Schwartzman 2023: suicidal behaviors in autistic adolescents

No surprise that suicide ideation and NSSI is higher in autistics!


Key Takeaways

  • Early adolescent autistics (total sample 239, 138 autistic) at higher risk for suicidal ideation and NSSI (non suicidal self-injurious behaviors) compared to non-autistics.
    • 20% autistics reported suicide ideation on self-report questionnaires but not to a study psychiatrist (via the Columbia Suicide Severity Rating Scale)
  • No sex based differences seen. 

Questions that arise after reading. 
  • What are the underlying factors that contribute to the higher risk of suicidal thoughts / behaviors and NSSI in autistic early adolescents? 
  • How can clinicians improve their ability to detect these behaviors given the discrepancies between self-report and clinician-rated measures? 
  • What interventions or treatments are effective in reducing the risk of these behaviors in autistic youth? 
  • How can parents, caregivers, and educators better support autistic youth who may be at risk ? 
  • What are the long-term outcomes for autistic youth with suicidal thoughts/behaviors and NSSI?
References
Schwartzman JM, Muscatello R, Corbett BA. Assessing Suicidal Thoughts and Behaviors and Nonsuicidal Self-Injury in Autistic and Non-Autistic Early Adolescents Using the Columbia Suicide Severity Rating Scale. Journal of Autism and Developmental Disorders 53.2 (2023): 559-570. doi:10.1177/136236132311621. PMID 30938385

April 13 is Autism Adolescence Day

Recognizing the transitions that come with adolescence in autism, along with the current inadequacy of needed supports, care and services. Translatable solutions are needed now. 


April 13 is Autism Adolescence Day
Because being a teenager isn't hard enough already

Compared to Neurotypical Teens, Autistic teens face greater challenges in 

Social Front. 
  • Social Isolation/Loneliness, Social Difficulties, fewer friendships/social contacts, lesser time spent on social activities (1,2,3)
  • Mental health, suicide ideation  and NSSI 
  • Bullying and victimization
  • Navigating educational system & workplace due to social and communication difficulties
Health Issues. 
  • Seizure onset  15%  (compared to 0.5 - 1% in general population) (4). 
    • Higher prevalence of atypical or non-convulsive seizures in autistic teens compared to non-autistic (5). 
    • Increased prevalence of epilepsy in autistic teens  (11.4%) compared to 0.5% in general population (6).
  • Sleep disturbance at 50-80%- insomnia, nightmares, and irregular sleep-wake cycles (7).
  • Sensory sensitivities at 88% (non-autistic teens 58%) (8). 
  • GI symptoms in autistic kids compared to non-autistic kids. In a 2014 study (9) figures are 43.5% compared to 18.1%. In a  2010 study (10), figures are 46-85% compared to 9-10%). Which means the prevalence is higher in autistic teens as well. 'Autistic teenagers at increased risk for anxiety, depression, and other mental health conditions.
  • Co-occuring condition in 70% of autistics -  anxiety disorders 41%,  ADHD 31% & mood disorders 16% (11).
  • Nuero-inflammatory markers in autistic teens
  • Obesity 22.4% (general population 15.6%) (14)
  • Asthma 22.2% (general population 12.8%) (15) 
  • Allergies  23.9% (general population 18.4%) (16)

MAST - The Maastricht Acute Stress Test

[concepts in Sensorimotor Research] 

The Maastricht Acute Stress Test (MAST) is a research laboratory procedure that is used to induce stress in research participants. It is used to study the effects of stress on a variety of physiological and psychological processes, including heart rate, blood pressure, cortisol levels, anxiety, and depression. The MAST combines elements from two of the most common experimental paradigms measuring stress, the Trier Social Stress Test (TSST) and the Cold Pressor Test (CPT).

