Harmony of the Autism Rhythmic Mind

Harmony of the Autism Rhythmic Mind

(Refrain)

In the rhythm of minds, we find our song,

Autism's beat, where we all belong.

Yeah, yeah. Uh-huh.

In minds unique, like constellations so rare,

Autism's mind, it's everywhere.

Questions bloom, in rhythm and rhyme,

Different beats, in every time.

(refrain)

In the tapestry, we find our voice,

A vibrant pulse, our unique rejoice.

Unfolding universes in our mind,

Patterns merge, understanding we find.

(refrain)

Autism's gaze, sincere and deep,

Into mysteries, fearlessly we creep.

In every question, a beacon's glow,

Autism's minds, together, we grow.

(refrain)

Embracing disability, let's learn and flow,

Autism's minds, new insights show.

In the rhythm of thoughts, dreams gleam,

In the poetry of life, we find our dream.

(refrain)

https://www.peasepress.com/product-page/essential-truths-the-bay-area-in-color

 

Inclusivity Mindset

Inclusivity isn’t a box to be checked, it’s a mindset to be embraced. Let’s approach each day, each decision, with the intent to foster spaces where every individual feels seen, heard, and valued - Victor Pineda

 

The Complex Terrain of Muscle Contraction - Insights from Disability

(Based on topic covered in Neuroanatomy Class along with some additional disability perspectives. )

In the world of biology, muscle contraction is a fundamental process, enabling us to move and function. The way our muscles contract, however, can lead to various consequences, especially when disrupted by factors like bacterial infections.

Muscle contractions are driven by motor units. Whether the contraction is strong or weak depends on how many of these units are activated. So a fine precise motor action requires small number of units activated and need little strength.

Tetanus, caused by bacteria, takes this natural muscle contraction process to an extreme, forcing every single motor fiber in a muscle to contract simultaneously, causing intense pain that is hard to put into words.

Understanding muscle pain takes us to the basics of cellular respiration. Muscles, like all cells, need oxygen, which is supplied through arteries. When a muscle contracts and restricts this oxygen supply, it creates a problem. The muscle cells continue to function, breaking down glucose in the absence of oxygen. However, this process produces lactate, leading to a burning sensation, indicating the body's distress.

This pain can have severe consequences. In intense muscle contractions, essential muscles like the diaphragm, responsible for breathing, can weaken. Chest muscles may become so tense that they hinder the natural process of inhaling and exhaling.

In the complexity of our body's workings, this delicate balance between muscle contraction and relaxation defines our abilities. Understanding these intricacies not only enhances our knowledge of our biological marvel but also emphasizes the need to appreciate and preserve the balance that allows us to move and function seamlessly.

There exists a parallel narrative, one that often goes unnoticed — the experience of autistics. Consider a autistic whose sensory perceptions are heightened and processed differently. The involuntary muscle contractions experienced by autistics might not only induce physical discomfort but also trigger heightened sensory responses, amplifying the distress. In such cases, the pain isn't merely a physiological phenomenon; it extends into the realms of sensory overload, creating an overwhelming and sometimes unbearable experience.

Understanding muscle contraction through the lens of disability offers profound insights into the human experience. It urges us to delve deeper, to acknowledge the diverse ways in which individuals perceive and process pain. In doing so, we foster empathy and compassion, paving the way for inclusive healthcare practices that cater to the unique needs of every individual, irrespective of their physical or neurological differences. 

 

https://www.peasepress.com/product-page/essential-truths-the-bay-area-in-color

The Impact of Stereotype Prejudice Discrimination

Stereotype, prejudice, and discrimination are interconnected concepts that play a significant role in shaping attitudes and behaviors toward individuals or groups based on perceived characteristics such as race, gender, religion, or disability.

