IPASE - Psychotic-Like Anomalous Self-Experiences

Lexicon [Measures] -  IPASE

Used in psychology/psychiatry to capture subtle manifestations of psychosis-like experiences that do not meet the full diagnostic criteria for a psychotic disorder.

Submeasures include.

• Self-disorders: disturbances in the sense of self, including disruptions in self-awareness, self-boundaries, and self-other differentiation.
• Cognitive disturbances: cognitive anomalies such as thought interference, disorganized thinking, and difficulties in attention and concentration.
• Perceptual anomalies: perceptual disturbances such as hallucinations, illusions, and alterations in the perception of time or space.
• Thought abnormalities:  unusual or idiosyncratic beliefs, magical thinking, and experiences of thought control or insertion.

Limitations:

• self-report measures are subject to biases and inaccuracies.
• Not a dx tool.

Limitations wrt use in autism population

• While there may be autism features that appear to overlap with psychosis (eg: social communication deficits & RRB) they are not indicative of true psychosis. 

 

Compassion is the hand that reaches out to lift someone up

Towards a more Humane Society. Contemplating an emotion, 1 line a day. 

Our divided and conflicted world needs compassion more than ever.  #MentalHealth. 

 

Autism and GI Issues

There is a strong link between gastrointestinal (GI) issues and autism. Studies have shown that up to 90% of people with ASD have some type of GI problem, compared to about 20% of the general population. The most common GI problems seen in autism are constipation, diarrhea, abdominal pain, bloating, gas, vomiting, reflux, IBD, Celiac disease, food allergies and food intolerance. 

There are a number of possible explanations for the link between GI issues and ASD. One possibility is  an increased sensitivity to certain foods or food additives. Another possibility is an imbalance of gut bacteria, which can lead to GI problems. Additionally, autistics may have difficulty communicating their GI symptoms, which can make it difficult to diagnose and treat these problems.

Oddball Paradigm

The oddball paradigm is a cognitive research method involving the detection of infrequent, deviant stimuli within a series of standard stimuli, used to study sensory processing, attention, and cognitive control. It is widely used in autism research as it helps identify atypical neural and behavioral responses.

PlainSpeak: The oddball paradigm is an experiment where people detect unusual items in a series of regular items. It's used in autism research to understand how people with autism process information differently.

Read more about Oddball Paradigms

PlainSpeak. In plain language for the Lay Reader

For the scientific/academic reader

O friend

Today I got a email offering an appointment to the Scientific Committee of the 14th Autism Europe Congress 2025 to be held in Dublin, Ireland. The Autism Europe Congress is a triennial scientific conference bringing together stakeholders to discuss autism research. 

What I  especially loved was that the email started with "A chara" (a traditional opening to an Irish letter – translating as “O Friend”) and ended with "Mise leas mise" (a traditional closing to an Irish letter – translating as “It is I, with respect”). 

It is so affirmative and speaks to connections filled with kindness, which all of us need a lot more of. Will definitely be contemplating on those phrases more. Parallels to Metta (Buddhist), Kalyanamastu (Sanskrit), Ofa Lahi Atu (Tongan), Ubuntu (Bantu) or a new word I came across recently Takiwatanga (the Maori word for autism, which roughly means "in our own space and time").

Compassion is the balm that soothes the wounds of the world

Towards a more Humane Society. Contemplating an emotion, 1 line a day. 

Our divided and conflicted world needs compassion more than ever.  #MentalHealth. 

 

Ofa Lahi Atu

"Ofa lahi atu" is a phrase in Tongan that is often used to express deep love and respect.

The literal English translation of "Ofa lahi atu" is "much love to you", but its meaning goes beyond the words themselves. In Tongan culture, the expression is often used to convey a sense of gratitude, humility, and reverence for others, nature, and the divine.

In a philosophical sense, "Ofa lahi atu" can be understood as a recognition of the underlying unity and interdependence of all things. It suggests that love and respect are not only essential for personal relationships but also for the harmonious functioning of society and the natural world.

The phrase "Ofa lahi atu" can be relevant in the context of autism and disability by emphasizing the importance of love, respect, and interconnectedness. People with disabilities, including autistics, often face social, emotional, and physical challenges that can make them feel isolated and marginalized.

By expressing and acting with a feeling of "Ofa lahi atu" towards autistics, society can convey deep love and respect for autistics, affirm their dignity and worth as human beings. remind us that our interconnectedness extends beyond our immediate social circles and includes all.  It can inspire us to work towards creating a more inclusive and supportive society that values diversity, promotes empathy, and fosters mutual understanding.

Groups in the autism space community too needs to express and act with a mindset of “Ofa lahi atu’ towards each other, instead of the current vicious bickering between polarized groups of “who has the loudest voice” and undermining other groups. We can recognize each others unique strengths, be accepting of all challenges methodologies, and perspectives and work towards solutions that address a wide range of needs.

Spoon Theory and Autism

Spoon theory,  to elucidate the finite physical and emotional energy reserves available to individuals with disabilities or chronic illnesses. This model employs "spoons" as units representing a person's daily energy capacity, where each activity—ranging from basic self-care to complex tasks—consumes a certain number of spoons. Individuals with disabilities must strategically allocate their limited spoons to avoid energy depletion.

Spoon theory is a metaphor used to describe the  physical and emotional energy reserves available to individuals with disabilities. The theory was created by Christine Miserandino, a woman with lupus, to help explain to her friend what it was like to live with a chronic illness. 

