https://www.dailycal.org/2018/04/12/compulsion-complexity
This quote is taken from my chapter in this anthology.
My other list of Publications: https://uniquelyhari.blogspot.com/p/published-work.html
All humans live in a cycle of dependency
This incredible TIME piece by Hari Srinivasan beautifully articulates so many of the complicated feelings I have about my son’s journey to independence.
“Addressing the loneliness epidemic in the disabled community necessitates a nuanced understanding of independence because in actuality, all humans live in a cycle of dependency. The perceived division between independence and dependence is a flawed notion. Embracing this truth could pave the way for a more inclusive society that transcends the limitations of societal norms and helps us build better support systems that result in enduring human social connections for people with autism.”
Enhanced Perceptual Functioning
The Enhanced Perceptual Functioning (EPF) model suggests that autistic individuals often have heightened sensory abilities, allowing them to perceive finer details in their environment more acutely than neurotypical individuals. It reframes sensory sensitivities as strengths rather than deficits.
Emotion in AuDHD
Mention in the new journal article on AuDHD along with a nice thank you note.
Its kind of a honor to be mentioned in the same para as Prof Steve Hinshaw, one of my fav and amazing profs at Cal, faculty sponsor for my autism class and who has been such an encouraging figure in my journey.
Chang, G. (2024). The Tug-of-War of Emotion in Children with AuDHD. Berkeley Scientific Journal, 28(2). https://doi.org/10.5070/BS328264287
Dear Hari,
Happy Holiday! I had the privilege of having you as a reviewer for my feature article in the Berkeley Scientific Journal titled "The Tug-of-War of Emotion in Children With AuDHD" last semester (Spring 2024).
I am delighted to share that the journal has now published the article, and this achievement would not have been possible without your invaluable guidance and feedback. I deeply appreciate your support throughout this process.
The publication details are as follows:
Chang, G. (2024). The Tug-of-War of Emotion in Children With AuDHD. Berkeley Scientific Journal, 28(2), 30–36. https://doi.org/10.5070/BS328264287
Wishing you a Merry Christmas and a wonderful holiday season!
Thank you once again for your encouragement and thoughtful input.
With gratitude and holiday cheer,
Gardenia
Happy Holiday! I had the privilege of having you as a reviewer for my feature article in the Berkeley Scientific Journal titled "The Tug-of-War of Emotion in Children With AuDHD" last semester (Spring 2024).
I am delighted to share that the journal has now published the article, and this achievement would not have been possible without your invaluable guidance and feedback. I deeply appreciate your support throughout this process.
The publication details are as follows:
Chang, G. (2024). The Tug-of-War of Emotion in Children With AuDHD. Berkeley Scientific Journal, 28(2), 30–36. https://doi.org/10.5070/
Wishing you a Merry Christmas and a wonderful holiday season!
Thank you once again for your encouragement and thoughtful input.
With gratitude and holiday cheer,
Gardenia
AUCD's Inclusive 2025
Join AUCD in Creating an Inclusive 2025 | |
At AUCD, we believe in a world where all people, including those living with disabilities, are fully included and active members of their communities. With your support, we can continue to uplift the voices of self-advocates, placing them at the center of disability conversation, progress, and research, and building a more inclusive future for 2025. Through AUCD’s Central Office initiatives and the Annual Conference, we bring attention to the vital work of self-advocates like Hari Srinivasan, who was awarded the AUCD 2024 Young Professional Award. Hari, who is autistic and has ADHD, is a neuroscience researcher and PhD candidate at Vanderbilt University where the Vanderbilt Kennedy Center is located. In his acceptance speech, Hari shared: “Research and advocacy are two sides of the same coin and not independent silos. The end goal of research is supposed to be human progress. I enjoy what I get to do. I love my research and am grateful for the opportunity of education. I appreciate the people who have encouraged me along the way in the world that often seeks to limit your potential because you are seen as too disabled." With your support, AUCD can continue amplifying the voices of people like Hari. Your gift will directly help fund vital initiatives that support self-advocates in the AUCD Network. https://aucd.wufoo.com/forms/support-aucd/  |
How Reasonable are Reasonable Accommodations at Work
Comprehensive data collection on accommodation implementation and retention rates would ensure accountability and help identify areas for improvement.
