Disability and Multilingualism

UNESCO is celebrating this International Literacy Day 2024 by highlighting multilingual changemakers on a global scale. Among them is Hari Srinivasan, a trailblazer for disability rights, who is a multilingual American child of immigrants

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"The solution for such autistics cannot be... the liberal use of the psychotropic medications, which are unreliable Band-Aids with long- term health effects. Many of my peers in special education slowly disappeared into the black hole of being sent away to the modern day equivalents of institutions as their behaviors were no longer "manageable’ at home or in a community setting. Out of sight also means out of mind for society."
- Hari Srinivasan, Newsweek


 

Caught Between Tears and Stoicism

 

It is patronizing of social media to imply that expressions of emotion are "OK" after learning he’s disabled, as if society is willing to make the occasional exception rather than challenge its norms.

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The Uncomfortable Truth Behind a Comforting Word

In the world of scientific research, words carry weight. They shape perceptions, influence emotions, and sometimes, soften the harsh realities of the work being done. One such word is "sacrifice," a term often used to describe the killing of animals, particularly rats, after they have been subjected to various experiments in the name of research. But what does "sacrifice" really mean in this context, and why does it seem to make everyone feel better about a process that is fundamentally unsettling?

The Comforting Illusion of Sacrifice

The word "Sacrifice" is imbued with noble connotations. It suggests an offering, a giving up of something valuable for a greater good. In religious and historical contexts, sacrifices are seen as acts of devotion, acts that are often rewarded with blessings or benefits. In the laboratory, however, the use of "sacrifice" to describe the euthanization of lab rats serves a different purpose—it sanitizes the act, masking the uncomfortable truth of what is actually happening.

The Reality Behind the Term

In research settings, rats are often subjected to a variety of procedures. These can include surgeries, injections, and exposure to drugs or other substances, all in the pursuit of scientific knowledge. After these procedures, the animals are typically euthanized. The term "sacrifice" is used to describe this final act. But let's be clear: the rats are not voluntarily giving up their lives for the greater good. They are being killed because their continued existence is no longer deemed necessary or beneficial for the study.

Making Everyone Feel Better

Using the word "sacrifice" helps researchers, lab technicians, and the public feel better about the process. It creates a psychological buffer, a way to cope with the ethical dilemmas inherent in animal research. By framing the killing as a sacrifice, it suggests that the act is justified, that it is part of a noble quest for knowledge and human advancement. This linguistic choice helps to ease the guilt and moral discomfort that might otherwise accompany the act of ending an animal's life.

The Irony and Ethical Implications


The irony is palpable. While the term "sacrifice" suggests a willing, even heroic act, the reality is one of imposed death following a period of often stressful and painful experimentation. This discrepancy raises important ethical questions. Are we too quick to accept this euphemism without questioning the underlying practices? Does the term "sacrifice" allow us to avoid confronting the moral complexities of animal research?

Perhaps it is time to reconsider our language and the comfort it provides. Transparency in research practices, including the language we use, is crucial. Instead of relying on euphemisms, we should strive for honesty about what happens to animals in research settings. This might involve using more straightforward terms like "euthanize" or "kill" to describe the end of an animal's life in the lab.

High Turnover in lower paid and high-stress disability support profession

 https://time.com/6551520/loneliness-autism-essay/ 



 My Ted X talk titled "Pebbles in the Pond of Change

Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.

Relationship as a building block

I've had the privilege of listening to Hari Srinivasan share his perspective on various topics over the years. His ability to share his personal narrative paired with the current science is an incredible gift. As Mr. Srinivasan shares, "All humans, disabled or not, yearn for human connections that enrich their lives beyond a mere fulfillment of basic needs." 

Indeed relationship is one of the building blocks of the PERMA+ theory of wellbeing (R=Relationships). Like Mr. Srinivasan, I too am looking to Vivek Murthy and his wisdom to help us all with his wise words, including, "While loneliness has the potential to kill, connection has even more potential to heal." Here's to 2024 being a year of connection. #wellbeingwins

Read at Time: The Pervasive Loneliness of Autism https://time.com/6551520/loneliness-autism-essay/

My other list of Publications: https://uniquelyhari.blogspot.com/p/published-work.html

Over Focus on Productivity


Mainstream discussions around remote and hybrid employment models often focus on productivity, or the perceived reduced networking and socialization.

Paradoxically, these very reasons serve to increase productivity for many disabled people, including the autism community.



 

It is not the same being given enough time to finish an exam, in a setting that is conducive to focusing on answering the exam

Article Link: https://www.psychologytoday.com/us/blog/giving-voice/202410/how-reasonable-are-reasonable-accommodations-at-work



In education and in the workplace, appropriate accommodations are crucial for people to learn and to perform at their best. This article tackles the "reasonable" piece of the ADA rule. Who decides what "reasonable" is?

Even when accommodations are nominally given, the quality of the accommodation can vary immensely. It is not the same being given enough time to finish an exam, in a setting that is conducive to focusing on answering the exam, than having "1.5x" the time in a room with noisy people, in the middle of a lab, or in the professor's office, under the professor's gaze.

The article was written by Hari Srinivasan, who is a fellow member of the College Autism Network 


In-person employment in autism

https://fortune.com/2023/07/27/flexible-work-critics-using-same-arguments-were-used-oppose-disabled-ramps-closed-captioning-equity-access-never-optional-remote-work-careers-hari-srinivasan/

 

Disability and Multilingualism

Growing up, Hari Srinivasan remembers repeatedly learning about St. Patrick’s Day in his special education classroom—a holiday that, while interesting, felt disconnected from his own cultural heritage.

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