Media Mention by India Autism Center Nayi Disha
Campus Change Maker
This post from my UC Berkeley days, showed up at the top of my social media today, along with some new comments.
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An honor for sure to be called campus change maker.
in my email inbox today from DSP ListServ
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Bringing Disability Awareness & Visibility to Sproul Plaza!
Visit our table on Sproul Plaza today from 9 to noon to connect with student groups and campus resources including: The Disabled Students Commission, Berkeley Disabled Students Group (BDS), Spectrum at Cal, OCD at Cal, CAPS, RSF, DSP, and the DCC!
As part of Disability Awareness Month celebrations, we are uplifting the work and stories of a series of Change Makers from the Disability Community. This week, we are highlighting the contributions of Hari Srinivasan. Undergraduate student, instructor of the Autism DeCal, and journalist at the Daily Cal.
Image Description: A photo of Hari standing on a bridge on UC Berkeley's campus. Text reads: Hari Srinivasan. Undergraduate student and instructor. There is a quote from Hari next to it that reads, "I want you to think of disability as possibility too. Only when you think of possibility can the door of opportunity be opened."
==========
An honor for sure to be called campus change maker.
in my email inbox today from DSP ListServ
======
Bringing Disability Awareness & Visibility to Sproul Plaza!
Visit our table on Sproul Plaza today from 9 to noon to connect with student groups and campus resources including: The Disabled Students Commission, Berkeley Disabled Students Group (BDS), Spectrum at Cal, OCD at Cal, CAPS, RSF, DSP, and the DCC!
As part of Disability Awareness Month celebrations, we are uplifting the work and stories of a series of Change Makers from the Disability Community. This week, we are highlighting the contributions of Hari Srinivasan. Undergraduate student, instructor of the Autism DeCal, and journalist at the Daily Cal.
Image Description: A photo of Hari standing on a bridge on UC Berkeley's campus. Text reads: Hari Srinivasan. Undergraduate student and instructor. There is a quote from Hari next to it that reads, "I want you to think of disability as possibility too. Only when you think of possibility can the door of opportunity be opened."
- Way to go Hari! You make a difference!
- There is no “Dis” in ability. Well done , keep up the amazing work!
- You earned it, Hari. I love our course together, and I look forward to your work in the future. Get after it!
- #harirocks
- Hari...You are the best!
- Well deserved, Hari! You are doing great things in the world.
- Love it.
An utter lack of accountability
Today there was a news article about a 7 year old autistic boy who went missing from his school during the school day. This was during a snowstorm, and he was found shivering and soaked in the middle of a busy traffic intersection by good neighborhood samaritans - and wearing just a thin t-shirt.
The school of course insisted that the child had been missing a mere 2-3 minutes, though investigations show him having walked through a patch of woods and being outside for over 35 minutes.
There had already been a plan in place as this autistic kid frequently eloped (a term used for kids who wander away). The police and parents were to be informed but neither happened. The good samaritans saw a kid darting about in traffic, stopped the traffic, rescued him, took him home and wrapped him in blankets.
Unfortunately the school district missing an autistic child during the school day is more common that you would think. As is the practice of gaslighting parents on the details (fear of being sued!!). The fear of being sued apparently more critically important than any safety concerns of disabled children.
When I was younger (~grade 3-4) I was in a classroom simply known as Room 20 in Dilworth Elementary. An autistic kid in my class did go missing for several hours. The school went into a lockdown as they searched for him. We were all asked to come indoors and stay inside.
Later that afternoon, an old man who lived a few streets away returned the kid as he had found him wandering around.
Of course, there was a lot of discussion in the class that day between the teacher and the classroom aides about how to downplay or not report this incident to the parents at all. I don't know the end result of how much the parents were told, but those overheard conversations about how to avoid revealing the truth about a missing child to its parents by educators are deeply disturbing.