Accounting for Sensory Sensitivities and Communication Methods
"There may be apprehensions about whether positive psychology interventions can be effectively tailored to meet the unique and varied needs of all autistic individuals, considering our diverse sensory sensitivities, communication methods, and personal preferences." - Hari Srinivasan
Little research to help autistics like me
If I have not fully understood my own disability, it is, in part, because there has been little research to help autistics like me understand the full scope of it, as well as targeted education, medical, or therapeutic interventions that can help us navigate it.
-Hari Srinivasan, Time
UNCRPD
UNCRPD.
As an undergrad I had the opportunity to work on 42 case studies of the implementation of the UNCRPD by signatory countries. I learned so much about disability challenges, especially in under-resourced nations. Thank you Professor Pineda for that internship opportunity.
Disability Rights and both human rights and civil rights. The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) represents a monumental step towards ensuring equal rights and inclusion for people with disabilities worldwide.
What is the UNCRPD… Read on
The Birth of UNCRPD
UNCRPD’s journey began in the early 2000s, rooted in a growing recognition that existing international human rights instruments were insufficient in protecting the rights of persons with disabilities (PWD). The Convention was adopted by the UN General Assembly on December 13, 2006, and it opened for signature on March 30, 2007 where it received an overwhelming response; with 82 countries signing the Convention on opening day, making it the highest number of signatories in history to a UN Convention on its opening day. As of today, there are 182 parties to the Convention, including the European Union, which signed as a regional integration organization.
The drafting process of the UNCRPD was marked by unprecedented collaboration between governments and civil society, particularly organizations of PWDs. The "Nothing about us without us" motto became a central theme, ensuring that the voices of PWDs were at the forefront of the discussions.
The first Conference of States Parties (COSP) to the UNCRPD was held in 2008 at the UN Headquarters in New York. This conference is an annual event where signatories gather to discuss progress, challenges, and strategies related to the implementation of the Convention. The COSP plays a crucial role in maintaining momentum and ensuring accountability among the States Parties.
Since its adoption, the UNCRPD has led to significant changes in legislation and policy around the world. Countries that have ratified the Convention are obligated to align their national laws and policies with its principles. This has resulted in greater awareness, increased accessibility, and more inclusive education and employment opportunities for PWDs. The Convention continues to inspire movements and advocacy efforts globally, reinforcing the idea that disability rights are human rights and that every person deserves to live with dignity, autonomy, and equality.
The UNCRPD is more than just a legal document; it is a powerful tool for change, reflecting a global commitment to ensuring that PWDs enjoy the same rights and opportunities as everyone else. Its history, structure, and impact demonstrate the ongoing efforts to build a more inclusive world where diversity is celebrated, and everyone is empowered to participate fully in society. The contributions of dedicated disability rights activists were instrumental in its creation and continue to drive its implementation, ensuring that the principles of the Convention are realized in the lives of persons with disabilities worldwide.
The U.S. and the CRPD
The United States signed the UNCRPD on July 30, 2009, indicating its support for the treaty's principles and its intent to promote and protect the rights of individuals with disabilities. However, despite signing the UNCRPD, the United States Senate has not ratified the treaty. This means that, although the U.S. has expressed its endorsement of the CRPD by signing it, the treaty has not been approved by the U.S. Senate and thus is not legally binding in the United States. The U.S. continues to adhere to its own disability rights legislation, such as the ADA, which served as an inspiration for the UNCRPD.
Main Sections of the UNCRPD
The UNCRPD is a comprehensive document that outlines the rights of disabled persons and the obligations of States Parties to promote, protect, and ensure these rights. It is divided into several key sections:
Preamble: This sets the context and outlines the underlying principles of the Convention.
General Principles (Article 3): Includes principles such as respect for inherent dignity, non-discrimination, full and effective participation and inclusion in society, respect for difference, and acceptance of persons with disabilities as part of human diversity.
General Obligations (Article 4): States Parties commit to ensuring and promoting the full realization of all human rights and fundamental freedoms for all persons with disabilities without discrimination.