The Test: 
There is a 5-minute preparation phase, during which the participant is seated in a comfortable chair and is given instructions about the task. The participant is then asked to put their right hand into a bowl of ice water for 60-90 seconds. In between each hand immersion trial, the participant is asked to complete a series of mental arithmetic problems. The participant is given negative feedback if they make a mistake or take too long to answer a question.

The test takes approximately 20 minutes to complete. During the procedure, the participant's heart rate, BP, and salivary cortisol levels are measured. The participant is also asked to rate their subjective feelings of stress on a scale of 1 to 10.

Benefits

  • It is a simple and easy-to-use procedure.
  • It is non-invasive and does not pose any risk to participants.
  • It is effective at inducing stress in participants.
  • It can be used to measure a variety of stress-related outcomes.

Limitations

  • Laboratory-based procedures may not be representative of real-world stress.
  • It can be stressful for participants and may not be suitable for everyone. (will autistics even agree to do this?)
  • It is not a diagnostic tool and cannot be used to diagnose any medical conditions.

One small act of kindness can create a ripple effect that can change the world.

HEW sit-in continues - Disabled vow long fight

Daily Cal Headlines ... April 11, 1977: 
"HEW sit-in continues - Disabled vow long fight." 
from Day 6 of the nearly month-long sit-in.



highlights:

CeCe Weeks said: "It's the first militant thing we've ever done. There is a new political movement throughout the land. We're going to stay till we're dragged out."

Although HEW Secretary Califano said he would sign the revised regulations, Kitty Conetalks about how those are inadequate and called upon President Carter to sign the original regs immediately as he had promised he would do.

State Director of the Department Of Rehabilitation Ed Roberts (former CIL Director) said "We've got to keep up the pressure."

Demonstrators Mary Jane Owen and then-CIL Deputy Director Judith Heumann had gone on a hunger strike.

Donations were pouring in from "such politically dissimilar groups as the Black Panthers and Safeway stores, McDonald's and the United Farm Workers. 'We couldn't do this without the support from outside," Cone said. 'We're really excited by the community's response.'"

"We're basically happy and strong," Weeks said. "There's more energy here all the time," she said.

------

That was indeed a time. The attached photo is a scan from a book of about 100 Daily Cal front pages: "The Daily Californian's Best of Berkeley 1960-1980, publ by the Independent Berkeley Student Publishing Company, 1980.



Daily Cal photo caption:

“The nearly 100 protesting disabled staged a sit-in [to demand the passage of the long-delayed Regulations implementing section 504 of the 1973 Rehabilitation Act] at San Francisco’s HEW Office.”

Section 504, the first disability civil rights act, Required nondiscrimination of people with disabilities by end of the end by any entity receiving federal funds.

These Regulations became the model for the Americans with Disabilities Act 13 years later, which prohibited discrimination against people with disabilities in virtually all areas of public life.

Media Mention

Media Mention On twitter. 
Thank you for the kind words. 
I hope I do indeed get to "redefine" autism research

 

No Eye Contact. No problem.

No Eye Contact?
No Problem!
Sunglasses are your personal Eye Contact Filter. 

#AutismHumor #AutismSolutions


Media Mention

Thank you. A Honor.

 

Kindness is the gift that keeps on giving

Serenity is the wisdom that comes with knowing what we can and cannot control.

 



McGlade et al 2023: Effectiveness of Early Intervention Therapies

My take: If early childhood therapy was so "effective", then the thousands of kids who have had massive amounts of therapy all through childhood (starting with early intervention) would have "RECOVERED" may times over. Why are my challenges still significant - ie: all that therapy did not make a dent. Currently there is no such thing as gold-standard childhood therapy. Most autism therapy is hit-or-miss, at any age. Its just $$$$ spent on trial and error. Lots of careers and promotions. 

Recently there was a twitter post pointing out that since were were no readily available "statistics" (referring to it as a "cool autism fact")  showing numbers of the more significantly impacted adult autistics meant that numbers of this group must be overstated. Others in the thread  questioned if adult autistics who did not not speak, even existed, since that autistic posting had learned to speak at age 3. This an irresponsible statement and an erasure of the huge number of non-speaking or minimal verbal adults who need to be part of the autism solutions. 

