A Dual Pronged Approach to Autism

I believe a dual pronged approach is needed for autism and both approaches can & needs to co-exist for many autistics. I have a leg in both groups and I need help on both. Its not an either-or. 

Money, careers and fame

Autism is a proven profit-making industry. Everything in autism space costs money; not just average money but real $$$$$$. It's profit with almost no accountability. If an autistic does not progress, it because they were not going to show progress anyway, you are too old, it's too late, so don't deserve solutions for your challenges or opportunities for your strengths. 

Autism is also a career-making industry, with books published, speeches of fancy words at conferences. We are surrounded by money-making "autism-expert-celebrities" though no one still has a clue. 

Joy is the inspiration that comes from the beauty of nature

Contemplation, one line a day. #MentalHealth


 

CARS - Childhood Autism Rating Scale

Lexicon [Measures] - CARS

The Childhood Autism Rating Scale (CARS) a behavior observation scale intended to help diagnose autism and plan interventions/therapy. CARS is administered by a clinician through direct observation and interactions and involves structured and semi-structured activities to elicit specific behaviors. The tool is designed for children aged 2 years and older.

Limitations:
  • CARS may not be suitable for individuals with co-occurring conditions or for assessing adults with autism.
  • CARS is a subjective assessment tool that relies on the judgment of the observer which means inter-rater reliability may vary depending on the experience and training of the clinician.
  • Focuses primarily on behaviors associated with autism and may not capture the full range of a child's abilities or challenges.
  • Does not provide a definitive diagnosis of autism but rather serves as a quantitative measure of symptom severity.

15 Functional domains rated in CARS
  1. Relating to People: Ability to engage in reciprocal social interactions, such as sharing enjoyment, eye contact, and response to others' emotions.
  2. Imitation: ability to mimic the actions, expressions, or sounds of others.
  3. Emotional Response: Assesses the appropriateness and variety of the child's emotional expressions and responsiveness to emotional cues from others.
  4. Body Use: physical movements and coordination.
  5. Object Use: ability to play with toys and use objects in a 'socially appropriate' manner
  6. Adaptation to Change: Flexibility and response changes in their environment or routine.
  7. Visual Response: visual attention and responses to sounds and spoken language
  8. Listening Response: attention and reactions to auditory stimuli.
  9. Taste, Smell, and Touch Response and Use: responsiveness to different sensory stimuli
  10. Fear or Nervousness: reactions to potentially fear-inducing or anxiety-provoking situations.
  11. Verbal Communication: appropriateness and usefulness of the child's verbal communication.
  12. Non-verbal Communication: appropriateness and usefulness of the child's non-verbal communication.
  13. Activity Level: physical activity level during the assessment.
  14. Level and Consistency of Intellectual Response: problem-solving abilities and the consistency of their intellectual responses.
  15. General Impressions: observer's overall impression of the child's behavior during the assessment.
The items are scored on a scale of 1-4, with 1 representing no "abnormality" and 4 as severe abnormal (I personally cringe at this language with terms like "abnormal" which makes us sound like societal misfits and outcasts). Total score ranges from 15-60; scores below 30 suggest absence of autism or very mild symptoms; 30-36 score indicate mild-moderate autism and scores above 36 indicate severe autism. 


History: CARS was developed by Eric Schopler, Robert J. Reichler, and Barbara Rochen Renner and was first published in 1988. 

Reference:
Schopler, E., Reichler, R. J., & Renner, B. R. (1988). The Childhood Autism Rating Scale (CARS). Los Angeles: Western Psychological Services.

Two birds in Frost

From my breakfast window: 

Frost on the green winter grass
Glistening in the rays of the emerging sun
Tiny birds bask on the mighty tree stump
My small moment of awe today. 
What joy!!

-Hari Srinivasan
 
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We pay so much money for all the therapy in the autism space. Here is something that is completely and absolutely FREE. The best part is, no one can gatekeep and deny its access for you or decide you are "not a good-fit."


It's AWE Awe is beneficial to the mind and the body. And you don't have to travel far on an expensive vacation to experience awe. It's all around you - that blade of grass, that tall building you walk beneath, images from the James Webb telescope, our BFF God (forever, gonna outlast us all), or even that tiny ant on the ground.


Let's make use of and benefit from this 

FREE, ACCESSIBLE & BENEFICIAL RESOURCE of AWE 

by engaging in small moments of AWE everyday. 




Here's another post on A Moment of Awe - Birth of a Star



Joy is the sense of freedom that comes with being true to ourselves.

Contemplation, one line a day. #MentalHealth


 

The worst enchilada ever

 

Thick and rubbery Tortilla and not tasty filling. 
The worst ever enchilada ever at Chuy's Tex-Mex
@nashville, TN

Intense World Theory

 

While no single theory fully explains all aspects of autism, each attempts to provide insights into different cognitive and behavioral characteristics.


  • This theory posits that the autistic brain is hyper-reactive to sensory stimuli, leading to an "intense world" experience. This hyper-reactivity is thought to result from increased neuronal connectivity and hyper-plasticity.
  • Implications: Sensory overload, social withdrawal, heightened anxiety, and a preference for predictable and controlled environments to manage overwhelming stimuli.
Read more on [Intense World Theory]
Posts on other [Theories of Autism]

Trapped in Turmoil


Trapped in Turmoil: SIB and Meltdown


In turmoil deep, the mind doth rage,

A tempest wild, within the cage.

A meltdown fierce, the self doth harm,

A trauma deep, the soul doth alarm.


With autism's veil, the mind doth cope,

But oft it strains, and seeks to elope.

In self-injury, it finds release,

But in the wake, a heart doth cease.


Oh autism, thy ways are hard,

For those who bear thy hidden card.

Urgent call for solutions anon,

And hold us close, with open mind.


#autismsolutions

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A poem on self-injurious behavior which is a reality for many autistics and is terribly traumatizing and battering for both the autistics and others around. We need solutions urgently. 


See this earlier post on SIB & Suicide Ideation in Autistics.

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Joy is the kindness that comes with making a positive impact on others

Contemplation, one line a day. #MentalHealth


 

Be Supported to Joy


Be supported to Joy, is what we need.
Empowerment, Solutions are the seed.
For happiness, our hearts will plead.

True want in life, to live in joy. 
Can we wake up to Joy,
every single day of our lives?


Inspired by Cal Montgomery's FB post. I love your comment Cal. Disabled or not, I think that's all we ever want in life, to live in joy. 
(And thank you Cal, for your kind words about me!!)

Text on Cal's FB post says

I saw this when it came out. It was so beautiful. May we reach a future where every child can be supported to joy. Hari Srinivasan , for one, is working on it.

The link should be open-access.
"“Your kid IS everything!!!!!!” Carey tweeted. “Knox, you made my day. Your JOY gives me and everyone watching JOY. THANK YOU for reminding me why I wake up in the morning and do what I do. I love you.”
“She loves me?” [Knox] asked his mom. “Mariah Carey loves me?”"
Image: Black autistic boy singing with his whole body in front of his classmates.








 

Joy is the generosity that comes with giving from the heart

Contemplation, one line a day. #MentalHealth