This model employs "spoons" as units representing a person's daily energy capacity, where each activity—ranging from basic self-care to complex tasks—consumes a certain number of spoons. Individuals with disabilities must strategically allocate/budget their limited spoons to avoid energy depletion.

The theory has become a popular way for people with disabilities to explain their experiences to others, and it has also helped to raise awareness about the challenges faced on a daily basis. It also emphasizes the need for empathy and understanding towards people who may be struggling with challenges that affect their ability to function in day-to-day life.

In the context of autism, spoon theory provides a valuable lens for understanding the heightened energy demands associated with sensory processing difficulties and social interactions. Autistics often experience sensory overload from everyday stimuli, necessitating significant cognitive and emotional resources to manage these inputs. Consequently, routine activities such as grocery shopping or attending social events can rapidly deplete their energy reserves. These experiences can be likened to using up spoons, or units of energy, more quickly than someone without sensory processing issues might.

Additionally, social interaction can also be a source of stress and exhaustion for people with autism. Social situations can require a lot of cognitive processing and emotional regulation, which can also deplete one's energy reserves.  This metaphor underscores the need for empathy and tailored support strategies, recognizing the unique challenges faced by autistic individuals in energy management. 

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2 versions of this post

For Scientific/Academic Audience

PlainSpeak in plain language for lay audience

The uncertainty principle

The uncertainty principle is a fundamental concept in quantum mechanics, which states that it is impossible to simultaneously know the exact position and momentum of a particle with absolute certainty. This means that the more precisely we know the position of a particle, the less precisely we can know its momentum, and vice versa.

The uncertainty principle was first formulated by Werner Heisenberg in 1927 and is often expressed mathematically as: Δx * Δp >= h/4π, where Δx is the uncertainty in the position of the particle, Δp is the uncertainty in its momentum, and h is Planck's constant.

The uncertainty principle has important implications for the behavior of subatomic particles, as it means that they cannot be precisely described or predicted in the same way that macroscopic objects can be. Instead, quantum mechanics uses probabilistic descriptions to predict the behavior of particles, based on the wave function that describes the probability distribution of the particle's position and momentum.

The uncertainty principle also has broader implications for our understanding of the nature of reality, as it challenges our intuition and classical conceptions of how the world works. It has become a central concept in modern physics and has led to the development of many important technologies, including the scanning tunneling microscope and the laser.

Uncertainty and Autism -  A Quantum Perspective 

Kindness is the sunshine that brightens up the world

Compassion is the light that shines in the darkness of pain

 

Towards a more Humane Society.  Contemplating a different emotion and writing one line each day on it. #MentalHealth. This month is Compassion 

Temporal Binding Window and Autism

[Concepts in Sensorimotor Research]

Temporal binding window (TBW) refers to the specific time frame during which the brain integrates and processes information from different sensory modalities. It is the period in which the brain combines and links stimuli occurring close in time and attributes them to a single event. This window is crucial for the perception of synchrony and the formation of coherent perceptual experiences.

In autistics, research suggests alterations in the TBW due to difficulties in accurately perceiving and integrating sensory information across different modalities, leading to difficulties in forming a unified perception of the world.

One aspect of the TBW that has been extensively studied in relation to autism is audiovisual integration. Typically, individuals are sensitive to the relative timing of auditory and visual stimuli and can perceive them as belonging to a single event when presented within a certain temporal proximity. However, studies have shown that autistics may have a broader or more extended TBW. This means that they require a longer temporal proximity between auditory and visual stimuli to perceive them as synchronized.

This winder TBW has implication in terms of social communication and interaction since the perception of synchrony is crucial for understanding and interpreting non-verbal cues such as facial expressions, gestures, and vocal intonations. Difficulties in integrating sensory information across different modalities can also contribute to sensory processing issues commonly observed in individuals with autism, such as hypersensitivity or hyposensitivity to certain stimuli.

TBW may also influence higher-level cognitive processes such as attention, perception of causality, and the ability to predict and anticipate events. Disruptions in these processes can impact the ability to understand the temporal structure of events and may contribute to difficulties with executive functioning.

Ubuntu

I came across this word today in our Public Voice Fellowship Training. 

Ubuntu as a framework has so many things that apply to autism advocacy, research, inclusivity, belonging, and the need for increasing knowledge and solutions in the autism space. More specifically I want to highlight. 

• Community-based approach to support autistics and their families.
• Emphasis on empathy and understanding, belonging and inclusivity
• Collaboration and cooperation which means working together to increase knowledge and solutions across the autism space instead of this conflict and undermining that is going on. We can find solutions for everyone, its not a one-size fits all. 

Ubuntu is the "I" in the "We"

Ubuntu is a philosophy that originated in Southern Africa, particularly among the Bantu peoples of South Africa, Zimbabwe, and Zambia. It is a philosophy that emphasizes the interconnectedness of all things and the importance of community, compassion, and respect for others.

At its core, the philosophy of Ubuntu is based on the idea that a person is a person through other people. Its the "I" in the "We." 

This means that individuals are not defined by their own accomplishments or achievements, but by their relationships with others and their contributions to the community. In other words, one's sense of self is deeply tied to their interactions with others and their ability to make a positive impact on the world around them.

Ubuntu also emphasizes the importance of compassion, empathy, and forgiveness. It encourages individuals to see the humanity in others, to treat everyone with respect and kindness, and to forgive others for their mistakes. This is based on the belief that everyone is connected, and that we are all responsible for creating a more just and equitable world.