Onto the paper. 

=======



Key Takeaways from paper. 
  • Limited evidence  to recommend very early interventions for infants and toddlers with autism.
    • Limited impact of early intervention for at-risk infants/toddlers (by age 3. 
    • No significant treatment effects for autism symptoms, cognitive outcomes, receptive/expressive language. Even neurocognitive outcomes (EEG and eye tracking) were inconsistent. 
  • Gold-standard early intervention is yet to be developed.  Future treatment will need to include novel and individualized intervention targets alongside the targeting of parental responsiveness.

Questions that arise. 
  • What are the implications of these findings for clinical practice and policy related to early intervention for autism?
  • What are the long-term outcomes of very early interventions for infants and toddlers with autism beyond age 3 years?
  • What are the ethical considerations related to intervening in infants and toddlers at increased likelihood of autism dx, and how can these be addressed in future research and practice?

McGlade, A., Whittingham, K., Barfoot, J., Taylor, L., & Boyd, R. N. (2023). Efficacy of very early interventions on neurodevelopmental outcomes for infants and toddlers at increased likelihood of or diagnosed with autism: A systematic review and meta-analysis. Autism Research, 16(4), 698-710. https://doi.org/10.1002/aur.2924

Disabled People are not ADA People.


 People with disabilities are not “Americans with Disabilities Act people” or “Americans with Disabilities Act Guests.” The ADA is a law that increases equity for disabled people, not a label of any individuals. Referring to people with disabilities in this way is disrespectful and never appropriate.




Navigating the intersection of AuDHD (Autism and ADHD)

I've had the combined diagnosis of Autism and ADHD (AuDHD) since age 3.  What does having a combination diagnosis look like?  [A Plain Language version at the end of post]

Autism and ADHD often co-occur, a combination referred to as AuDHD by many self-advocates. Together, they form a unique blend of traits that can sometimes be contradictory, affecting various areas of life, from relationships and academic performance to sensory processing and emotional well-being. Understanding AuDHD involves recognizing how the need for routine and predictability (autism) intersects with a craving for novelty and spontaneity (ADHD). 

Contradictory Traits: Sameness vs. Novelty

One of the key challenges of AuDHD is the internal conflict between autism’s preference for routine and ADHD’s need for newness. Autistic individuals often thrive in predictable environments that reduce anxiety and create a sense of control. In contrast, ADHD pushes for novelty, leading to restlessness or boredom with repetitive tasks.

For someone with AuDHD (or AutDer), this contradiction can cause significant internal tension. The autistic side may seek consistency, while the ADHD side yearns for new experiences. This constant push and pull can result in stress and frustration, as they struggle to balance these opposing needs.

Sensory Processing: Overwhelm and Seeking Input

Sensory challenges are common in both autism and ADHD, and in AuDHD, these can intensify. Autistics may experience hypersensitivity to stimuli—lights may feel too bright, sounds too loud, or textures uncomfortable—leading to sensory overload. ADHD, on the other hand, may result in increased distractibility and a heightened need for sensory input, such as fidgeting or movement.

This combination means that individuals with AuDHD (or AutDers) may frequently feel overwhelmed by their environment or seek out additional sensory stimulation to stay focused. For example, stimming (repetitive behaviors like tapping or rocking) may become more frequent or intense as a means to self-regulate. [More detail on this at this link]

Cognitive Styles: Hyperfocus vs. Distractibility

AuDHD significantly impacts cognitive styles, with autistic individuals often demonstrating hyperfocus—intense concentration on a particular interest for extended periods. This can be a strength when aligned with personal or professional goals, but it may make switching tasks difficult.

