ability to have children.

The term "feeble-minded" fell out of use in the early to mid-twentieth century as medical and psychological professionals began to adopt more standardized and scientific classifications for intellectual disabilities. However, the use of the term persisted in some legal and bureaucratic contexts until the 1970s, when the Rehabilitation Act of 1973 mandated the removal of discriminatory language from federal laws and policies related to individuals with disabilities. Today, the use of terms like "feeble-minded" is generally considered outdated and offensive.



Ideas to mull over


 

Vagaries of English Phraseology: Journey of An Autistic through GrammarLand


from 
https://www.dailycal.org/2019/04/07/vagaries-of-english-phraseology-a-personal-essay/

Vagaries of English Phraseology: Journey of An Autistic through GrammarLand


My introduction to the world of academics was rather late, since I learned to communicate via typing for the first time in my life only after I was a teenager. I was stuck in a silent, non-communicative world of autism until then.

My first attempts at typing were, at best, fragments. The focus was communication for this nonspeaking boy with autism. I’d never had conversations with the outside world before. I was as excited as a toddler just learning to speak. No one, least of all me, cared for the things called “punctuation,” “grammar” or “semantics.”

There would be odd spaces, words that ran together, an occasional comma or period, sentence fragments and all. Bursts of thought came gushing out and it was important to get the key words out rather than worry about a well-structured sentence. My impulsive and hyperactive body did not make for smooth typing either. My finger would accidentally hit the caps lock key and a few uppERcase letters would appear in the middle of the word as I slowly typed.

No one, least of all me, cared for the things called 
“punctuation,” “grammar” or “semantics.”

But communication was opening up my world, so I didn’t quite care. And when I started typing short pieces and poems, it was all in lowercase.

You see, using uppercase involved the use of two fingers: one on the shift key and the other on the letter key. But I was a one finger typer — a lone index finger on my right hand roamed the QWERTY keyboard, searching for and hopping slowly from letter to letter.

I soared in the power the written words afforded me. My written word substituted the spoken word. People never said pause or comma when they spoke so I figured I need not worry.

With the ability to communicate came the expressed longing for education. When the transition from special education took place, I leapt into eighth grade mainstream academics with anticipation and glee — straight into the arms of Shakespeare, algebra and biology.

An unexpected side of pedantics then reared its head — there was demand for these things called “grammar” and “punctuation.” Grammar was hardly the thing to teach in my former special education world. In special education, I was thought capable of only learning C-A-T spells cat and D-O-G spells dog, and single digit addition like 8+2 = 10.

My mind wrapped around a whole host of new terminology that was part of mainstream academics. Bits of sentences linked to grammar terms, however, simply had no relevance for me.

Grrr!  Gerunds were strangers that growled at me.
Modifiers dangled for some reason.
Mood was an imagined subjunctive
instead of happy every season.
Why were the verbs tensed?
I told them, don’t stress, just meditate.

“Is language not something to enjoy, rather than to be dissected like a frog?” I moaned. Did we have to reduce a sentence to a string of grammar terms?

Bursts of thoughts flow from the brain
Authority insists, must confine to rules
Macrocosm bound by microcosm chain
Drown in grammar phraseology
Lost in punctuation terminology

Essays needed punctuation and spell check; it was mandatory. I needed to bring my other index finger into play to hold down that shift key. Even punctuation like the lowercase comma had their issues. 

Sometimes the Oxford comma was needed by the teacher and at other times, it was a no-show. I wondered if the poor comma made the journey from Oxford, England to the Bay Area each time it was needed.

Word processor spell checks somewhat came to my rescue. I enjoyed the composition, literature and vocabulary parts of English.

but grammar terminology —
— definitely, not in my list of graces.
In a strange new world I was navigating.

It was in an American literature class that I first met e e cummings. The first poem I read by him was “in Just-.”

His poetry confounded me. A first glance, I sat up and wondered, “IS THIS WRITTEN BY A BOY WITH AUTISM — with poor fine motor ability like me? He uncapitalized, words ran together, there were white spaces and a general lack of punctuation. I was baffled and nonplussed, absolutely fascinated. I gaped and stared at the poem on the page.

What was going on and who was this person?

