AUCD's Inclusive 2025

 

Join AUCD in Creating an Inclusive 2025

At AUCD, we believe in a world where all people, including those living with disabilities, are fully included and active members of their communities. With your support, we can continue to uplift the voices of self-advocates, placing them at the center of disability conversation, progress, and research, and building a more inclusive future for 2025. 


Through AUCD’s Central Office initiatives and the Annual Conference, we bring attention to the vital work of self-advocates like Hari Srinivasan, who was awarded the AUCD 2024 Young Professional Award. Hari, who is autistic and has ADHD, is a neuroscience researcher and PhD candidate at Vanderbilt University where the Vanderbilt Kennedy Center is located. In his acceptance speech, Hari shared: 


“Research and advocacy are two sides of the same coin and not independent silos. The end goal of research is supposed to be human progress. I enjoy what I get to do. I love my research and am grateful for the opportunity of education. I appreciate the people who have encouraged me along the way in the world that often seeks to limit your potential because you are seen as too disabled."  


With your support, AUCD can continue amplifying the voices of people like Hari. Your gift will directly help fund vital initiatives that support self-advocates in the AUCD Network. 


https://aucd.wufoo.com/forms/support-aucd/








How Reasonable are Reasonable Accommodations at Work

 


Comprehensive data collection on accommodation implementation and retention rates would ensure accountability and help identify areas for improvement.

Autism and Grief

 https://www.psychologytoday.com/us/blog/giving-voice/202402/the-spectrum-of-loss-grief-through-the-autistic-lens



Accounting for Sensory Sensitivities and Communication Methods

"There may be apprehensions about whether positive psychology interventions can be effectively tailored to meet the unique and varied needs of all autistic individuals, considering our diverse sensory sensitivities, communication methods, and personal preferences." - Hari Srinivasan 

https://www.liebertpub.com/doi/10.1089/aut.2024.38246.pw

Little research to help autistics like me

If I have not fully understood my own disability, it is, in part, because there has been little research to help autistics like me understand the full scope of it, as well as targeted education, medical, or therapeutic interventions that can help us navigate it.
-Hari Srinivasan, Time

 

UNCRPD

UNCRPD. 

As an undergrad I had the opportunity to work on 42 case studies of the implementation of the UNCRPD by signatory countries. I learned so much about disability challenges, especially in under-resourced nations.  Thank you Professor Pineda for that internship opportunity. 

Disability Rights and both human rights and civil rights. The United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) represents a monumental step towards ensuring equal rights and inclusion for people with disabilities worldwide. 


What is the UNCRPD… Read on 

The Birth of UNCRPD

UNCRPD’s journey began in the early 2000s, rooted in a growing recognition that existing international human rights instruments were insufficient in protecting the rights of persons with disabilities (PWD). The Convention was adopted by the UN General Assembly on December 13, 2006, and it opened for signature on March 30, 2007 where  it received an overwhelming response; with 82 countries signing the Convention on opening day, making it the highest number of signatories in history to a UN Convention on its opening day. As of today, there are 182 parties to the Convention, including the European Union, which signed as a regional integration organization.

The drafting process of the UNCRPD was marked by unprecedented collaboration between governments and civil society, particularly organizations of PWDs. The "Nothing about us without us" motto became a central theme, ensuring that the voices of PWDs were at the forefront of the discussions. 

The first Conference of States Parties (COSP) to the UNCRPD was held in 2008 at the UN Headquarters in New York. This conference is an annual event where signatories gather to discuss progress, challenges, and strategies related to the implementation of the Convention. The COSP plays a crucial role in maintaining momentum and ensuring accountability among the States Parties.

Since its adoption, the UNCRPD has led to significant changes in legislation and policy around the world. Countries that have ratified the Convention are obligated to align their national laws and policies with its principles. This has resulted in greater awareness, increased accessibility, and more inclusive education and employment opportunities for PWDs. The Convention continues to inspire movements and advocacy efforts globally, reinforcing the idea that disability rights are human rights and that every person deserves to live with dignity, autonomy, and equality.