ADHD, by contrast, brings distractibility, where maintaining focus on tasks that aren’t immediately engaging becomes challenging. AutDers might experience cycles of hyperfocus followed by difficulty completing less stimulating tasks, leading to issues with time management and task completion.

Social Identity and Stigma

AutDers often face challenges related to identity and belonging. The dual diagnosis may make it difficult to fit neatly into autism or ADHD communities, leading to feelings of isolation. Additionally, misunderstanding of how AuDHD manifests can contribute to societal stigma, with people often being misperceived as lazy, disorganized, or socially awkward. This lack of awareness can result in inadequate accommodations in school, work, and social settings.

Relationships and Family Dynamics

Maintaining personal relationships can be a significant challenge for those with AuDHD. Autism can bring difficulties in reading social cues and understanding nonverbal communication, while ADHD may add impulsivity and distractibility to interactions. Together, these traits can cause misunderstandings or strain in romantic relationships, friendships, or family dynamics.

Academic and Workplace Performance

In academic settings, the need for structure (autism) and the tendency to procrastinate or get distracted (ADHD) may clash, making it hard for AutDers to meet deadlines or engage in group work. Similarly, in the workplace, inflexible environments that don’t account for the needs of those with AuDHD may result in job dissatisfaction or burnout. However, with appropriate accommodations, such as flexible schedules and task-focused roles, AutDers often excel in creative problem-solving and innovation.

Emotional Sensitivity and Interpersonal Conflict

Both autism and ADHD are associated with emotional sensitivity, and AuDHD can heighten this trait. Individuals may become overwhelmed by criticism or social rejection, overthink social interactions, or feel emotionally exhausted by perceived failures or misunderstandings. The combination of difficulty in social understanding (autism) and impulsivity (ADHD) may also lead to frequent interpersonal conflict.

Executive Functioning: Organization and Planning Struggles

AutDers often experience challenges in organizing, planning, and managing time due to the combination of autism’s need for structure and ADHD’s impulsivity. Individuals may feel overwhelmed by the need to create detailed plans but struggle to implement them effectively. This can lead to feelings of frustration, especially when routine gets disrupted.

Emotional Regulation and Mental Health

Both autism and ADHD are linked to emotional dysregulation, and their combination in AuDHD can intensify this. The internal conflict between the need for routine (autism) and the craving for novelty (ADHD) often leads to anxiety. ADHD’s impulsivity can contribute to emotional outbursts, which can result in guilt or heightened social anxiety later. Over time, the struggle to navigate these conflicting traits may lead to emotional exhaustion or burnout.

Self-Esteem and Identity

AuDHD can also impact self-esteem. Individuals may struggle with societal expectations that conflict with their neurodivergent traits, leading to feelings of inadequacy. The clash between needing structure (autism) and having difficulty with focus or organization (ADHD) can leave people feeling as though they are falling short, especially in school or work environments where both conditions are often misunderstood.

Physical Health: Sleep and Motor Coordination

Both autism and ADHD are linked to sleep disturbances. Autism can make it hard to fall asleep due to sensory sensitivities or the need for specific routines, while ADHD may result in restlessness. Combined, AuDHD can make restful sleep difficult, leading to daytime fatigue and irritability.

Motor coordination may also be impacted, as both conditions are associated with clumsiness or dyspraxia (developmental coordination disorder). This can affect confidence in activities like sports or even daily tasks like driving.

The Bigger Picture: Neurology and Physiology in AuDHD

Neurologically, AuDHD affects several areas of the brain, particularly the prefrontal cortex, which manages executive function, planning, and decision-making. ADHD often involves dysregulation in dopamine pathways, affecting reward processing and motivation, while autism involves differences in connectivity between brain regions, particularly in areas related to social cognition and sensory processing.

These neurological differences can result in heightened sensory sensitivity, fluctuations in attention, and difficulty managing emotions. The combination of these traits can also make it harder to filter out distractions or regulate behavior, leading to emotional stress or frustration.

