Straddling Two Worlds

Straddling Two Worlds. 

I straddle two worlds, so different it seems,
One of disability, where challenges are extreme,
The other of acceptance, where belonging is key,
But finding a balance, is where I long to be.

Joy is the sense of accomplishment that comes with achieving our goal

Contemplation, one line a day. #MentalHealth


 

Happy Pongal

All set for Pongal this morning, complete with Tiruman and Veshti (traditional attire).
Happy Pongal everyone.  


Ready to make some noise with a plate and spoon along with cries of "Pongal O Pongal" when the clay pot of (newly harvested) cooked rice boils over.
Happy Pongal everyone.
A Pongal lunch spread. While farmers celebrate the rice harvest, we celebrate their hardwork by feasting!! Happy Pongal everyone.






Cal Football

Looking back to to this day
From 3 years back - Basketball Game at Haas Stadium, UC Berkeley
Not gone to any games at new school, but hope to in 2023. 


 

Joy is the serenity that comes from acceptance and letting go

Contemplation, one line a day. #MentalHealth


 

BioMedical Research is IMPORTANT for Autism.

BioMedical Research is IMPORTANT for Autism. 

I wish people stop conflating all Autism Biomedical Research as a cure; cure being something the disability rights movement has been against. Honestly no amount of biomedical research is going to reverse disability but it can go a long way in alleviating some of its more troubling symptoms and health issues. 

Reality is that  a majority of a the moderate-high support autistic individuals do have significant health issues, and other behavioral issues that significantly impact their quality of life. 

WE NEED solutions, including BIOMEDICAL ones and TECH ones in addition to changes in SOCIETAL MINDSET that is the main focus of the neurodiversity movement to address these issues.  

Shutting down all and any biomedical research is a disservice to the autism community. 

SIB's are real. 20% of autistics have SIB. Why are we not looking at SIBs at a physiological level. SIBs leave you battered and traumatized from personal experience. It is something I don't want to live with and I would gladly welcome any research on it. It's not about a CURE, its helping me life a less stressful life - my "pursuit of happiness." 

How can these autistics get to the level of demanding acceptance, inclusion in education and employment that the neurodiversity movement is asking for, if the very same group is denying the very things that gives them to the platform of equity.  

Why can't I have both - the biology to help with my challenges and the accommodations/inclusion of neurodiversity. 

GARS - Gillian Autism Rating Scale

Lexicon [Measures] - GARS 

The GARS (Gillian Autism Rating Scale) is a behavior rating scale that evaluates the presence and severity of autistic symptomatology. GARS assesses various domains related to autism, including social interaction, communication, and stereotyped behaviors. It is administered by a clinician and used for individuals between the ages of 3 and 22 years. 

Limitations
  • potential for subjective interpretation
  • reliance on observer ratings
  • lack of comprehensive assessment of other domains, such as cognitive abilities or co-occurring conditions.

Scoring & Interpretation

The GARS questionnaire consists of 56 items that assess various behaviors and characteristics related to autism. These items are grouped into three main categories: Stereotyped Behaviors, Communication, and Social Interaction. Each item on the GARS is scored on a 4-point Likert scale, ranging from 0 (Not Applicable) to 3 (Severe). The total score is derived by summing the individual item scores, providing an overall indication of the severity of autistic symptoms. Higher scores indicate more severe symptomatology.


History: The GARS was developed by James E. Gilliam in 1995. It was designed as a tool to aid in the identification and assessment of individuals with ASD.



Citation:

Gilliam, J. E. (1995). Gilliam Autism Rating Scale. Austin, TX: PRO-ED.


Joy is the happiness that radiates from within and touches others

Contemplation, one line a day. #MentalHealth


 

Light Snowfall

Snowflakes dance in the air,
Falling softly, without a care.

But to college neuroscience I must go
Blood brain barriers and biophysiology today
I did not like walking in that cold

The cold bites, the wind moans.
Goosebumps, hard to withstand.
Though it's harsh, it's also grand.