Specific Rights:
Equality and Non-Discrimination (Article 5)
Accessibility (Article 9)
Right to Life (Article 10)
Equal Recognition Before the Law (Article 12)
Access to Justice (Article 13)
Liberty and Security of Person (Article 14)
Freedom from Torture (Article 15)
Freedom from Exploitation, Violence and Abuse (Article 16)
Living Independently and Being Included in the Community (Article 19)
Education (Article 24)
Health (Article 25)
Work and Employment (Article 27)
Participation in Political and Public Life (Article 29)
Implementation and Monitoring (Articles 33-40): These articles describe the measures for implementation and monitoring, including the establishment of a Committee on the Rights of Persons with Disabilities to oversee the Convention's implementation.
Disability and Multilingualism
UNESCO is celebrating this International Literacy Day 2024 by highlighting multilingual changemakers on a global scale. Among them is Hari Srinivasan, a trailblazer for disability rights, who is a multilingual American child of immigrants
Read Full Article at unesco.org...
"The solution for such autistics cannot be... the liberal use of the psychotropic medications, which are unreliable Band-Aids with long- term health effects. Many of my peers in special education slowly disappeared into the black hole of being sent away to the modern day equivalents of institutions as their behaviors were no longer "manageable’ at home or in a community setting. Out of sight also means out of mind for society."
- Hari Srinivasan, Newsweek
Caught Between Tears and Stoicism
It is patronizing of social media to imply that expressions of emotion are "OK" after learning he’s disabled, as if society is willing to make the occasional exception rather than challenge its norms.
Read Full Article at
My Ted X talk titled "Pebbles in the Pond of Change
Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.
Relationship as a building block
I've had the privilege of listening to Hari Srinivasan share his perspective on various topics over the years. His ability to share his personal narrative paired with the current science is an incredible gift. As Mr. Srinivasan shares, "All humans, disabled or not, yearn for human connections that enrich their lives beyond a mere fulfillment of basic needs."
Indeed relationship is one of the building blocks of the PERMA+ theory of wellbeing (R=Relationships). Like Mr. Srinivasan, I too am looking to Vivek Murthy and his wisdom to help us all with his wise words, including, "While loneliness has the potential to kill, connection has even more potential to heal." Here's to 2024 being a year of connection. #wellbeingwins
Read at Time: The Pervasive Loneliness of Autism https://time.com/6551520/loneliness-autism-essay/
My other list of Publications: https://uniquelyhari.blogspot.com/p/published-work.html
Over Focus on Productivity
Mainstream discussions around remote and hybrid employment models often focus on productivity, or the perceived reduced networking and socialization.
Paradoxically, these very reasons serve to increase productivity for many disabled people, including the autism community.
- Hari Srinivasan, Fortune
Read full article at https://fortune.com/2023/07/27/flexible-work-critics-using-same-arguments-were-used-oppose-disabled-ramps-closed-captioning-equity-access-never-optional-remote-work-careers-hari-srinivasan/
It is not the same being given enough time to finish an exam, in a setting that is conducive to focusing on answering the exam
Article Link: https://www.psychologytoday.
In education and in the workplace, appropriate accommodations are crucial for people to learn and to perform at their best. This article tackles the "reasonable" piece of the ADA rule. Who decides what "reasonable" is?
Even when accommodations are nominally given, the quality of the accommodation can vary immensely. It is not the same being given enough time to finish an exam, in a setting that is conducive to focusing on answering the exam, than having "1.5x" the time in a room with noisy people, in the middle of a lab, or in the professor's office, under the professor's gaze.
The article was written by Hari Srinivasan, who is a fellow member of the College Autism Network
In-person employment in autism
https://fortune.com/2023/07/27/flexible-work-critics-using-same-arguments-were-used-oppose-disabled-ramps-closed-captioning-equity-access-never-optional-remote-work-careers-hari-srinivasan/
Disability and Multilingualism
Growing up, Hari Srinivasan remembers repeatedly learning about St. Patrick’s Day in his special education classroom—a holiday that, while interesting, felt disconnected from his own cultural heritage.
Read Full Article at unesco.org...