How did such a poem by a person with fine motor challenges make its way into my school textbook?

I soon discovered that e e cummings was a famous poet who intentionally decried grammar convention and punctuation. Even his name was all lowercase. No one had liked him initially, so he had to self-publish. But his unconventional style ended up being much admired by generations of critics thereafter.

There was meaning in his very lack of punctuation 
which gave me a lot of courage. Maybe I need not conform.

There was meaning in his very lack of punctuation which gave me a lot of courage. Maybe I need not conform. Perhaps my autism challenges could be transformed into strengths along the way. I just had to — had to — write in kind. I wrote the following poem in response to cummings’ assertions in his poem “since feeling is first“ and wrote it in the nonconformist style of his other poem “in Just-.”


noPeriods, Period
death’s no parenthesis
asserts e e cummings.
         actually
death
is
    a
        comma
                           an
   ellipsis
                                                                       whitespace
aPause
as the soulRenewsBody

life’s no paragraph
avows e e cummings
            just face it
life — is
   a
        smorgasbord
    no grammar syntax
       …just flows…..
    noPeriods. Period.
says  e e hari

I have to thank e e cummings for giving me additional perspectives on breaking the boundaries. “it takes courage to grow up and become who you really are,” he once said. 

I can break free to just be me.

Contact Hari Srinivasan at hari@dailycal.org.

8th Annual Autism Walk at UC Berkeley

Giving an Intro Speech at the Autism Run
Hi everyone. My name is Hari Srinivasan and I’m a student here at Cal. I also write for the Daily Cal.
Berkeley is the birthplace of the disability rights movement and autism is one of the fastest growing neurodevelopmental disabilities today. Autism in all its forms has a voice and we want to make it heard. Did you know my friend David and I are the first two non-verbal students with autism here at Cal. It goes to show that autism too is a diversity category with the wide range of neuro diverse minds that comes with it. Only with more exposure to individuals on the spectrum, will there be a change in mindsets and greater acceptance. Having students with autism can be a win win for all.

When I turned up for the autism walk last year, I did not even know that there was a spectrum organization here at Cal. Since then, I have been doing a wonderful walk with this student organization and learning about the other interesting activities being done in the community for the autism population. I started off on the autism acceptance committee where I did tabling and flyering for the first time in my life. This semester I am actually teaching a class on autism to 20 neurotypical students.

Autism is like a cocoon that morphs into all sorts of unexpected colorful butterflies. If you notice our new logo is a butterfly. The butterfly effect says a small local change can lead to profound and complex changes around the world. That is what you are all doing here today by participating. You are all part of the butterfly effect that will change the way autism is perceived, understood and accepted.

Thank you for making it here today.


THE AUTISM BOARD AT UC BERKELEY

Autism Run Participants

Prepping Label for runners before the run. Opening safety pins is tough work.

Jordan, my fellow DeCal student teacher

The Autism Board


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Crip Time

 Crip Time

"Crip time"  refers to the concept and practice of disability culture and community, which challenges the ableist notion that time is fixed and linear, and recognizes that different bodies and minds experience time differently.

It acknowledges that disabled people, including autistics, often need more time to accomplish tasks and may have to adapt their schedules and routines to their own unique abilities and limitations. Crip time also challenges the notion that productivity and efficiency should be prioritized over rest and self-care.

"Rather than bend disabled bodies and minds to meet the clock, crip time bends the clock to meet disabled bodies and minds." Alison Kafer 

Essentially, Crip Time is a shift towards valuing and centering the needs and experiences of disabled individuals, rather than expecting them to conform to ableist norms and standards.

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Plain Language Version

What is "Crip Time"?

"Crip time" is an idea from disability culture that says not everyone experiences time the same way. It challenges the usual way of thinking that time is strict and always the same for everyone.

Crip time recognizes that disabled people, including those with autism, often need more time to do things. They might need to change their schedules and routines to fit their own abilities and limitations. It also says that it's okay to prioritize rest and self-care over always being productive and efficient.

As Alison Kafer says, "Rather than bend disabled bodies and minds to meet the clock, crip time bends the clock to meet disabled bodies and minds."

In simple terms, Crip Time means valuing and focusing on the needs and experiences of disabled people, instead of expecting them to fit into strict, ableist time schedules and standards.