How can we autistics fully put our trust and faith in an education system if we don't believe educators (the ones supposed to nurture and help us) will only will watch their own back and not your back.
https://www.youtube.com/watch?v=sJBoKDEUJy4
Not a good start to 2024
I can't believe its Feb 1 already. This year has not a had a great start. I lost my grandpa on December 14, we were barely back from that and then heard my grandma passed away due to a cardiac arrest on Jan 6 so again rushed back from India. Emotionally, one loss is heard but a double loss is heard to handle on any account.
Add to that some horrible travel woes. Lost luggage the first trip - my luggage went to London instead of Chennai. Last minute flight cancellation in Frankfurt leaving us stranded as to how to move on. The 2nd journey no better. Stranded in a cold Newark airport this time. Terrible journeys.
To top it all poicked up illness on the journey or flight (planes are testtubes of disease) and now entire family is sick and quite crazy sick the last couple of weeks with an unknown virus. The saga continues.
A need for affirming caregiver trainings for autistics
The Pervasive Loneliness of Autism: https://time.com/6551520/loneliness-autism-essay/
My other list of publications: https://uniquelyhari.blogspot.com/p/published-work.html
Isolation is a critical issue for Autistic adults
The pervasive loneliness of Autism https://time.com/6551520/loneliness-autism-essay/
It opens: "Loneliness has long been a pervasive issue within the disability community, growing even more pronounced as individuals age...Ironically, relentlessly pursuing a disabled person’s greatest sign of “success”—independence—might be the very thing that’s setting many Autistics on a path towards profound loneliness and fragmented relationships."
Isolation is a critical issue for Autistic adults. It is often exacerbated by the pressure to "become an adult" and "live independently". Yet, Autistic individuals often find that their families are their only real support, but that societal norms stigmatize adults living with family.
Independence is a myth we are taught to chase in America when what we should be seeking to teach is interdependence.
No human lives independently. We all rely on other humans to get our needs and wants met. Whether we are talking about hiring an accountant to do your taxes, dropping your car off for an oil change, or having a person to assist with meal planning, it is all interdependence.
While striving for autonomy in adulthood is vital, it's also crucial to balance it with support and meaningful relationships with others. Acknowledging our innately human interdependent nature is essential if we intend to foster a more inclusive society for Autistics.
I highly recommend reading Hari's full piece below.
Consequences of a fixed message
The Pervasive Loneliness of Autism https://time.com/6551520/loneliness-autism-essay/
As always, I am so grateful for Hari’s wisdom and insights. As someone who stands in front of thousands of people a year, and talks about the need to foster and support independence, I am bowled over by the very real consequence of that fixed message. The singular goal of independence can, along with other factors, lead to the experience of profound loneliness. Rather than a focus on independence, the true focus should be on balance. Hari said it best with “But it’s also essential to recognize that advocating for meaningful connections and a more balanced approach to independence does not diminish the importance of autonomy. Striking a balance between independence and support is crucial for the well-being of autistic individuals.” Thank you, Hari Srinivasan, for yet another profound learning opportunity.
Strength Spotting Saturday
I was spotlighted along with some rather kind words by an org today on social media
It's Strength Spotting Saturday, and today we're spotlighting Hari Srinivasan!
🌟Perspective - Mr. Srinivasan graciously shares his view of the world in a manner that is accessible to the general public. His contributions to the widely distributed Time Magazine increase the understanding and awareness of his lived experience.
🌟Perseverance - The achievements in scholarship demonstrated by Mr. Srinivasan are demonstrative of his perseverance. Honors in his undergraduate program at the University of California Berkeley and entrance into the prestigious neuroscience program at Vanderbilt University as a doctoral candidate are just a few of his achievements in higher education.
🌟Judgment - Mr. Srinivasan serves in many advisory roles, including membership of the Interagency Autism Coordinating Committee, which advises federal policy and priorities, and on the Council of Autistics Advisors for the Autism Society of America. In these roles, he adeptly views different opinions and weighs the evidence to guide decision-making for the betterment of the autism community.