Genetic Differences Between Autism and ADHD—and Why It Matters
Genetic Differences Between Autism and ADHD—and Why It Matters
On the surface, autism and ADHD might look like they share some overlapping behaviors, especially in areas like attention and impulsivity. But beneath those similarities, the genetic research on each reveals fundamental differences. And with more people receiving both diagnoses (often called AuDHD), genetic research is starting to explore how these conditions interact in the same person.
Exclusion of those with more complex needs
"Key concerns.... oversimplification of needs and the potential exclusion of those with more complex challenges when focusing solely on strengths and well-being. This approach risks neglecting the intricate support required by many on the spectrum. " - Hari Srinivasan
"We must dispel the notion that any medical intervention is inherently harmful. Many autistic peers I know experience chronic sleep deprivation, multiple seizures, pain, autoimmune conditions... spend the entire night on the toilet due to gut issues... engage in intense self-injurious behaviors, aggressive behaviors, and frequent meltdowns, which leave them home-bound. Living in a state of chronic unwellness is not conducive for inclusion. The quality of life for such autistics is challenging, no matter what kind of societal supports (inadequate as they are currently), or opportunities are put in place for inclusion."
- Hari Srinivasan, Newsweek
Why is 108 scientifically and mathematically special
108 combines properties from number theory, geometry, natural patterns, and even astrophysics—qualities that give it an almost “universal” significance in mathematics and beyond
- Astrophysical Significance: In astronomy, the average distance between the Earth and Sun is about 108 times the diameter of the Sun. Similarly, the average distance between the Earth and the Moon is about 108 times the Moon’s diameter. This coincidence has intrigued scientists, as it means the Sun and Moon appear roughly the same size in the sky, allowing for the phenomenon of total solar eclipses.
- Harshad Number Charm: In number theory, 108 is a Harshad number, meaning it’s divisible by the sum of its digits (1 + 0 + 8 = 9), making it "harmonic" in certain mathematical operations. Harshad numbers are used in digital root and modular arithmetic, which simplifies calculations in areas from coding to cryptography.'
- Fibonacci and Spirals: The sum of the first 12 Fibonacci numbers is exactly 108, connecting it to the Fibonacci sequence, which appears in natural patterns like spirals in shells, hurricanes, and galaxies. This gives 108 a presence in some of the most visually and mathematically profound patterns in the universe.
- Tetrahedral and Centered Figures: 108 is a tetrahedral number, representing a 3D shape with triangular faces. Imagine stacking spheres in a pyramid with a triangular base; 108 is the total number of spheres in a four-layer pyramid. This concept ties into molecular structures and 3D modeling.
- Geometry and Symmetry: 108 degrees is the internal angle of a regular pentagon, meaning it’s a foundational angle in geometry tied to fivefold symmetry. Pentagonal symmetry is rare in nature and geometry, often appearing in atomic structures and biological formations like flowers and certain viruses.
Social Capital
Autism Lexicon: Social Capital
Social capital is the value derived from social networks, relationships, and community trust that enable cooperation and support. In autism, building social capital can be challenging due to differences in communication and social interactions, but it is crucial for fostering inclusion and improving quality of life... Read More....
Caught Between Tears and Stoicism
In a world where emotional expression is often suppressed or critiqued, especially in public figures and their families, his response is a refreshing reminder of our shared humanity.
Read Full Article at
Comment:
Hari, this is incredible. It is both beautiful and meaningful in its humanity, as well as being an exceptionally important message for inclusion - how you manage to do those two things at once is something I am extremely inspired by!
My TedX Talk
My Ted X talk titled "Pebbles in the Pond of Change
Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.
Social Model of Disability and Neurodiversity
The Social Model of Disability and the Neurodiversity Paradigm both challenge traditional perspectives on disability, emphasizing societal factors over individual deficits. However, they differ slightly in scope, focus, and origins.
Similarities:
- Societal Influence: Both argue that the primary challenges faced by disabled individuals come from society's structure, attitudes, and policies rather than inherent flaws within the person. Barriers to inclusion (physical, attitude, communication) are highlighted.
- Advocacy for Inclusion: Both emphasize the importance of reshaping societal norms, environments, and policies to be more inclusive and accommodating, thereby fostering greater acceptance and understanding.
