Research and the Testable Autistic

A fundamental issue in autism research is that again and again we are testing only a narrow band of "testable autistics." 

Essentially past and current research on Autism is oversampling the same ~30% of autistics, the testable autistics. Then we assume the results apply to all, when they do no. 

I was in a research stakeholder meeting last week where another autistic talked about the variety of different research studies she had participated in over the years. 

I was thinking of how many autism research studies where I've been a participant - it was ZERO, literally!! It was not that I did not want to, I was always in the exclusion criteria zone even in autism research. 

Growing up, I used to hear about what autistics are supposed to be thinking/doing, all based on the hundreds of studies that had already been done. And the thought was -  the results don't reflect me. Do I have the wrong dx?

We badly need to RETHINK RESEARCH METHODOLOGY along with new NEW TECHNOLOGY , so that we can expand this ZONE OF TESTABLE AUTISTICS so it's more representative of even those with high support needs like me. 

We can expand the range of testable autistics only if we use methods that don’t need fluent oral communication or fluent motor manipulation or expect a person to sit absolutely still. 

We need every neurodiverse/neurotypical mind thinking about this!!

So, what kind of methods can we use to extend the range of testable autistics.

We need to find answers and solutions for all autistics. THIS IS URGENT. 

M-CHAT Modified Checklist for Autism in Toddlers

Lexicon [Measures] - M-CHAT 

The Modified Checklist for Autism in Toddlers, Revised (M-CHAT-R) is a screening tool to identify early signs of autism  in toddlers. The M-CHAT-R is a caregiver-reported questionnaire that assesses the presence of behaviors associated with ASD in toddlers aged 16 to 30 months. It is intended to screen for potential developmental concerns and determine the need for further evaluation.

Limitations

The M-CHAT-R has some limitations, including the potential for false positives or false negatives, as it is a screening tool rather than a diagnostic instrument. It relies on caregiver-reported information, which may be subject to biases or inaccuracies.

Measure, Scoring & Interpretation
The M-CHAT-R is typically administered by a clinician or early intervention specialist.  It consists of 20  items that cover different areas of development, including social communication, joint attention, play, and repetitive behaviors. Caregivers indicate whether the behaviors are observed in their child or not (scored as 1 for Yes and 0 for No). The total score is calculated by summing the scores across all items. 

The M-CHAT-R also includes a follow-up interview with additional questions to further explore areas of concern. Scoring and interpretation guidelines are provided with specific cutoff scores to identify children who may be at risk for ASD and require further evaluation.

History, Limitations, and Revisions
The M-CHAT-R is an updated version of the original M-CHAT,. It was developed by Diana Robins, Deborah Fein, and Marianne Barton in 2009. 

Citation:
Robins, D. L., Fein, D., & Barton, M. L. (2009). The Modified Checklist for Autism in Toddlers, Revised (M-CHAT-R). Retrieved from https://mchatscreen.com/wp-content/uploads/2021/07/M-CHAT-R.pdf

Kindness is the language that everyone can understand

Equanimity is the serenity that comes from within

Towards a more humane society. #MentalHealth. Contemplation, one line a day.

 

Winter Thaw

Golden sun swathes the trees
Winter thaw, nature awakes
Twittering birds in flights of awe
Dancing from tree to tree to tree


I woke upto sunshine today though the temperature is still in the 30s. My window view continues to be provide awe for me.

Joy is the light that shine within us

 

Contemplation, one line a day #Mental Health

Equanimity is the anchor that keeps us grounded

Towards a more humane society. #MentalHealth. Contemplation, one line a day.

 

Hoarfrost and Icicles

glazed ice drape the leafless trees
ice sculptures of neural dendrites
...glistening at 27 degrees

white latticed cobwebs cover the brush.
fine needle crystals, it's hoarfrost.
water vapor turned solid, sublimation.
icicles drip by my windowsill
add to the morning chill

Comorbidity of ADHD puts you at higher risk for Mental Health

This article on ADHD talks about research from Bath University in the UK. 

Essentially it says

• Mental health risk higher in ADHD alone > Mental Health risk in Autism alone
• The risk is higher when there are co-morbidities (ie: Autism+ADHD)

Research confirms what many us have already felt and known about comorbidity of Autism+ADHD. The net effect is not a simple sum, but exponential. 

What makes me sad is for the most part stimulant meds seem to work ADHD like they are supposed to. But when it comes to autism+ADHD, the same meds are still a wild guess and most don't work in autism like they do in the non-autism population with paradoxical effects.

 

Optimism is the lens that allows us to see the world through the eyes of possibility.

Equanimity is the balance that allows us to move forward

Towards a more humane society. #MentalHealth. Contemplation, one line a day.

 

Black Ice

Thin and clear, hard to see,
Black ice makes roads slippery.
Silent and unseen, it lies ahead,
A slippery trap, ready to paralyze one dead


Zoom classes on schedule today

Postsynaptic receptors will rule the day. 
But no commute is relief!

Moments like Fleet

 Its already month 2 of 2023. Time does rush past. 

Months speed by, moments like fleet

Leaving memories, both sweet and beat. 

Where have the days gone, oh so fast

Never to return, from the past.

Hold tight, each moment's just right

Be supported to joy, day and night. 

Time waits for no one, it's true

Our lives are worth living, cherish it anew