Loved your talk Hari! Couldn't agree more about how much needs to change!




 

Next IACC meeting on July 10

 


 



https://www.dailycal.org/2018/03/15/first-transitions

The first semester at a vast university such as UC Berkeley is hard for most students. We all fear the unknown, which brings about its own set of anxious thoughts. When you factor in my type of autism challenges, the process is even more nerve-racking. We autistics fundamentally have difficulty with handling transitions. A transition is like a doorway: The other side is full of potential unknowns, and our unpredictable autism bodies may not cooperate with us even if we have crossed this doorway before. It’s the idea of change itself in addition to the actual change that comprises transition. The doorway latches on to our anxiety. As a child, I really did have a problem entering a building or a classroom. Even now, I rush through physical doorways. The metaphorical doorways for me now are the transitions that occur in everyday life, at college, at home and especially during travel. Interactions with people, trying new food, navigating the campus walkways and buildings all involve crossing a doorway. Last fall, a day before Golden Bear Orientation, or GBO, the Disabled Students’ Program, or DSP, had thoughtfully organized its own all-day event at Zellerbach Auditorium. But within half an hour of the program, I was completely overwhelmed at the thought of all the transitions I would potentially have to face. I rushed out and sat in the lobby for almost two hours before attempting to go back in. GBO was a hectic eight-day program with events and discussions that often started at 9 a.m. and ended at 11 p.m. I was surprised that I was able to handle most of them as well as I did. I think what helped was that I was able to return to Zellerbach Auditorium that first day, even if I had to miss two hours, rather than give up and go home — that gave me confidence. I had to stand in line outside Memorial Stadium for more than three hours on the first day of GBO, but I still went in. The incoming class was breaking the Guinness World Record for the largest human letter C. The systematic immersion at GBO helped prepare me for the semester. Then came the first day of classes. I was in Psychology C19: “Drugs and the Brain,” which is a popular class — there must have been about 800 students in Wheeler Auditorium that day. I was a nervous lone figure right at the back, very close to the exit, ready to bolt anytime. But at the same time, part of me was absolutely thrilled to be there. There is really no other way of handling transitions than systematic desensitization — repeatedly walking through the doorway and thinking through the steps before going in to reduce that unknown factor. I sat in the same seat at the back of Wheeler Auditorium for nearly half the semester before moving up row by row. I made it all the way to the fourth row by the end of the semester. I also realized that a large class offered lots of anonymity, which was a perfect cover for my offbeat autism mannerisms. There was enough ambient sound to cover any noise I was making. I actually ended up really liking Wheeler Auditorium. It is also quite thrilling to be learning in a classroom that held a Nobel Prize Ceremony. The first semester of college was tough, with its innumerable transitions, and it took a lot of kickstarts to get me going. I had introduced myself to my professors via email but it took me more than half the semester before I physically made it to their office hours just to say “Hi.” Taking anticipatory steps when possible really helped me. For instance, I worried about how a nonverbal individual like me would participate in a debate during one of my discussion sections. But I finally took on the role of delivering the opening statement for my team — that way, I could prepare ahead of time and let the text-speech app on my iPad be my voice. My exams are at a different testing site and in a room that was unfamiliar to me. DSP Proctoring took note of my concern and let me preview the exact room at Moffitt Library a few days prior to my first midterm. They also made sure that I was given that same room for all my exams last semester. Life is going to be full of transitions for us autistics. The only way to move forward is to proactively seek transitions. This semester, I have sought new doorways — writing this opinion column for The Daily Californian, for example, also entails attending staff meetings and editing sessions. I hope I can continue to attempt more doorways and become more at ease in stepping outside my comfort zone.

The Quirks of Sensory-Seeking, Hyperreactivity, and Hyporeactivity in Autism

The Quirks of Sensory-Seeking, Hyperreactivity, and Hyporeactivity in Autism


Ever found yourself irresistibly drawn to certain textures or making loud noises just because? Welcome to the fascinating world of sensory-seeking behaviors. For those of us on the autism spectrum, sensory input is like a buffet – sometimes we can’t get enough, and other times, we’d rather not touch certain dishes at all. 

Sensory-Seeking Shenanigans

Sensory-seeking behaviors are all about getting that sensory fix. Maybe it’s touching various textures or making loud noises. Personally, I find these actions a bit pointless, yet I’m driven to do them anyway. Why? It’s all about increasing our body needing arousal, increasing attention, or simply pleasure. Think of it as a proactive quest for sensory satisfaction.

Hyperreactivity Hijinks

On the flip side, we have hyperreactivity – an exaggerated response to sensory stimuli. When I was a kid, I refused to enter Indian grocery stores because the combined smell of spices was overwhelming (luckily no longer an issue). Similarly in childhood, the live fish smell in Chinese grocery stores made me gag. That’s hyperreactivity in action. It’s a reactive stance, where certain sensory inputs feel overpowering, leading to avoidance and defensive behaviors.

Hyporeactivity Mysteries

Then there’s hyporeactivity, where you’re barely aware of sensory stimuli that would normally get a reaction, for example, not noticing loud sounds or strong odors. And this can lead to sensory-seeking behaviors to feel regulated. It’s a reactive pattern too, but it’s like living in a sensory fog.

The Sensory Cocktail

Now, here’s the fun part – you can be hyperreactive to some stimuli and hyporeactive to others, all while engaging in sensory-seeking behaviors. It’s like a sensory cocktail! 

Personally, being Autism+ADHD means I get to experience the full spectrum. They say this combo might even deserve its own category (because why not add another label to the mix, right?).

Breaking It Down: Nature of Response

  1. Sensory-seeking is all about being proactive. Hyperreactivity and hyporeactivity are reactive, dictating how we respond to sensory inputs.
  2. Behavioral Outcomes: Hyperreactivity leads to avoidance or defensive actions, while hyporeactivity often results in seeking more sensory input.
  3. Coexistence: You can be hyperreactive to some stimuli, hyporeactive to others, and still engage in sensory-seeking behaviors. It’s a dynamic, ever-changing sensory landscape.

Navigating this sensory world isn’t always straightforward, but understanding these behaviors helps in creating a supportive environment that caters to our unique sensory needs. So, whether you’re rocking back and forth, avoiding certain stores, or seeking out specific textures, remember – it’s all part of the sensory adventure.