The UNCRPD is more than just a legal document; it is a powerful tool for change, reflecting a global commitment to ensuring that PWDs enjoy the same rights and opportunities as everyone else. Its history, structure, and impact demonstrate the ongoing efforts to build a more inclusive world where diversity is celebrated, and everyone is empowered to participate fully in society. The contributions of dedicated disability rights activists were instrumental in its creation and continue to drive its implementation, ensuring that the principles of the Convention are realized in the lives of persons with disabilities worldwide.

The U.S. and the CRPD

The United States signed the UNCRPD on July 30, 2009, indicating its support for the treaty's principles and its intent to promote and protect the rights of individuals with disabilities. However, despite signing the UNCRPD, the United States Senate has not ratified the treaty. This means that, although the U.S. has expressed its endorsement of the CRPD by signing it, the treaty has not been approved by the U.S. Senate and thus is not legally binding in the United States. The U.S. continues to adhere to its own disability rights legislation, such as the ADA, which served as an inspiration for the UNCRPD.

Main Sections of the UNCRPD

The UNCRPD is a comprehensive document that outlines the rights of disabled persons and the obligations of States Parties to promote, protect, and ensure these rights. It is divided into several key sections:

  1. Preamble: This sets the context and outlines the underlying principles of the Convention.

  2. General Principles (Article 3): Includes principles such as respect for inherent dignity, non-discrimination, full and effective participation and inclusion in society, respect for difference, and acceptance of persons with disabilities as part of human diversity.

  3. General Obligations (Article 4): States Parties commit to ensuring and promoting the full realization of all human rights and fundamental freedoms for all persons with disabilities without discrimination.

  4. Specific Rights:

    • Equality and Non-Discrimination (Article 5)

    • Accessibility (Article 9)

    • Right to Life (Article 10)

    • Equal Recognition Before the Law (Article 12)

    • Access to Justice (Article 13)

    • Liberty and Security of Person (Article 14)

    • Freedom from Torture (Article 15)

    • Freedom from Exploitation, Violence and Abuse (Article 16)

    • Living Independently and Being Included in the Community (Article 19)

    • Education (Article 24)

    • Health (Article 25)

    • Work and Employment (Article 27)

    • Participation in Political and Public Life (Article 29)

  5. Implementation and Monitoring (Articles 33-40): These articles describe the measures for implementation and monitoring, including the establishment of a Committee on the Rights of Persons with Disabilities to oversee the Convention's implementation.

Disability and Multilingualism

UNESCO is celebrating this International Literacy Day 2024 by highlighting multilingual changemakers on a global scale. Among them is Hari Srinivasan, a trailblazer for disability rights, who is a multilingual American child of immigrants

Read Full Article at unesco.org...

 

"The solution for such autistics cannot be... the liberal use of the psychotropic medications, which are unreliable Band-Aids with long- term health effects. Many of my peers in special education slowly disappeared into the black hole of being sent away to the modern day equivalents of institutions as their behaviors were no longer "manageable’ at home or in a community setting. Out of sight also means out of mind for society."
- Hari Srinivasan, Newsweek


 

Caught Between Tears and Stoicism

 

It is patronizing of social media to imply that expressions of emotion are "OK" after learning he’s disabled, as if society is willing to make the occasional exception rather than challenge its norms.

Read Full Article at


The Uncomfortable Truth Behind a Comforting Word

In the world of scientific research, words carry weight. They shape perceptions, influence emotions, and sometimes, soften the harsh realities of the work being done. One such word is "sacrifice," a term often used to describe the killing of animals, particularly rats, after they have been subjected to various experiments in the name of research. But what does "sacrifice" really mean in this context, and why does it seem to make everyone feel better about a process that is fundamentally unsettling?

The Comforting Illusion of Sacrifice

The word "Sacrifice" is imbued with noble connotations. It suggests an offering, a giving up of something valuable for a greater good. In religious and historical contexts, sacrifices are seen as acts of devotion, acts that are often rewarded with blessings or benefits. In the laboratory, however, the use of "sacrifice" to describe the euthanization of lab rats serves a different purpose—it sanitizes the act, masking the uncomfortable truth of what is actually happening.

The Reality Behind the Term

In research settings, rats are often subjected to a variety of procedures. These can include surgeries, injections, and exposure to drugs or other substances, all in the pursuit of scientific knowledge. After these procedures, the animals are typically euthanized. The term "sacrifice" is used to describe this final act. But let's be clear: the rats are not voluntarily giving up their lives for the greater good. They are being killed because their continued existence is no longer deemed necessary or beneficial for the study.