Stereotype

Stereotype refers to a widely held and oversimplified belief or mental image about a particular group of people. Stereotypes often involve generalizations and assumptions about the characteristics, behaviors, or abilities of individuals within that group. For example, the stereotype that women are less competent in technical fields is a pervasive belief that can lead to biases in hiring decisions and educational opportunities. Another prevalent stereotype is that challenges in speaking ability (a function of the oral-motor muscles) amongst many autistics must equal low cognitive ability. Stereotypes can be overly positive too (such as all autistics must be tech geniuses) and negative, but they tend to oversimplify and dehumanize individuals by reducing them to a set of assumed traits.

Prejudice

Prejudice, on the other hand, involves a negative emotional or evaluative response directed at individuals or groups based on their perceived attributes or membership in a particular category. It represents an attitude or a set of attitudes characterized by bias, animosity, or irrational dislike. Prejudice can manifest as feelings of hostility, resentment, or fear toward the target group and often results from stereotypes. For instance, a person who holds a prejudice against a certain ethnic group may harbor negative emotions and beliefs about its members, leading to discriminatory behaviors or attitudes.

Discrimination

Discrimination encompasses actions or behaviors that treat individuals or groups unfairly or unjustly based on their perceived attributes or group membership. Discrimination can take various forms, including institutional discrimination (e.g., discriminatory laws or policies), interpersonal discrimination (e.g., unfair treatment by individuals), and microaggressions (subtle, often unintentional acts of discrimination). Discriminatory actions can result from prejudiced attitudes or stereotypes and can have serious consequences, such as limiting opportunities, perpetuating inequality, and causing harm to individuals' physical and mental well-being. Addressing discrimination involves efforts to promote equality, enforce anti-discrimination laws, and challenge biased attitudes and behaviors in society.

Why It Matters

Understanding these three concepts—stereotype, prejudice, and discrimination—is essential for addressing social and systemic issues related to inequality and bias. It is crucial to recognize the role these concepts play in shaping individual and societal attitudes and to work toward creating a more inclusive and equitable world where individuals are judged based on their unique qualities and contributions rather than on stereotypes or prejudiced beliefs.

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Versions of this article: For  Academic/Scientific Audience and #PlainSpeak for Lay Audience

Stereotype Prejudice Discrimination - What They Mean and How They Affect People

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Plain Language Version 

Stereotype, Prejudice, and Discrimination: What They Mean and How They Affect People

These three words—stereotype, prejudice, and discrimination—are connected and help explain how people form opinions and act toward others based on things like race, gender, religion, or disability.

Stereotype

A stereotype is a simple and often wrong idea about a group of people. It means thinking everyone in that group is the same. For example:

• Gender: Thinking women aren't good at technical jobs.
• Disability: Thinking all autistic people can't talk well and are less smart.
• Positive Stereotype: Believing all autistic people are tech geniuses.

Even if stereotypes can sometimes seem positive, they are still harmful because they oversimplify people and don’t see them as individuals.

Prejudice

Prejudice means having negative feelings or attitudes toward someone just because they are part of a certain group. It’s about having unfair dislikes or biases. For example:

• If someone doesn’t like people from a certain ethnic group, they might feel anger or fear toward them.
• Prejudice often comes from stereotypes and can make people act unfairly or meanly.

Discrimination

Discrimination is when people act unfairly toward others because of their group membership. It can happen in different ways:

• Institutional Discrimination: Unfair laws or policies that hurt certain groups.
• Interpersonal Discrimination: Unfair treatment by other people, like bullying or exclusion.
• Microaggressions: Small, often unintentional actions or comments that are hurtful.

Discrimination can limit opportunities, keep inequalities alive, and harm the well-being of those affected.

Why It Matters

Understanding stereotypes, prejudice, and discrimination helps us recognize and fight against unfair treatment. It’s important to:

• See people as individuals, not just members of a group.
• Promote fairness and equality.
• Challenge biased attitudes and behaviors.