Societal Ideal of Independence
Independence = overrated! So many great points @TIME piece @HariSri108
'The societal ideal of independent living for [#autistic people] translates to living apart from...family + being surrounded instead by a series of paid support staff'
https://time.com/6551520/loneliness-autism-essay/
Ed Roberts Day
Ed Roberts Day, celebrated annually on January 23rd, marks a significant moment to reflect on the extraordinary life and enduring legacy of a trailblazer in disability rights. Ed Roberts, an alumnus of the University of California, Berkeley, was not just a figurehead but a formidable force in the movement for the rights and recognition of people with disabilities.
Born in 1939, Roberts' journey into activism began with his personal battle with polio at the age of 14. Despite being paralyzed from the neck down and dependent on a respirator, his indomitable spirit led him to challenge societal norms and barriers. His admission to UC Berkeley in 1962 marked the beginning of a transformative era, both for himself and for the university.
At Berkeley, a place known for its spirit of revolution and change, Roberts ignited a movement that would reshape the landscape of disability rights. He became the first student with severe disabilities to attend the university, living in Cowell Hospital (now the site of Haas Business School) since the dorms were not accessible. This experience was not just a testament to his resilience, but also a stark indicator of the need for systemic change.
Roberts' most notable accomplishment was the founding of the Physically Disabled Students Program (PDSP), the first program of its kind in the country. This initiative, which began as a small, student-led effort, evolved into the Disabled Students' Program, a model replicated by universities and colleges nationwide. The program not only provided essential services but also fostered a community and a sense of belonging among disabled students, offering academic guidance, peer support, and advocacy.
Beyond Berkeley, Roberts' impact continued to grow. He became a key figure in the independent living movement, advocating for policies and practices that promoted autonomy and equality for people with disabilities. His work culminated in the development of the Berkeley Center for Independent Living, a groundbreaking model for disability services and advocacy.
Ed Roberts' life is a beacon of inspiration, demonstrating the power of resilience, advocacy, and the relentless pursuit of equality. His legacy at UC Berkeley and beyond continues to resonate, reminding us of our collective responsibility to build a more inclusive and equitable world. Ed Roberts Day is not just a commemoration but a call to action, a day to honor a visionary leader and to recommit ourselves to the principles he championed.
Born in 1939, Roberts' journey into activism began with his personal battle with polio at the age of 14. Despite being paralyzed from the neck down and dependent on a respirator, his indomitable spirit led him to challenge societal norms and barriers. His admission to UC Berkeley in 1962 marked the beginning of a transformative era, both for himself and for the university.
At Berkeley, a place known for its spirit of revolution and change, Roberts ignited a movement that would reshape the landscape of disability rights. He became the first student with severe disabilities to attend the university, living in Cowell Hospital (now the site of Haas Business School) since the dorms were not accessible. This experience was not just a testament to his resilience, but also a stark indicator of the need for systemic change.
Roberts' most notable accomplishment was the founding of the Physically Disabled Students Program (PDSP), the first program of its kind in the country. This initiative, which began as a small, student-led effort, evolved into the Disabled Students' Program, a model replicated by universities and colleges nationwide. The program not only provided essential services but also fostered a community and a sense of belonging among disabled students, offering academic guidance, peer support, and advocacy.
Beyond Berkeley, Roberts' impact continued to grow. He became a key figure in the independent living movement, advocating for policies and practices that promoted autonomy and equality for people with disabilities. His work culminated in the development of the Berkeley Center for Independent Living, a groundbreaking model for disability services and advocacy.
Ed Roberts' life is a beacon of inspiration, demonstrating the power of resilience, advocacy, and the relentless pursuit of equality. His legacy at UC Berkeley and beyond continues to resonate, reminding us of our collective responsibility to build a more inclusive and equitable world. Ed Roberts Day is not just a commemoration but a call to action, a day to honor a visionary leader and to recommit ourselves to the principles he championed.
A cycle of dependency
Congratulations. Hari. This is such a moving piece that sheds light on the unspoken experience many endure. I love how you conclude with "...in actuality, all humans live in a cycle of dependency. The perceived division between independence and dependence is a flawed notion."
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