Making Everyone Feel Better

Using the word "sacrifice" helps researchers, lab technicians, and the public feel better about the process. It creates a psychological buffer, a way to cope with the ethical dilemmas inherent in animal research. By framing the killing as a sacrifice, it suggests that the act is justified, that it is part of a noble quest for knowledge and human advancement. This linguistic choice helps to ease the guilt and moral discomfort that might otherwise accompany the act of ending an animal's life.

The Irony and Ethical Implications


The irony is palpable. While the term "sacrifice" suggests a willing, even heroic act, the reality is one of imposed death following a period of often stressful and painful experimentation. This discrepancy raises important ethical questions. Are we too quick to accept this euphemism without questioning the underlying practices? Does the term "sacrifice" allow us to avoid confronting the moral complexities of animal research?

Perhaps it is time to reconsider our language and the comfort it provides. Transparency in research practices, including the language we use, is crucial. Instead of relying on euphemisms, we should strive for honesty about what happens to animals in research settings. This might involve using more straightforward terms like "euthanize" or "kill" to describe the end of an animal's life in the lab.

High Turnover in lower paid and high-stress disability support profession

 https://time.com/6551520/loneliness-autism-essay/ 



 My Ted X talk titled "Pebbles in the Pond of Change

Hari Srinivasan, shares a powerful message about the power of small actions in creating ever-widening ripples in the pond of change. Drawing from personal experiences and the legacy of disability rights leaders, he redefines progress as a journey that starts with simple, accessible steps. His inspiring message encourages everyone to identify and act on their own "small pebbles" to drive societal transformation.

Relationship as a building block

I've had the privilege of listening to Hari Srinivasan share his perspective on various topics over the years. His ability to share his personal narrative paired with the current science is an incredible gift. As Mr. Srinivasan shares, "All humans, disabled or not, yearn for human connections that enrich their lives beyond a mere fulfillment of basic needs." 

Indeed relationship is one of the building blocks of the PERMA+ theory of wellbeing (R=Relationships). Like Mr. Srinivasan, I too am looking to Vivek Murthy and his wisdom to help us all with his wise words, including, "While loneliness has the potential to kill, connection has even more potential to heal." Here's to 2024 being a year of connection. #wellbeingwins

Read at Time: The Pervasive Loneliness of Autism https://time.com/6551520/loneliness-autism-essay/

My other list of Publications: https://uniquelyhari.blogspot.com/p/published-work.html

Over Focus on Productivity


Mainstream discussions around remote and hybrid employment models often focus on productivity, or the perceived reduced networking and socialization.

Paradoxically, these very reasons serve to increase productivity for many disabled people, including the autism community.



 

It is not the same being given enough time to finish an exam, in a setting that is conducive to focusing on answering the exam

Article Link: https://www.psychologytoday.com/us/blog/giving-voice/202410/how-reasonable-are-reasonable-accommodations-at-work



In education and in the workplace, appropriate accommodations are crucial for people to learn and to perform at their best. This article tackles the "reasonable" piece of the ADA rule. Who decides what "reasonable" is?

Even when accommodations are nominally given, the quality of the accommodation can vary immensely. It is not the same being given enough time to finish an exam, in a setting that is conducive to focusing on answering the exam, than having "1.5x" the time in a room with noisy people, in the middle of a lab, or in the professor's office, under the professor's gaze.

The article was written by Hari Srinivasan, who is a fellow member of the College Autism Network 


In-person employment in autism

https://fortune.com/2023/07/27/flexible-work-critics-using-same-arguments-were-used-oppose-disabled-ramps-closed-captioning-equity-access-never-optional-remote-work-careers-hari-srinivasan/

 

Disability and Multilingualism

Growing up, Hari Srinivasan remembers repeatedly learning about St. Patrick’s Day in his special education classroom—a holiday that, while interesting, felt disconnected from his own cultural heritage.

Read Full Article at unesco.org...

 

"Many autistics like me [are...] excluded from autism research due to the complexity of our issues, or because of the research methods used."
-Hari Srinivasan, Time