 

https://www.peasepress.com/product-page/essential-truths-the-bay-area-in-color

The Problem with DEI

DEI initiatives often assume that if you open the door, targeted people will automatically rush in. But these targeted population were told for so long that this door did not belong to them, or that its too hard for them, you are not intelligent /capable enough;  if this has been the messaging of the last 100 years, there is going to be unconscious bias, where part of you starts believing this to be true (like when women are told prior to a math test, that women are bad in math, they end up doing worse on the test than if not told that info).

So the initiative has to be both opening the door and also nudges from other end saying, you can do this, we welcome you and will work to support you, demystifying the process of what the door is and how to go about even approaching that door.

And why don't DEI initiatives automatically include disability or when disability is included, its often as an afterthought when it's pointed out that it's probably not PC to exclude. Why is disability not recognized as a very very historically marginalized group at the onset. The fact of a childhood disability for instance means the exclusion starts in childhood itself which perpetuates and intensifies the exclusion as you age. (Somehow the fact of disability transcends even the color of your skin and you are pushed to the bottom of the food chain). 

My Op-Ed in Fortune on Hybrid as Accommodation

 

https://fortune.com/2023/07/27/flexible-work-critics-using-same-arguments-were-used-oppose-disabled-ramps-closed-captioning-equity-access-never-optional-remote-work-careers-hari-srinivasan/

Feedback on this article

Well said! I think you bring up important factor of hybrid work environments. I think that due to the pandemic and the proof that hybrid works and happens. I think a strong argument could be made for hybrid a ‘reasonable’ accommodation.

Hari! Great article highlighting an important issue that is impacting workplaces and activities like conferences nationwide. I will share with colleagues who are working on this issue.

Well done, again!


Wonderful article, Hari! Thank you! I shared it with my husband, who is a business owner and has chosen to keep the company remote post-pandemic. And I shared it with my son, who is a neurodiverse activist who has many friends with a range of neurodiversities. Really appreciate you publishing your perspective.

Love it


This is great Hari! We'll add this to our social media queue.


Congrats on this outstanding, informative op-ed!


Great article, congratulations!


Congrats on this compelling piece of advocacy! I've just tweeted about it.


Fantastic piece, Hari. I love your openness—I learn so much from your writing.


Hi Hari, Great article on an important topic that’s very relevant to all of us nowadays!!


Great Op-Ed Hari! It’s super interesting and compelling!

Congratulations, Hari! -- your piece raises so many important issues

So helpful to reframe return to inperson as part of lost opportunity to consider accommodations for autistic and disabled plus many vulnerable groups (parents!)

Congrats Hari! Great perspective and what a fantastic platform to share it in.

Congrats and great to see this piece published!

Hari, Bravo! What an honest op-ed that not only highlights the hybrid versus remote debate but also voices the predicament that academics/researchers with disabilities experience with travel and dissemination of their work.

This is such a thoughtful piece, Hari. Thanks so much for sharing it.

This is GREAT. Bravo.

Great article!'

Thanks so much for sharing Hari - an important article

Hi Hari!. Congrats on this compelling piece of advocacy! I've just tweeted about it.

Hi Hari, Congrats on this outstanding, informative op-ed! All the best,

Thanks for sharing this good paper.I love it

Love it

Thanks so much, for sharing this, Hari! Great article highlighting an important issue that is impacting workplaces and activities like conferences nationwide. I will share with colleagues who are working on this issue.

Thank you so much for writing this, Hari

ADA 33

"It is hard for younger generations to imagine a world without the ADA, but before it existed, if you were disabled, stores could turn you away and employers could refuse to hire you. Transit was largely inaccessible. America simply was not built for all Americans, but courageous activists pushed to change that. In 1973, the Congress passed the landmark Rehabilitation Act, banning discrimination by any federally funded entity. Then, 17 years later, a bipartisan group of legislators persevered in passing the ADA, banning discrimination against people with disabilities in most areas of public life, from the workplace and public schools to public transit and telecommunications.