Delays in Diagnosis

Delays in Diagnosis


Girls, BIPOC, lower SES
  • Delays in Dx → Impacts access to early intervention services (up to age 5)
  • Girls: Traditionally thought to affect only males.
  • BIPOC & lower SES - Access to Healthcare
  • Blacks - mis dx as “Conduct Disorder” instead of ASD
  • Access to state services only if dx before age 22
Dx Later in Life (upto even Geriatric years)
  • Later years - dx is a relief, an explanation of “not fitting in”, provides a sense of community.

Camouflaging and Masking


 



What is it.

Camouflaging or masking refers to the process by autistics learn to hide or suppress their autistic traits or behaviors in order to fit in and appear more neurotypical  Essentially, it is the mimicking of NT behaviors. This can include things like suppressing stims (repetitive movements or sounds), forcing eye contact, or learning and mimicking social scripts or body language in order to appear more socially adept.

Why?

Masking or camouflaging is often a coping strategy used by autistics to navigate social situations that can be overwhelming or challenging. It is a means to fit-in and also a question of safety, as the display of atypical behaviors can lead to negative reactions from others.  

Consequences. 
It can also be exhausting and can lead to feelings of anxiety, depression, and burnout.

Do only certain "type" of autistics engage in masking/camouflaging?
No. Masking and Camouflaging is engaged in by autistics across spectrum. 

People with higher support needs just may be less adept at pulling it off, but everyone has the desire to be safe from potential negative consequences. 

Does sex play a difference. 
Recent research has also suggested that  females are able to camouflage better which results in late-diagnosis. 


Autistic Savant

  


A savant is a person who demonstrates splinter skills/ exceptional abilities / prodigious talent/ giftedness in one particular area (eg:  music, art, mathematics, or memory), despite having significant disabilities or challenges in other areas of functioning, such as social or communication skills. 

Savant abilities are often associated with autism and the word savant is used to describe autistics who have remarkable talents or skills that are rare or difficult to explain. 

Examples of Autistic Savants
  • Daniel Tammet - a writer and mathematician who has exceptional abilities in numerical and linguistic skills. He has authored several books and is known for his ability to recite pi to over 22,000 digits.
  • Stephen Wiltshire - an artist who has an exceptional photographic memory and ability to draw detailed and accurate cityscapes from memory after only a brief aerial viewing.
  • Kim Peek - known as the inspiration for the character of Raymond Babbitt in the movie "Rain Man", Peek had an exceptional memory for facts and details, including memorizing 12K books and is an expert in 15 subjects.  Used to read 2 pages simultaneously which took him just 8 seconds. 

While savant abilities can be impressive and unique, it is important to recognize and value the full range of abilities and strengths of all autistics and other disabled people. 

Busting Myths:
  • Not every autistic is a savant
  • Not every autistic is a software genius. 

Infantile vs Regressive Autism


 Autism Lexicon

Infantile autism, also known as classic autism, is characterized by significant impairments in social interaction, communication, and the presence of restricted, repetitive behaviors. It is typically diagnosed in early childhood, before the age of three. Core symptoms often include delayed or absent speech development, challenges in engaging in typical social interactions, and a preference for routines or repetitive movements.

Regressive autism, also termed late-onset or acquired autism, involves a marked loss of previously acquired developmental skills, particularly in social communication and interaction. This regression typically manifests between 15 and 30 months of age. Children may initially develop normally but then experience a decline in verbal communication, social engagement, and may exhibit decreased eye contact, along with an increase in repetitive behaviors. [Read more on Regressive Autism

PlainSpeak

Infantile autism, or classic autism, is a type of autism diagnosed early, usually before a child turns three. Children with this condition often have delayed speech, find it hard to interact socially, and may show repetitive behaviors like hand-flapping or lining up toys.

Regressive autism happens when a child starts developing normally but then loses skills they once had, especially in talking and interacting with others. This usually occurs between 15 and 30 months old. A child might stop using words they knew, become less interested in playing with others, avoid eye contact, and start showing repetitive behaviors. This sudden change can be very challenging for both the child and their family. [PlainSpeak: Read more on Regressive Autism]