The nuances of research bias

 Research is exclusionary in many ways, limited by bias and so many boundaries in the name of being able to clearly see particular results. So, in reality who does it actually serve?

Loving Hari Srinivasan's article, and the nuanced things made clear when you read about his few experiences and insights caught in this one page.

Contemplation, one line a day

 Contentment is the kindness that comes with accepting others as they are. - Hari Srinivasan

 Optimism is not the absence of problems, but the belief that solutions can be found.

https://time.com/6299599/autism-research-limited-essay/

 

DSM v ADOS

Lexicon [Measures] DSM, ADOS

DSM-5-TR (latest version of DSM) and ADOS-2 (Autism Diagnostic Observation Schedule, Second Edition)  are two distinct tools used in assessment and dx of autism.

DSM-5-TR 

• Diagnostic manual that outlines the criteria for diagnosing ASD, including the presence of social communication deficits and RRB. 
• Serves as a reference for clinicians and researchers in making diagnostic decisions and ensures consistency in the diagnosis of ASD.

ADOS-2 

• Standardized observational assessment tool designed to aid in the diagnosis of ASD. 
• Administered by a trained professional and involves direct interaction with the individual  
• consists of a series of activities and social scenarios that allow the examiner to observe and evaluate the individual's communication skills, social interaction, play, and RRB. 
• It helps in determining whether an individual meets the diagnostic criteria for ASD and provides information to inform intervention and treatment planning.

ADOS-2 can be utilized as part of the diagnostic process, providing information to support the dx under DSM-5. Both tools are commonly used together to aid in the assessment and diagnosis of Autism Spectrum Disorder.

Related Posts: [DSM],[ADOS],[Measures]

Time Article Comments

 Umm, this is so well written and an incredibly important article!

BAM! Hari Srinivasan you are a gentleman, a scholar and an overall phenomenal advocate!!! Thank you for blazing the way for so many nonspeaking, minimally speaking and unreliably speaking people!

This is a MUST READ, featured in TIME MAGAZINE!

This is awesome Hari and so needed. Congrats on this! 

Wow, so incredible. I am a clinician in the greater LA area and provide psychological assessments, including ASD. Such a great read. 

You raise several issues about the limitations of research and the “hot mess” you describe, and also point to some solutions. I appreciate many of the ideas, especially the mobile labs and the joystick for binary decisions. 

Congrats! This is great!

Very well done. :-)

Fantastic

Congrats! That is super neat :) And kudos to you for being so open about your diagnosis and support needs. 

Congrats on the insightful op-ed! I loved the point, " If we are left out of research, we are left out of the solutions as well." I wasn't aware of the bias in autism research. 

What an outstanding article. Bravo!

Kindness is the key to unlocking the door to happiness

Stimming is not soothing

 I wish folks stop saying stimming is soothing. 

Stimming is soothing only upto a point. It quickly crosses over into OCD and is exhausting, mentally and physically draining, caught in this behavioral loop you cannot get out of.

Joy is the feeling of love and connection to all things

Contemplation, one line a day. #MentalHealth

 

Contemplation

 Amusement is the spice of life that adds flavor to our days. -Hari Srinivasn

 

The power of optimism lies in the ability to see the silver lining in every cloud.

Time Magazine Article

 https://time.com/6299599/autism-research-limited-essay/

My article in Time Magazine

" autism research has ... essentially oversampled the same, narrow band of what are considered the easily “researchable autistics,” and expected those findings (as well as the applications and interventions that resulted from them) to apply to everyone."

" If we are left out of research, we are left out of the solutions as well. "

Contemplation

Equanimity is the gratitude for all that life has to offer