- Agency and Identity: Both encourage individuals to embrace their identities and advocate for a society that respects diverse ways of functioning, viewing these as part of a human spectrum rather than problems to be "fixed."
- Critique of the Medical Model: Both models reject the traditional medical model, which views disability primarily as a deficit within an individual that requires intervention. Instead, they argue for a broader understanding that includes systemic and societal factors.
- Scope and Origins: The Social Model, originating in the broader disability rights movement, addresses all disabilities, focusing on how society disables individuals through barriers and prejudice. Neurodiversity, specifically pertains to neurological variations like autism, ADHD, and dyslexia, emphasizing that neurological diversity is a natural part of human variation.
- Difference v Disability: Neurodiversity emphasizes the concept of "difference" rather than "disability," suggesting that conditions like autism are part of natural variation rather than inherently disabling. The Social Model, however, focuses on disability as a socially created issue, regardless of the nature of the impairment.
- Framework of Disability: The Social Model views disability as an interaction between a person with an impairment and an inaccessible society, focusing on environmental changes. Neurodiversity, by contrast, views neurological differences as variations with both strengths and challenges, advocating for acceptance of different cognitive styles and capacities.
- Individual v. Collective Identity: Neurodiversity often highlights individual strengths and contributions specific to each neurological type, particularly emphasizing the value of traits seen in neurodivergent communities. The Social Model, meanwhile, focuses more broadly on collective experiences and solidarity among disabled people against shared barriers.
Both models advocate for a society that values and adapts to diversity, but they apply these principles in distinct ways based on their different foundations.
IDEA
Understanding the Individuals with Disabilities Education Act (IDEA)
In her memoir "The Heumann Perspective," the late legendary disability rights activist, Judy Heumann recounts how she was refused entry to public school as a child because she was deemed a "fire hazard." Her story sets the stage for understanding the importance and impact of the Individuals with Disabilities Education Act (IDEA).
IDEA was born out of a broader movement for disability rights in the United States, heavily influenced by the civil rights movements of the 1960s and 1970s. Before its enactment, many children with disabilities were excluded from public education or received inadequate services. Recognizing the need for federal legislation to protect the educational rights of these children, the Education for All Handicapped Children Act (EHA) was enacted in 1975. This marked a significant shift towards inclusive education and equal opportunities. On October 30, 1990, the act was reauthorized and renamed the Individuals with Disabilities Education Act (IDEA). Further amendments in 1997 and 2004 were made to better serve students with disabilities, ensuring they have access to a free and appropriate public education
Influential Figures in the Making of IDEA
Several key figures and advocacy groups played pivotal roles in the development and implementation of IDEA:
Judith Heumann: A lifelong disability rights advocate, Heumann's activism and leadership, particularly through her work with the Center for Independent Living and her role in the U.S. Department of Education, were instrumental in shaping policies related to special education.
Tom Harkin: A U.S. Senator known for his strong advocacy for disability rights, Harkin played a significant role in the passage and reauthorization of IDEA, ensuring that the needs of students with disabilities were addressed in federal law.
Parent Advocacy Groups: Organizations like the National Association for Parents of Children with Visual Impairments (NAPVI) and the National Down Syndrome Congress (NDSC) were crucial in lobbying for the rights of children with disabilities and the creation of IDEA.
Key Provisions of IDEA
IDEA is designed to ensure that children with disabilities receive a free and appropriate public education (FAPE) tailored to their individual needs. The main provisions of IDEA include:Free Appropriate Public Education (FAPE): Ensures that all disabled children have access to public education at no cost to their families.
Individualized Education Program (IEP): Requires schools to develop an IEP for each student with a disability, outlining specific educational goals and the services the student will receive.
Least Restrictive Environment (LRE): Mandates that disabled children should be educated alongside their non-disabled peers to the greatest extent appropriate.
Parental Participation: Ensures that parents are involved in decision-making processes regarding their child's education.
Procedural Safeguards: Provides protections for students and their families, including the right to due process hearings and mediation to resolve disputes.
Evaluation and Eligibility: Establishes criteria for identifying and evaluating children with disabilities to determine their eligibility for special education services.
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