The ADA has had a profound impact, but we still have much more work to do...."

 https://www.whitehouse.gov/briefing-room/presidential-actions/2023/07/25/a-proclamation-on-anniversary-of-the-americans-with-disabilities-act-2023/

Psychology Today Article.

https://www.psychologytoday.com/us/blog/giving-voice/202307/dignity-remains-elusive-for-many-disabled-people

 

Ableism

Ableism refers to systemic discrimination and prejudice against individuals with disabilities, including autism, often manifesting through societal norms, policies, and practices that marginalize and devalue their experiences and abilities.

PlainSpeak: Ableism is when people with disabilities, like autism, are treated unfairly or seen as less capable, because of biased attitudes and rules in society.

Most Posts on [Ableism]

Media Mention

 

The need for global solutions. Disability is not an american phenomena.

Disability in Strength

A new mural titled “Disability is Strength, at Oakland Airport honors visionaries who helped 

build the movement for disability rights and independence, and present a vision for a future of full inclusion, rights and justice.The mural features disability rights pioneers Ed Roberts, Judith Heumann and Brad Lomax.

Judy Heumann, one of the great and recently deceased disability rights early advocates once said, "Independent Living isn't doing everything by yourself – it's being in control of how things are done."

Read on at https://www.oaklandairport.com/mural-exhibit-featuring-disabled-artists-and-disability-rights-activists-hung-at-the-oakland-airport/

Disability Rights Movement

The disability rights movement (DRM) refers to a social and political movement advocating for equal rights, inclusion, and improved quality of life for people with disabilities. The movement seeks to challenge and eliminate discrimination, stigmatization, and barriers that prevent disabled folks from fully participating in society.

DRM emerged in the late 1960s and gained significant momentum in the 1970s and 1980s. One of the key milestones was the passage of the Rehabilitation Act of 1973 in the United States, which prohibited discrimination on the basis of disability in programs receiving federal funding. This was followed by the Americans with Disabilities Act (ADA) in 1990, which further strengthened protections and rights for individuals with disabilities in various aspects of life, including employment, transportation, public accommodations, and telecommunications.

DRM focuses on promoting the principles of accessibility, independence, self-determination, and inclusion. It advocates for reasonable accommodations, accessibility in the built environment, educational opportunities, employment opportunities, healthcare access, and overall social acceptance and support for people with disabilities.

DRM has made significant advancements in raising awareness, changing societal attitudes, and implementing legal protections for people with disabilities. However, there are still ongoing challenges and areas for improvement to ensure full inclusion and equal opportunities across all aspects of life.

Dear Colleague

https://www.justice.gov/crt/case-document/dear-colleague-letter-online-accessibility-postsecondary-institutions 

On May 19, 2023, the Justice Department and the Department of Education jointly issued a Dear Colleague Letter reminding colleges, universities, and other postsecondary institutions to ensure that their online services, programs, and activities are accessible to people with disabilities.

Letter at chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://www.justice.gov/crt/case-document/file/1584491/download

 

Principle of inverse effectiveness

[Concepts in Sensorimotor Research]

The principle of inverse effectiveness is a phenomenon observed in multisensory integration, which refers to how our brain combines information from multiple sensory modalities, such as vision, hearing, and touch. According to this principle, the strength or effectiveness of multisensory integration is greatest when the individual unisensory cues are weak or ineffective on their own.

Ergo, when the individual sensory cues are relatively weak or have low impact, the brain tends to rely more on multisensory integration to enhance the perception and processing of the stimuli. eg: people with hearing loss exhibit increased visual abilities, and increased crossmodal activation within the auditory cortex. 

This principle suggests that the brain optimally integrates sensory information from multiple modalities to improve perception and increase sensitivity, particularly in situations where the sensory cues are less informative or ambiguous.

The principle of inverse effectiveness highlights the advantage of combining multiple sensory inputs in situations where the individual senses may provide limited or unreliable information. By integrating sensory cues from different modalities, the brain can enhance the overall perception and make more accurate judgments about the external environment. This principle has been observed across various species and sensory domains and is believed to reflect a fundamental property of multisensory processing.