Sensory-Motor Coordination and Physical Health

Both autism and ADHD can lead to motor coordination challenges, but when combined in AuDHD, these issues may be even more pronounced. Individuals may struggle with fine motor tasks like handwriting or sports, impacting confidence in physical activities. Additionally, balancing routines with ADHD's impulsivity can affect physical health routines like exercise, meal planning, and sleep.

In Essence…

AuDHD is more than just a combination of autism and ADHD traits. It creates a unique set of challenges that require personalized strategies to thrive. While the need for routine may clash with the desire for novelty, understanding these complexities opens the door to both challenges and strengths. Tailored support is essential for individuals with AuDHD to find balance and success in daily life.

By addressing sensory sensitivities, understanding cognitive differences, and providing appropriate accommodations, individuals with AuDHD can harness their unique strengths while managing their complex needs

PlainSpeak: A plain language version for the lay reader. 

Navigating Life with AuDHD

Autism and ADHD are two conditions that often occur together, known by many as AuDHD. While both have unique traits, they can sometimes seem at odds with each other. Autism often comes with a need for routine and predictability, while ADHD tends to seek novelty and excitement. This mix can create challenges in many areas of life, from social interactions to managing sensory input, attention, and emotions.

Conflicting Needs: Routine vs. Newness

People with autism often find comfort in routines and predictability, which help reduce anxiety and manage sensory overload. ADHD, on the other hand, thrives on new experiences and gets bored with repetition. This combination can make daily life feel like a tug-of-war between craving stability and wanting change.

Sensory Overload vs. Sensory Seeking

Both autism and ADHD can impact how a person handles sensory input. Autistic individuals may be sensitive to bright lights, loud sounds, or certain textures, making them prone to sensory overload. ADHD can add another layer, making it harder to filter out distractions or even leading to seeking out sensory experiences (like fidgeting). Together, these traits can make it tough to find a comfortable sensory balance.

Focus: Hyperfocus vs. Distraction

Autistic individuals can sometimes hyperfocus, becoming deeply absorbed in something they’re passionate about for long periods. ADHD brings in distractibility, making it harder to stay on task, especially when something isn't interesting. With both, a person may swing between being super focused on some things but easily distracted by others, making time management challenging.

Social Struggles

Social interactions can be tough for AutDers (people with AuDHD). Autism may bring difficulties with understanding social cues or communication norms, while ADHD might lead to impulsive actions like interrupting conversations. This combination can cause misunderstandings and social fatigue, where engaging with others becomes exhausting.

Organization and Planning

Both autism and ADHD can make it hard to plan, organize, and manage time. Autism often brings a need for structure, but ADHD's impulsivity might disrupt that structure, leading to procrastination or forgetfulness. This creates frustration, especially when trying to stick to a routine or meet deadlines.

Emotional Challenges and Mental Health

The emotional toll of managing both autism and ADHD can be significant. Both conditions are linked to anxiety and depression, and having both can make emotional regulation even harder. The conflict between needing routine and seeking novelty can cause internal stress, leading to emotional exhaustion or burnout.

Impact on Self-Esteem

Having AuDHD can affect self-esteem, especially when people don’t meet societal expectations. The need for structure in autism might clash with ADHD's distractibility, leading to feelings of inadequacy, particularly in school or work environments that don’t understand their challenges.

Physical Health: Sleep and Movement

Sleep can be tough for those with AuDHD. Autism may cause sleep difficulties due to sensory sensitivities, while ADHD may lead to restlessness. This combination can result in sleep disturbances, leading to daytime fatigue. Motor coordination may also be affected, making physical activities like sports harder to engage in confidently.

The Bigger Picture

AuDHD is more than just a blend of autism and ADHD traits. The combination creates unique challenges, but also opportunities for growth and strengths. With the right strategies and support, AutDers can learn to manage their needs and thrive in ways that work for them.