The Autism Cares Act is in the process of re-authorization in the halls of congress for a while now. Happy to report that my Time Magazine article "Who Autism Research Leaves Out" has been used in its the re-negotiations discussion
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Understanding the Autism CARES Act
The Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act is a significant piece of legislation aimed at addressing the needs of Autistics & their families.
The Autism CARES Act was first enacted as the Combating Autism Act in 2006, and it has been reauthorized and expanded in subsequent years. The original Combating Autism Act focused on increasing research, awareness, and early detection of autism. It was reauthorized as the Autism CARES Act in 2014, and then again in 2019, to ensure continued support and enhancements in these areas.
Key Provisions of the Autism CARES Act
The Autism CARES Act is designed to improve the quality of life for autistics through a comprehensive approach that includes research, services, and support. The main provisions of the Act include:
Research: The Act provides funding for the National Institutes of Health (NIH) to conduct and support research on autism. This includes studies on the causes, diagnosis, early detection, prevention, and treatment of autism.
Awareness and Education: The Act supports initiatives to increase public awareness about autism, including early signs and intervention strategies. It also funds education and training programs for healthcare professionals.
Services and Support: The Act provides grants to states and organizations to improve services for individuals with autism and their families. This includes support for early intervention, healthcare, and social services.
Federal Coordination: The Act mandates the continuation of the Interagency Autism Coordinating Committee (IACC), which is responsible for coordinating all federal efforts related to autism research and services.
Lifespan Perspective: The reauthorization of the Act in 2019 placed a greater emphasis on the needs of individuals with autism across their lifespan, including transitions from school to employment and independent living.
Interesting Historical Context
The Autism CARES Act builds on the foundation laid by the Combating Autism Act of 2006. The original Act was a response to the growing prevalence of autism diagnoses and the need for coordinated federal action. The reauthorizations in 2014 and 2019 reflect a continued commitment to addressing the evolving needs of the autism community, with a focus on research, early intervention, and support across the lifespan.
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