The Grandmother of the Disability Rights Movement turns 103

 Zona is the mother of Ed Roberts, who started the very first Disabled Students Program at UC Berkeley as well as starting the Independent Living Movement. 

So if Ed is the father of the Disability Rights Movement, she is the grandmother behind it all. 

https://alumni.berkeley.edu/california-magazine/online/meet-zona-roberts/?utm_source=mag-newsletter&utm_medium=email&utm_campaign=california

Imbecile

A history lesson in degrading terminology around disability. 

The term "imbecile" has historically been used as a diagnostic label for neurodevelopmental disabilities like autism. 

Origins: The term coined in the 18th century by French physician Philippe Pinel, who used the term to describe individuals who were intellectually disabled but still able to function in society with some support. However, over time the term came to be used more broadly to describe individuals with a range of intellectual disabilities, including those who were severely impaired and unable to function independently.

Justify Eugenics: The term was widely used in the US and Europe during the 19th and early 20th centuries and was used as part of a broader eugenic movement that sought to control and eliminate disabled people from the population. The use of terms like "imbecile" and "moron" were used to classify individuals based on their perceived level of intelligence, and were used to justify forced sterilization, institutionalization, and other forms of discrimination.

One of the most well-known cases involving the use of the term "imbecile" was the Supreme Court case Buck v. Bell, in which the court upheld the constitutionality of forced sterilization for individuals classified as "imbeciles." The decision paved the way for similar laws in other states, and resulted in the sterilization of tens of thousands of individuals with disabilities.

Buck v. Bell (1927): This case involved the forced sterilization of a woman who was deemed "feeble-minded" by the state of Virginia. In its decision, the Supreme Court upheld the constitutionality of Virginia's sterilization law and stated that "three generations of imbeciles are enough." (274 U.S. 200)

Mandated Removal in 1970s: The term "imbecile" fell out of use in the early to mid-twentieth century as medical and psychological professionals began to adopt more standardized and scientific classifications for intellectual disabilities. However, the use of the term persisted in some legal and bureaucratic contexts until the 1970s, when the Rehabilitation Act of 1973 mandated the removal of discriminatory language from federal laws and policies related to individuals with disabilities. 

Today, the use of terms like "imbecile" is generally considered outdated and offensive.

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Plain Language Version 

The History of Hurtful Words About Disability

The word "imbecile" used to be a medical term for people with intellectual disabilities, like autism.

Origins

• In the 18th century, a French doctor named Philippe Pinel used "imbecile" to describe people who had some intellectual disabilities but could still function in society with help.
• Over time, the term was used more broadly to describe people with all levels of intellectual disabilities, even those who couldn’t live independently.

Eugenics Justification

• In the 19th and early 20th centuries, the term "imbecile" was widely used in the US and Europe.
• It was part of the eugenics movement, which aimed to control and eliminate disabled people from the population.
• Words like "imbecile" and "moron" were used to label people based on their perceived intelligence.
• These labels were used to justify forced sterilizations (preventing people from having children), putting people in institutions, and other forms of discrimination.

Buck v. Bell Case

• One famous case was Buck v. Bell in 1927.
• The Supreme Court allowed the forced sterilization of a woman called "feeble-minded" by the state of Virginia.
• The court said, "three generations of imbeciles are enough," leading to many more forced sterilizations across the country.

Changes in the 20th Century

• In the early to mid-1900s, medical and psychological professionals began using more scientific and respectful terms for intellectual disabilities.
• However, the term "imbecile" was still used in some legal documents until the 1970s.
• The Rehabilitation Act of 1973 required the removal of discriminatory language from federal laws and policies about people with disabilities.

Today

• Today, using words like "imbecile" is considered outdated and offensive.
• It’s important to use respectful and accurate language when talking about people with disabilities.